one week untill Robotic Prostatectomy , any tips?

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klains
Regular Member


Date Joined Nov 2010
Total Posts : 79
   Posted 5/4/2011 8:11 AM (GMT -6)   
Hi, Well it is one week before my husbands Robotic Prostatectomy.  Wondering if anyone has any tips for him. Have been doing the kegals. Eatting well, excercising. Diet? , anything should be doing ahead of time or after surgery. Thanks

142
Forum Moderator


Date Joined Jan 2010
Total Posts : 7082
   Posted 5/4/2011 8:17 AM (GMT -6)   
Klains,
Our "really Useful" list has gotten moved, but here is a link to it:
 
 
This has a lot of notes on getting ready.
 
My biggest "logistical" suggestion is the big bucket for the catheter bag at night to keep it upright and avoid leaks and floods on the carpet.
 
DaVinci 10/2009
My adjuvant IGRT journey (2010) -
www.healingwell.com/community/default.aspx?f=35&m=1756808

GTOdave
Regular Member


Date Joined Oct 2010
Total Posts : 175
   Posted 5/4/2011 8:37 AM (GMT -6)   
Klains, your hubby will be very constipated for a few days after surgery. It is really important to go into the hospital on an empty stomach. Have the laxatives and stool softener close at hand. At about 7pm of the night of my op, I was so hungry that I begged for and got a nice bowl of mac and cheese. That was one of my more legendary mistakes! Soup only for a day or two.

Dealing with the catheter will be easy....after the shock wears off. It's no big deal.

Do read the post 142 recommended. Lots of great info there.

Oh yeah.....bring stuff to read while waiting. Thats the hardest part. You and your hubby will be fine. No worries.

Dave
52 yr old, PSA 3.5, Gleason 6 with 3 of 4 top nodes (0%;1%;10%;1%) cancerous. Bottom 2 floors are clean.
PSA 7/08: 2.2; 7/09: 2.9; 7/10: 4.1; 11/10: 3.5

First post-op PSA <.00! 7 weeks after

DaVinci surgery at Yale 3/4/11. Dr. John Coleberg THE BEST!!!

45 gram gland weight
Gl 3+3
PT2C
margins clear
no metastasis
5% of gland adenocarcinoma

April6th
Regular Member


Date Joined May 2010
Total Posts : 264
   Posted 5/4/2011 9:17 AM (GMT -6)   
The link 142 provided is very comprehensive (and is a lot more info than my doctor or hospital provided).

The only thing I wish I would have done differently (and it is relatively minor) is get a plastic toilet seat riser for my home toilet. That first several days home from the hospital, my stomach area was still sore (only when changing positions) and it was difficult to sit down on the toilet and get back up because it was so low.

Other than wishes for a successful surgery and fast recovery, that's all I have.

Dan
Here are some of my stats:
Age:54
Father diagnosed with PC at age 72 - wasn't contained to prostate when found in 1992.
My PSA rose from 3.2 to 5.1 over the course of 1.5 years with Free PSA at 25% for the last two tests.
DRE showed no evidence of tumor but Uro thought my prostate was a little large for someone my age
PCa diagnosed 4/6/10 after biopsy on 4/1/10
1 out of 12 biopsy samples was positive with 5% of biopsy sample cancerous
Gleason 3+4
Da Vinci surgery on 6/1/10
Pathology report shows cancer confined to prostate and all other tissue clean
PSA tested on 7/15/10: Zero Club membership card issued (trial membership with 90 day renewal)

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 5/4/2011 9:19 AM (GMT -6)   
With one week to go, I don't think diet or exercise is going to make a difference, not enough time to have any meaninful effect.
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06, 2/11 1.24, 4/11 3.81
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/10

DaSlink
Veteran Member


Date Joined Feb 2011
Total Posts : 713
   Posted 5/4/2011 10:02 AM (GMT -6)   
The hardest part is being relaxed about the whole thing.As Frankie says"RELAX"!
My surgery was pretty easy,except for constipation. Didn't go till 3 days after catheter was removed,around 18 days total. The other shocker was how swollen my scrotum got,but that will go down before cath is removed.Some how is missed that in the literature they gave me!
Good Luck!!!

