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Todd1963
Veteran Member


Date Joined Oct 2008
Total Posts : 3250
   Posted 5/3/2011 8:23 PM (GMT -6)   
I haven't been around for awhile but I am still around. Had a psa drawn yesterday. It was up slightly but not too bad. 3.34. Up from 2.38. I have been on des for 6 months now. I am still fractional compared to my original psa at time of dx. I am coming up on my 5 year anniversary since dx. Still going strong. Love you guys. Todd
dx:06/03/06
Age at dx: 42 age now 45
Treated for sciatic nerve pain 6 months prior to dx.
Heavy amount of blood in urine Unable to urinate 
Lung x-ray for pnumonia revealed multiple lesions in each lung
P.S.A. at time of dx. 3216.14
Began lupron and casodex
Cat scan showed large mass in the pelvic area affecting the bladder multiple nodules in both lungs and lymph node envolvement.
Bone scan revealed possible bone involvment in the pelvic area
Biopsy 12 of 12 cores positive gleason 3+4=7
P.S.A.s since lupron 2946, 1274, 532, 5.01 1.23, .09
Begining jan 08 psa .o9, .25, .44, .86, .73, 1.34, 1.49. Doubling time is a little over 3 months
Cat Scan 12/12/08 Prostate normal size and shape. No tumors detected. Left lung clear of all nodules right lung showing only benign scar tissue. Lymph nodes normal
Bone Scan 12/24/08. Clean!!! went off casodex January 4 2009
Current psa 2/13/09 .16
Latest P.S.A. 0.05 newest P.S.A. undetectable

Herophilus
Veteran Member


Date Joined Sep 2009
Total Posts : 664
   Posted 5/3/2011 8:32 PM (GMT -6)   
My best to you Todd !
Age 51 PSA 6.8
Bxy 10 of 12 Cores positive for Gleason 6. up to 75%
Robotic surg 11-02-09
Post op path. 20% neoplasm;4+3=7 Gleason
All nodes (14) and other related tissue negative for cancer
No EPE
Post op PSA x 3, all <0.01
walkbobwithjack.blogspot.com

F8
Veteran Member


Date Joined Feb 2010
Total Posts : 3986
   Posted 5/3/2011 8:44 PM (GMT -6)   
you're a miracle Todd!
 
ed
 
 
age: 56
PSA on 12/09: 6.8
gleason 3+4 = 7
HT, BT and IGRT
received 3rd and last lupron shot 9/14/10
2/8/11 PSA <.1, T= 6 ng/dl

Sleepless09
Veteran Member


Date Joined Jul 2009
Total Posts : 1267
   Posted 5/3/2011 9:11 PM (GMT -6)   
Todd, great to hear from you! All best wishes.

Sheldon AKA Sleepless
Age 67 in Apil '09 at news of 4 of 12 cores positive T2B and Gleason 3 + 3 and 5% to 25% PSA 1.5
Re-read of slides in June said Gleason 3 + 4 same four cores 5% to 15%
June 29 daVinci prostatectomy, Dr. Eric Estey, at Royal Alexandra Hospital Edmonton one night stay
From "knock out" to wake up in recovery less than two hours.  Actual surgery 70 minutes
Flew home to Winnipeg on July 3 after 5 nights in Ramada Inn  ---  perfect recovery spot!
Catheter out July 9
Final pathology is 3 + 4 Gleason 7, clear margins, clear nodes, T2C, sugeron says report is "excellent"
 
Oct 1st 09 -- dry at night, during day some stress issues.
Oct 31st padless 24/7 
 
First post op PSA Sept 09  less than 0.02
PSA on Oct 23, 2009 less than 0.02
PSA on Jan 8, 2010  less than 0.02
PSA on April 9, 2010 less than 0.02 
PSA on July 9, 2010 (one year) less than 0.02
  

Todd1963
Veteran Member


Date Joined Oct 2008
Total Posts : 3250
   Posted 5/3/2011 9:19 PM (GMT -6)   
Thanks sheldon
dx:06/03/06
Age at dx: 42 age now 45
Treated for sciatic nerve pain 6 months prior to dx.
Heavy amount of blood in urine Unable to urinate 
Lung x-ray for pnumonia revealed multiple lesions in each lung
P.S.A. at time of dx. 3216.14
Began lupron and casodex
Cat scan showed large mass in the pelvic area affecting the bladder multiple nodules in both lungs and lymph node envolvement.
Bone scan revealed possible bone involvment in the pelvic area
Biopsy 12 of 12 cores positive gleason 3+4=7
P.S.A.s since lupron 2946, 1274, 532, 5.01 1.23, .09
Begining jan 08 psa .o9, .25, .44, .86, .73, 1.34, 1.49. Doubling time is a little over 3 months
Cat Scan 12/12/08 Prostate normal size and shape. No tumors detected. Left lung clear of all nodules right lung showing only benign scar tissue. Lymph nodes normal
Bone Scan 12/24/08. Clean!!! went off casodex January 4 2009
Current psa 2/13/09 .16
Latest P.S.A. 0.05 newest P.S.A. undetectable