Dave A.K.A Slink
Every minute you fish or ride,adds an hour to your life!

Age 52 Dx age 53 daVinci surgery
prostate volume 32 grams
Biopsy 12 cores with 7 positive
Gleason score of 7
1st PSA 38.7 10/05/2010
2nd PSA 49.9 11/23/2010
CT neg.
BS Negative
RRP on 01/25/2011
PT3a -40% involved
margin involved-Left anterior
lymph nodes -clear
1st post op PSA-0.26-03/16/11

wifeandmother
Regular Member


Date Joined Feb 2011
Total Posts : 45
   Posted 5/4/2011 11:07 AM (GMT -6)   
Before the surgery, just try to relax and stick to that pre-op diet.
For home after surgery:
Have a bottle of prune juice, cranberry juice and vegetable juice in the house.
Drink a glass of each a day. Kind of refreshing, (as his diet allows).
Have a bag of ONES prunes or any prunes.
Have 2 a day, as his diet allows.
Lots of canned fruit like apricots, pears, fruit cocktail, avocado, roast up some cauliflower (as his diet allows).
Have a couple more catheter bags in the house if possible, for the day and evening.
Have 2 pairs of stretchy large shorts. Got 'em at LLBean.
That large bucket for night to hold the night bag 2000ml is great by the bed!
Cut your toenails before.
Get a haircut.
VIVA paper towels are the softest, get a few.
Have washcloths to wash with. He will know why when he washes. We do, alot of people don't, you would be suprised.

My prayers with you and your family.

wifeandmother
Regular Member


Date Joined Feb 2011
Total Posts : 45
   Posted 5/4/2011 11:12 AM (GMT -6)   
Go to the hospital with the stretchy pants. After the robotic, his belly will be a bit distended. We took car service home, not a bad idea.

spottydog10
Regular Member


Date Joined Dec 2009
Total Posts : 348
   Posted 5/4/2011 12:16 PM (GMT -6)   
Dont let the dog think the cath bag is a toy:)
Stop your mates from ringing up to try and make you laugh, it's painful.

Seriously, drink lots of water and walk as much as you can, even if it's lots of small ones.
Have plenty of dvd's and books to keep you amused while you rest.
Lots of fibre, keep those bowels regular.

Good luck,
Mike

Fairwind
Veteran Member


Date Joined Jul 2010
Total Posts : 3892
   Posted 5/4/2011 12:52 PM (GMT -6)   
The pre-op bowel prep is the worst part of the whole thing..Ask the anesthesiologist not to injure the vocal cords with the breathing tube..have a pair of baggy sweat pants for the ride home.

Get all the catheter supplies out of them that you can, two bags, (large and small) extra straps, a roll of tape..

YOU will be sitting in the surgery waiting room, usually a pretty nice place with phones, WiFi, snacks...

He will have ZERO appetite for a couple of days, a couple of cans of "Boost", high energy diet drink goes down easy...
Age 68.
PSA age 55: 3.5, DRE normal.
age 58: 4.5
61: 5.2
64: 7.5, DRE "Abnormal"
65: 8.5, " normal", biopsy, 12 core, negative...
66 9.0 "normal", 2ed biopsy, negative, BPH, Proscar
67 4.5 DRE "normal"
68 7.0 3rd biopsy positive, 4 out of 12, G-6,7, 9
RALP Sept 3 2010, pos margin, one pos vesicle nodes neg. Post Op PSA 0.9 SRT, HT. 2-15-'11 PSA 0.0

clocknut
Veteran Member


Date Joined Sep 2010
Total Posts : 2680
   Posted 5/4/2011 1:31 PM (GMT -6)   
Depending on where you live, spring weather should have returned, so it will be relatively easy and a great experience to get outside and moving as soon as possible.  That may start with just an easy stroll to the corner and back, but walking is great exercise for recovery....just don't overdo it.  Since it was summer when I had my surgery, I wore a pair of those long, long basketball shorts that are being worn these days.  They covered the hip bag for the catheter and I didn't have to lug around the large bag.
 