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 5/3/2011 9:20 PM (GMT -6)   
Todd, your PC journey is truly an amazing ride, keep those years coming.

David in SC
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06, 2/11 1.24, 4/11 3.81
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/10

Radical
Veteran Member


Date Joined Mar 2009
Total Posts : 739
   Posted 5/3/2011 9:21 PM (GMT -6)   
Nice to hear from you Mr President !.................Kev
Kev 53yrs [Gold Coast Qld, Australia]
PSA 4 Gleason 7 [3+4=7]
RP 24/12/08 Dr Philip Stricker [Sydney]
Upgrade Gleason Score 7.6 [4+3=7]
Stage 2 Margin status- Focal Involvement
ED- okay with Meds.
PSA at 2 yrs, no change remains 0.03
"Every-day in Every-way I Get Better"

goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2692
   Posted 5/3/2011 9:44 PM (GMT -6)   
Todd,

Every time I check HW I look for your name. So glad to hear you are still fighting, and sounds like you are holding your own.

You truly do inspire me, and let me know that the fight is worth it.

Thanks for checking in .

Goodlife

Todd1963
Veteran Member


Date Joined Oct 2008
Total Posts : 3250
   Posted 5/3/2011 10:00 PM (GMT -6)   
Thanks guys. Ed, Kev, David and sheldon and also the goodlife. I need to start posting a little more. How do I get to the veteran member status. You guys are great. My gramps has been fighting p.c. for thirty years. I plan on out lasting his record. Todd
dx:06/03/06
Age at dx: 42 age now 45
Treated for sciatic nerve pain 6 months prior to dx.
Heavy amount of blood in urine Unable to urinate 
Lung x-ray for pnumonia revealed multiple lesions in each lung
P.S.A. at time of dx. 3216.14
Began lupron and casodex
Cat scan showed large mass in the pelvic area affecting the bladder multiple nodules in both lungs and lymph node envolvement.
Bone scan revealed possible bone involvment in the pelvic area
Biopsy 12 of 12 cores positive gleason 3+4=7
P.S.A.s since lupron 2946, 1274, 532, 5.01 1.23, .09
Begining jan 08 psa .o9, .25, .44, .86, .73, 1.34, 1.49. Doubling time is a little over 3 months
Cat Scan 12/12/08 Prostate normal size and shape. No tumors detected. Left lung clear of all nodules right lung showing only benign scar tissue. Lymph nodes normal
Bone Scan 12/24/08. Clean!!! went off casodex January 4 2009
Current psa 2/13/09 .16
Latest P.S.A. 0.05 newest P.S.A. undetectable

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 5/3/2011 10:18 PM (GMT -6)   
Todd, you just need 65 more posts, that will do it to change your status
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06, 2/11 1.24, 4/11 3.81
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/10

tatt2man
Veteran Member


Date Joined Jan 2010
Total Posts : 2845
   Posted 5/3/2011 10:20 PM (GMT -6)   
Todd - good to hear from you - wishing you all the best - hugs, BRONSON
Age:55 -gay with spouse of 14 years, Steve -Peterborough, Ontario, Canada
PSA:10/06/09 3.86
Biopsy:10/16/09- 2 of 12 cancerous, 5% involvement -Gleason 7 (3+4)
Radical Prostatectomy:11/18/09
Pathology:pT3a -Gleason 7 -extraprostatic extension -perineural invasion -prostate weight -34.1 gm
PSA:04/08/10 -0.05 -Zero Club
PSA:09/23/10 -0.05 -Zero Club
PSA:03/24/11 -0.02 -Zero Club
PSA:03/24/12- TBA

Todd1963
Veteran Member


Date Joined Oct 2008
Total Posts : 3250
   Posted 5/3/2011 10:35 PM (GMT -6)   
thanks bronson
dx:06/03/06
Age at dx: 42 age now 45
Treated for sciatic nerve pain 6 months prior to dx.
Heavy amount of blood in urine Unable to urinate 
Lung x-ray for pnumonia revealed multiple lesions in each lung
P.S.A. at time of dx. 3216.14
Began lupron and casodex
Cat scan showed large mass in the pelvic area affecting the bladder multiple nodules in both lungs and lymph node envolvement.
Bone scan revealed possible bone involvment in the pelvic area
Biopsy 12 of 12 cores positive gleason 3+4=7
P.S.A.s since lupron 2946, 1274, 532, 5.01 1.23, .09
Begining jan 08 psa .o9, .25, .44, .86, .73, 1.34, 1.49. Doubling time is a little over 3 months
Cat Scan 12/12/08 Prostate normal size and shape. No tumors detected. Left lung clear of all nodules right lung showing only benign scar tissue. Lymph nodes normal
Bone Scan 12/24/08. Clean!!! went off casodex January 4 2009
Current psa 2/13/09 .16
Latest P.S.A. 0.05 newest P.S.A. undetectable

Todd1963
Veteran Member


Date Joined Oct 2008
Total Posts : 3250
   Posted 5/3/2011 10:36 PM (GMT -6)   
thank you david. I think I will make it
dx:06/03/06
Age at dx: 42 age now 45
Treated for sciatic nerve pain 6 months prior to dx.
Heavy amount of blood in urine Unable to urinate 
Lung x-ray for pnumonia revealed multiple lesions in each lung
P.S.A. at time of dx. 3216.14
Began lupron and casodex
Cat scan showed large mass in the pelvic area affecting the bladder multiple nodules in both lungs and lymph node envolvement.
Bone scan revealed possible bone involvment in the pelvic area
Biopsy 12 of 12 cores positive gleason 3+4=7
P.S.A.s since lupron 2946, 1274, 532, 5.01 1.23, .09
Begining jan 08 psa .o9, .25, .44, .86, .73, 1.34, 1.49. Doubling time is a little over 3 months
Cat Scan 12/12/08 Prostate normal size and shape. No tumors detected. Left lung clear of all nodules right lung showing only benign scar tissue. Lymph nodes normal
Bone Scan 12/24/08. Clean!!! went off casodex January 4 2009
Current psa 2/13/09 .16
Latest P.S.A. 0.05 newest P.S.A. undetectable

Todd1963
Veteran Member


Date Joined Oct 2008
Total Posts : 3250
   Posted 5/3/2011 10:37 PM (GMT -6)   
how many posts does it take to be an elite member
dx:06/03/06
Age at dx: 42 age now 45
Treated for sciatic nerve pain 6 months prior to dx.
Heavy amount of blood in urine Unable to urinate 
Lung x-ray for pnumonia revealed multiple lesions in each lung
P.S.A. at time of dx. 3216.14
Began lupron and casodex
Cat scan showed large mass in the pelvic area affecting the bladder multiple nodules in both lungs and lymph node envolvement.
Bone scan revealed possible bone involvment in the pelvic area
Biopsy 12 of 12 cores positive gleason 3+4=7
P.S.A.s since lupron 2946, 1274, 532, 5.01 1.23, .09
Begining jan 08 psa .o9, .25, .44, .86, .73, 1.34, 1.49. Doubling time is a little over 3 months
Cat Scan 12/12/08 Prostate normal size and shape. No tumors detected. Left lung clear of all nodules right lung showing only benign scar tissue. Lymph nodes normal
Bone Scan 12/24/08. Clean!!! went off casodex January 4 2009
Current psa 2/13/09 .16
Latest P.S.A. 0.05 newest P.S.A. undetectable

Tim G
Veteran Member


Date Joined Jul 2006
Total Posts : 2358
   Posted 5/3/2011 11:09 PM (GMT -6)   
Todd,

It was great to see your post today and read that you are doing well. Keep up the good work!

Tim
PSA quadrupled in one year (0.6 to 2.6)
DRE negative Retested at 3 months
1 of 12 biopsies positive (< 5%) G6
RP open surgery June 2006 at age 57
Bilateral nerve-sparing
Organ-confined to one minuscule area, downgraded to G5
Prostate weight 34 grams
PSAs < 0.1

Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3739
   Posted 5/4/2011 4:59 AM (GMT -6)   
Todd,
Good to hear from you.
No matter what the membership level says, you are a Veteran in our book.
You have given hope to more guys than you can imagine.
Thank you!
Jeff
Age: 58, Mar 35 yrs, 56 dx, PSA: 4/09 17.8 6/09 23.2
Biopsy: 6/09 7 of 12 Pos, 20-70%, Gleason 4+3 Bone, CT Neg
DaVinci RP: 7/09, U of Roch Med Ctr
Path Rpt: Glsn 3+4, pT3aNOMx, 56g, Tumor 2.5x1.8 cm both lobes and apex
EPE present, PNI extensive, Sem Ves, Vas def clear, Lymph 0/13
Incont: 200ml/day ED: Trimix
Post Surg PSA: 10/09 .04, 4/10 .04, 7/10 <0.01, 12/10 <0.01
AdVance Sling 1/10/11 Dry

zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 5/4/2011 6:00 AM (GMT -6)   
Word... rock n roller man....I like your band too(Baird Creek)....I became a 'Creek Freak' (LOL).
You should have alot less side effects on DES compared to Lupron, would you care to mention such for others????? Are you taking 1-mg or 2-3 mg's, presume you are also using coumadin/warfarin for blood thinner???

Hope you get the righteous responses on any drugs, Keep On Rockin' in the Free World!!!

Todd1963
Veteran Member


Date Joined Oct 2008
Total Posts : 3250
   Posted 5/4/2011 6:41 AM (GMT -6)   
Thank you Jeff.
Yes Zufus. (bob) very little side effects at all. Had to have some radiation to my chest to stop the breasts from growing but other than that. Hey its all good. I'm taking 1 mg and an aspirin. I have been having some charley horses in my calf and thigh regions. Your nephews band is supremely awesome. Stay cool brothers. Todd
dx:06/03/06
Age at dx: 42 age now 45
Treated for sciatic nerve pain 6 months prior to dx.
Heavy amount of blood in urine Unable to urinate 
Lung x-ray for pnumonia revealed multiple lesions in each lung
P.S.A. at time of dx. 3216.14
Began lupron and casodex
Cat scan showed large mass in the pelvic area affecting the bladder multiple nodules in both lungs and lymph node envolvement.
Bone scan revealed possible bone involvment in the pelvic area
Biopsy 12 of 12 cores positive gleason 3+4=7
P.S.A.s since lupron 2946, 1274, 532, 5.01 1.23, .09
Begining jan 08 psa .o9, .25, .44, .86, .73, 1.34, 1.49. Doubling time is a little over 3 months
Cat Scan 12/12/08 Prostate normal size and shape. No tumors detected. Left lung clear of all nodules right lung showing only benign scar tissue. Lymph nodes normal
Bone Scan 12/24/08. Clean!!! went off casodex January 4 2009
Current psa 2/13/09 .16
Latest P.S.A. 0.05 newest P.S.A. undetectable

Todd1963
Veteran Member


Date Joined Oct 2008
Total Posts : 3250
   Posted 5/4/2011 6:43 AM (GMT -6)   
thank you tim
dx:06/03/06
Age at dx: 42 age now 45
Treated for sciatic nerve pain 6 months prior to dx.
Heavy amount of blood in urine Unable to urinate 
Lung x-ray for pnumonia revealed multiple lesions in each lung
P.S.A. at time of dx. 3216.14
Began lupron and casodex
Cat scan showed large mass in the pelvic area affecting the bladder multiple nodules in both lungs and lymph node envolvement.
Bone scan revealed possible bone involvment in the pelvic area
Biopsy 12 of 12 cores positive gleason 3+4=7
P.S.A.s since lupron 2946, 1274, 532, 5.01 1.23, .09
Begining jan 08 psa .o9, .25, .44, .86, .73, 1.34, 1.49. Doubling time is a little over 3 months
Cat Scan 12/12/08 Prostate normal size and shape. No tumors detected. Left lung clear of all nodules right lung showing only benign scar tissue. Lymph nodes normal
Bone Scan 12/24/08. Clean!!! went off casodex January 4 2009
Current psa 2/13/09 .16
Latest P.S.A. 0.05 newest P.S.A. undetectable

60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2243
   Posted 5/4/2011 6:47 AM (GMT -6)   
Great to hear from you Todd. Not sure who holds the record for Posts, but Purg has to be close to the top. But buy us all lunch at Lonhorn's and we can vote you in and bypass the rule comittee. Keep us posted.
Michael

zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 5/4/2011 7:04 AM (GMT -6)   
Todd you could be experiencing slight DVT's (I don't know), although the Journal article on DES states it is safe with aspirin, which I also did for one month like that...decided after hearing about a guy whom got a DVT while using the so called safer estradiol patch, he was hospitalized with huge swelling and risks added, took care of it in hospital. So, after heaing that I switched to using coumadin along with it...which is often recommended. Many years using it (6-7) and no problems, my cost ($136 per year)-LOL! Not including coumadin, insurance pay for that, co=pay is cheap on that. My ADT3 was $13,000 a year back in 2002-2004...I wondered why the uro-doc loved seeing me.