I think someone has already mentioned putting a waterproof pad on his side of the bed in the appropriate area.  It likely will never be needed, but prevention is better than having to clean up a wet bed.  I wore briefs and a male Guard pad to bed, with the catheter bag next to the bed.  Be sure to always keep the bag lower than where it exits the body.  It's not a pleasant feeling, nor is it a good thing, if it drains backward.
 
Fortunately, my wife, being a nurse, knew how to take care of the catheter bag and tubing.  I was completely ignorant for the first day or two, but took care of myself after that.  Learn how the clip works that controls the drain at the bottom of the bag so  you can start and stop the flow without spillage.
 
You can't anticipate everything, but you are definitely doing the right thing by planning ahead.  It's not that bad, but it does require some adjustments for a while.

Steve n Dallas
Veteran Member


Date Joined Mar 2008
Total Posts : 4849
   Posted 5/4/2011 3:43 PM (GMT -6)   
The one thing I wish I knew in advance was the recovery room and waking up... I had a KILLER urge to go pee pee and couldn't. Course I had a catheter in place and was already going..

Moderator - Prostate Cancer
Age 56 - 5'11" 215lbs
Overall Heath Condition - Good
PSA - July 2007 & Jan 2008 -> 1.3
Biopsy - 03/04/08 -> Gleason 6
06/25/08 - Da Vinci robotic laparoscopy
05/14/09 - 4th Quarter PSA -> less then .01
11/20/09 - 18 Month PSA -> less then .01
05/18/10 - 24 Month PSA -> less then .01
Surgeon - Keith A. Waguespack, M.D.

lseater
New Member


Date Joined May 2011
Total Posts : 6
   Posted 5/4/2011 9:03 PM (GMT -6)   

I just had the surgery about 2 weeks ago and the thing that helped me the most post-surgery was Jello and fruit sorbet while I was on the liquid only diet. Having something that 'feels' like real food really helped me get through that part of recovery.  I was released probably a bit too early because I had not 'passed' gas yet.  Make sure that your husband has done this before they release him.

 

Good luck!

 

Larry

geezer99
Veteran Member


Date Joined Apr 2009
Total Posts : 990
   Posted 5/4/2011 9:28 PM (GMT -6)   
Ok, first of all, think a little about yourself. He is going to be asleep and you are going to be sitting in the waiting room worrying. As others have said, have good reading material. Lots of hospitals have WiFi so you can probably bring a laptop or tablet. Send email to the kids, surf the web, start a great novel. Time will drag.

When he gets back to his hospital room movement is the most curative thing he can do. Have some books, magazines, newspapers and encourage him to sit in a chair rather than lie in the bed. As soon as he is ready get a nurse to help you walk him up and down the hall.

Driving home, a pillow to sit on might be welcome.

Once home he will have trouble finding a way to sit comfortably. Problem solve. Try a foot rest, easy chair, straight chair, recliner.

A good night's sleep is important. For me, the big thing was taping the catheter tube to my thigh (with some slack) that if I moved in the night the tube didn't wag the dog. In fact, a nurse showed me how to put down a 4X4 inch square of tape on my thigh that just stayed there for the week. the tape to hold the tube went on top of that so pulling it off didn't hurt. (obviously it is nice if you have the tape in advance and don't have to run out for it)

Remember our mantra for the first few weeks drink, drink, walk, walk. He needs to get the anesthetic out of his body and prevent internal wounds from sticking to parts that they shouldn't.

Good luck -- most of this seems worse in prospect than it really is

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 5/4/2011 9:47 PM (GMT -6)   
If you need to take prescription pain meds, then take them. There is no prize for suffering in pain, and by avoiding pain meds when needed, you can actually retard the body's healing process. Any nurse will tell you that. The short time you will probably need you isn't going to cause most people any if much constipation problem. Pain is a very personal and subjective thing, and only you will know how you are feeling after you are released from the hospital.