You might question such, especially in the long run...but then again you may be safe anyway. If you get a real DVT you will know it, and it would be really painful and if in that state go to emergency and don't play games, anything clot related has to be addressed asap. (just heads up)

Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2448
   Posted 5/4/2011 8:13 AM (GMT -6)   
Todd, thanks for checking in brother. I remember many words of encouragement from you when I began my journey. It is great to know that things are still going well for you.

This place needs the success stories, they give many of us hope and a brighter light at the end of the tunnel.

Best to you,

Sonny
60 years old - PSA 11/07 3.0 PSA 5/09 6.4
da Vinci 9/17/09 Post Surgery Pathology: GS 4+3=7
Stage: T3a
Tumor Volume 12.5% positive margin, extra-prostatic extension
PSA .6 IMRT completed 1/15/10 35 treatments- 70Gy
2/23/10 Post IMRT PSA 1.0
3/22/10 PSA 1.5
4/19/10 PSA 1.2
5/22/10 PSA 1.3
8/9/10 Radiation for MET
9/7/10 PSA 2.2
1/5/11 PSA 3.9
3/7/11 PSA 4.2
4/10/11 PSA 3.8

James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4463
   Posted 5/4/2011 10:09 AM (GMT -6)   
Todd, great to hear from you and get an update. Keep on fightin' it, guy

Veteran member- 500 posts
Elite member- 10,000 posts
James C., Age 64, Kingsport, E. TN
Gonna Make Myself A Better Man tinyurl.com/28e8qcg
4/07: PSA 7.6, 7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS6
9/07: Nerve Sparing open RP, Path: pT2c, 110 gms., clear except:
Probable microscopic involvement-left apical margin -GS6
3 Years: PSA's .04 each test until 04/10-.06, 09/10-.09, 12/10-.09, 02/11-.08
ED-total-Bimix 30cc

DaSlink
Veteran Member


Date Joined Feb 2011
Total Posts : 713
   Posted 5/4/2011 10:45 AM (GMT -6)   
Todd, this is the first time since I've joined this place that I've seen any of your journey. I must say that it is quite an inspiration to me and should be to any other newbies here.
Thank You!


Dave aka Slink
Every minute you fish or ride,adds an hour to your life!

Age 52 Dx age 53 daVinci surgery
prostate volume 32 grams
Biopsy 12 cores with 7 positive
Gleason score of 7
1st PSA 38.7 10/05/2010
2nd PSA 49.9 11/23/2010
CT neg.
BS Negative
RRP on 01/25/2011
PT3a -40% involved
margin involved-Left anterior
lymph nodes -clear
1st post op PSA-0.26-03/16/11

Todd1963
Veteran Member


Date Joined Oct 2008
Total Posts : 3250
   Posted 5/5/2011 7:08 AM (GMT -6)   
Thanks again guys. Its 5:30 am and I am headed to work. I so friggin tired. 14 and 1/2 hours yesterday with 8 of them spent inside a paper drying can. I think I should retire. I wish you all the best. It's good to see ya"ll are still around. Todd
dx:06/03/06
Age at dx: 42 age now 45
Treated for sciatic nerve pain 6 months prior to dx.
Heavy amount of blood in urine Unable to urinate 
Lung x-ray for pnumonia revealed multiple lesions in each lung
P.S.A. at time of dx. 3216.14
Began lupron and casodex
Cat scan showed large mass in the pelvic area affecting the bladder multiple nodules in both lungs and lymph node envolvement.
Bone scan revealed possible bone involvment in the pelvic area
Biopsy 12 of 12 cores positive gleason 3+4=7
P.S.A.s since lupron 2946, 1274, 532, 5.01 1.23, .09
Begining jan 08 psa .o9, .25, .44, .86, .73, 1.34, 1.49. Doubling time is a little over 3 months
Cat Scan 12/12/08 Prostate normal size and shape. No tumors detected. Left lung clear of all nodules right lung showing only benign scar tissue. Lymph nodes normal
Bone Scan 12/24/08. Clean!!! went off casodex January 4 2009
Current psa 2/13/09 .16
Latest P.S.A. 0.05 newest P.S.A. undetectable
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