All the advice about drinking lots of water is very important. Got to keep flushing out your system, even if you don't feel like it. It will make your hopefully short catheter time go easier on you. If your lifestyle allows, its easier to keep the big catheter bag on most of the time, the "night" bag, typically holds 2000 ml, some as much as 4000ml. If you do use the leg bag, they typically hold around 400 ml. You don't want to lie down with a leg bag on, as it can force urine back up the catheter into you bladder. Urine is only sterile in your bladder.

Walking is great, if you are up to it, try the best you can every day.

Good luck,

David in SC
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06, 2/11 1.24, 4/11 3.81
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/10

adderboy
Regular Member


Date Joined May 2011
Total Posts : 33
   Posted 5/5/2011 2:06 PM (GMT -6)   
I had open surgery April 15. I think the worse thing for me after surgery was the catheter. Just a big nuisance more than anything. Make sure the tube is well secured to your leg at all times. It is difficult to walk with the tube not supported (they use a special anchoring device called Flexi-trak. I had to put a new one on three times).
You will become a catheter expert after about 2 days (mine was in for 13 days). No pain having it taken out...just relief!

I do agree about diet - prunes, yogurt, soup, fruit, water, and stool softener for me. It hurt too much to push and you shouldn't anyway. I did not have much of an appetite for a couple of weeks post surgery.

I try to exercise every day (walking - nothing too strenuous) listen to your body - take many breaks throughout the day! Have lots of reading material. You will have more free time than you will know what to do with.

Your job for the next few months is to get well! Good luck on your journey!
Age: 55
PSA: 1.2
Dec 2010: Family Dr. found lump on routine physical (not there 1 year prior)
Feb. 6 2011 biopsy: 3 of 11 cores, T2a, Gleason 6 (3,3)
Urologist recommended "watchful waiting" ...back to my family doctor he recommended surgery.
Back to Urologist asked him to refer for third opinion (he did so reluctantly)
3rd opinion: Urologist recommends surgery
April 15: open radical prostatectomy
April 27: catheter removed...absolutely no ED issues and a little incontinence. Pathology report not ready. Dr. will call with results

Pocketman
Regular Member


Date Joined Aug 2010
Total Posts : 121
   Posted 5/5/2011 2:25 PM (GMT -6)   
Hello klains,
 
Everyone's experience is a little different.  Seems most of us do quite well.  A few have some difficulties, most of which are temporary.  You've probably noticed by now that constipation is a common theme.  I've always been pretty regular so declined the stool softeners while I was in the hospital.  Probably should have accepted them.
 
I wrote down the hightlights of my experience.  You and your husband may some of it helpful.  You'll need to take care of yourself so you can take care of him.  I'm sure you are very supportive and he will appreciate it.
 
Steve
 

Age 61, Diagnosed July 2010
PSA 04/09 - 2.5; 05/10 - 3.7; 07/10 - 4.7
DRE and Ultrasound - Negative
Size at biopsy - 32 grams
T1C, 3+3=6, 1 core of 12 60% positive
da Vinci nerve sparing RP 10/29/10
Post op biopsy indicated bilateral Gleason 6 tumors
Continence < 1 Pad
Minor ED - 90% naturally, 98% with Cialis
6 month PSA - < 0.0

Highwayman
Regular Member


Date Joined Sep 2010
Total Posts : 148
   Posted 5/5/2011 2:33 PM (GMT -6)   
Klains,
pardon me for being so forward but my advice is to make love in every room of the house every time you can right up to the moment that he goes to the hospital. Might be awhile. I wish you both the best of luck. wink
Age 48 w/diagnosed
10/06 PSA 3.0
11/06 PSA FREE %13.2
10/07 - 3.4
12/07 Biopsy-neg
1/09 - 4.6
6/09 - 5.8
2/10 - 8.7
7/10 PSA 10.8
8/2010 3rd biopsy GG 3+3=6, one of eight cores -2%
Lap 10/22/10 Dr. Troxel
Path- Neg Margins, Gleason 6, Nerves spared, 85 gm
Jan 20, psa < 0.1
April, pads only during heavy work, ed still an issue

MrGimpy
Veteran Member


Date Joined Jul 2009
Total Posts : 504
   Posted 5/6/2011 8:52 AM (GMT -6)   
Hi Klains,

All is good then great

1st the good

1) PC will be gone
2) only one more week of messy sheets

Now the GREAT

approx 3-4 months Post OP

TRIMIX ------> Nuff Said

Go on Amazon and get the Kama Sutra book, you will need ideas of what to do with that [edited inappropriate terms] erection

Wait there is much more, picture this your husband has orgasms and can keep going no recovery time needed. [edited inappropriate terms]

Post Edited By Moderator (James C.) : 5/7/2011 7:04:05 PM (GMT-6)


clocknut
Veteran Member


Date Joined Sep 2010
Total Posts : 2680
   Posted 5/6/2011 9:06 AM (GMT -6)   
I seriously doubt that just a few days prior to her husband's major surgery Klains is concerned in the least about 3-hour erections or multiple orgasms.  I can't think of anything that would have been less on my wife's mind, or on mine, at that point.   I just showed this last answer to my wife, and she said if she had received a reply like that, she'd never come back to this site.

Post Edited (clocknut) : 5/6/2011 8:11:23 AM (GMT-6)


MrGimpy
Veteran Member


Date Joined Jul 2009
Total Posts : 504
   Posted 5/6/2011 9:49 AM (GMT -6)   
Clocknut,

Levity is the perfect Rx for Stress and Anxiety which is something that they are dealing with in great quantity right now

The point was that there is light at the end of the tunnel and not that far away

clocknut
Veteran Member


Date Joined Sep 2010
Total Posts : 2680
   Posted 5/6/2011 10:10 AM (GMT -6)   
Mr. Gimpy,
I'm sure your intent was to lessen anxiety, but I'm a bit older than you, so maybe it's a generational thing, but if you made the same attempt at levity face to face with my wife, you'd probably get your face slapped by her....and if I overheard you talking to my wife about [edited inappropriate terms] then you and I would have words for sure. To me, it just sounds like a total breach of propriety, esp. when dealing with a complete stranger. However, I'll butt out and maybe some of the women on the site will chime in...or not.

Post Edited By Moderator (James C.) : 5/7/2011 6:23:26 PM (GMT-6)


Gleason 6
Veteran Member


Date Joined Mar 2011
Total Posts : 876
   Posted 5/6/2011 2:24 PM (GMT -6)   
Klains, best of luck to you.

Adderboy, you are doing great. It's nice to hear about some good results with little SE.
Age 61
PSA 4.3 9/10
PSA 5.5 2/11
PSA 7.1 3/11
Template Biopsy 6 pos out of 40 3/25/11 GS 6 (3+3)
CT bone scan neg
6/18 areas positive - 2 in left base, 4 left apex. 6/40 cores pos. 33cc.
Stage T1C
Meeting with Dr. Wehle @ Mayo 5/4/11

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 5/6/2011 6:12 PM (GMT -6)   
Mr. Gimpy,

That was a very crude and vulgar post up there, in bad taste on a site where women come and post, and being that most of us are married. Wouldn't want my wife reading what you wrote.

David in SC
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06, 2/11 1.24, 4/11 3.81
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/10

davidg
Veteran Member


Date Joined Feb 2011
Total Posts : 4093
   Posted 5/6/2011 6:29 PM (GMT -6)   
oh it's all in good nature. If you find it crude, why address it? we have cancer, we're terrified of what will happen to us and that post is exactly what i would have wanted to read heading into my surgery.

Furthermore, I now want to try this trimix...
40 years old - Diagnosed at 40
Robotic Surgery Mount Sinai with Dr. Samadi Jan, 2011
complete urinary control and good erections with and without meds
Prostate was small, 34 grams.
Final Gleason score 7 (3+4)
Less than 5% of slides involved tumor
Tumor measured 5 mm in greatest dimension and was located in the right lobe near the apex.
Tumor was confined to prostate.
The apical, basal, pseudocapsular and soft tissue resection margins were free of tumor.
Seminal vesicles were free of tumor.
Right pelvic node - benign fibroadiopse tissue. no lymph node is identified.
Left pelvic node - one small lymph node, negative for tumor (0/1)

AJCC stage: pT2 NO MX
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