flomax post op

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yobiks
Regular Member


Date Joined Feb 2011
Total Posts : 39
   Posted 5/4/2011 11:25 AM (GMT -6)   
Hi there- Has anyone have experience with flomax post surgery? I have been having urinary retention problems ever since my op on March 1. after 4 trips to the er, 1 corrective surgery,  and numerous catheritizations, my doctor wants to try putting me on flomax. Yes I am going to get a second opinion but meantime I am trying to gather information. My chronology of events follows: Sorry it's long and drawn out but that is my current situation-

March1- open prostectectomy for prostate cancer post op path report came back t2c,  gleason 3+3 all lymph nodes and margins
negative adenocarcinoma contained in organ. Surgeon did make additional cuts
at bladder margins. These tissue samples came out benign.
March 10-catheter and staples removed afternoon; back to er for urinary
retention and replacement of catheter that night. catheter installed easily 16f
March 16- removal of catheter at home per doctor. normal stream followed by
strong stream the next day
March18- further urinary retention- stream seemed to quit at once- another
trip to er and replacement of catheter.Catheter installed easily 16f.
Recommended to wait 3 weeks before removal of catheter-possible resolve of
possible stitch issue I was told. over 1000 ml drained.
April14- removal of catheter in morning followed by cystoscope in late
afternoon. Some resistance when catheter was removed. Same strong stream I
had experienced before to start off. Doctor saw (cystoscope) 1.loose
stitch2.thin stone wedged sideways into bladder neck3. now a narrowing of
bladder neck (scar tissue). Unable to reinsert catheter (16f-14f-12f w/wo
bulb) finally successful with 10f. Doctor scheduled corrective surgery that
night. Laser surgery performed. Surgery described to me as challenging. All
issues addressed.  Woke up with 16f foley catheter
April22- Catheter removed. Again the strong stream, probably 120% of my
preop normal
April27- Stream beginning to be not as strong
April 29- Stream pinches off completely, a gradual process as opposed to my
first 2 experiences. Back to er that night. Reinstalled foley catheter 12f.
er staff  installed said some resistance detected.

May2- removed foley and learned self cath. tested urine flow- normal

May3- Started morning 5:00am fairly normal steam. Left for work. By 10:00am noticed retention problem. Tried to self cath with 12f no luck. Went to Forest Grove Tuality. Nurse and doctor  on site unable to catheterize. Did break loose slightly and able to dribble a little- enough to relieve pain slightly. Transfered to St. Vincent's where er nurse able to catheterize with some difficulty 12f coude. 560ml detected with bladder scan. Detected bladder infection. Started on cipro. scheduled to go back to see Dr.  1 week for followup cystoscope.

May 4- Doctor called this morning. Prescribed flomax.

 



Any other comments much appreciated.

 
age 56
sept 28 2010
psa 2.1 ,t2b
jan10 '11 gleason 3+3 t2b
open rp scheduled march 1 2011
Both nerve bundles spared
post surgery path: t2c gleason 6
neg margins neg lymph nodes
organ contained adenocarcinoma

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 5/4/2011 11:35 AM (GMT -6)   
Your story and details of retention and strictures is all too scary in how much it resembles what I experienced. Before I had my bladder by-pass surgery last September, I had been on a total of 21 different catheters, had 6 corrective surgeries (including 2 laser), and 2 emergency dialations, and 1 ER visit. For me, the problem was chronic, not temporary. I was not deemed suitable for self-cathing, as there was too much chance of damaging myself.

I am not your doctor, nor pretend to have any special knowledge, but with your description, I do not below that Flowmax would help you. My uro was very patient with me, and that's why we did a total of 6 ops to try to solve the problem. However, and this is important, each time he did one, he warned me that there is a chance with the corrections, that it could leave me incontinent, and in my case, it could take away my rare lack of ED. There was a risk.

I think I would want to talk it over more with your doc, the Flowmax isn't going to hurt you to try it, but it sounds like you may be more on the chronic path with your problem.

I wish you luck, I know first hand the hell and pain you must have gone through to this point.

If you need any more advice based on my experiences in this area, be more than happy to help you.

David in SC
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06, 2/11 1.24, 4/11 3.81
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/10

compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7203
   Posted 5/4/2011 11:36 AM (GMT -6)   
This hurts terribly just reading your post. I hope you are not following David's path.
 
I'm sure he will respond soon (Purgatory is his screen name).
 
I was on flomax for maybe 10 years due to BPH. This was before my PC dx. The flomax worked GREAT for me. It was a huge difference (I could pee fairly normally). Also, I had NO SE whatsoever. Many people get tiredness and /or a stuffy nose.
 
Good luck. I hope it helps. Oh, for me it helped within 48 hours, sometimes sooner.
 
I took 1 per day, but you can take 2.
 
Mel

compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7203
   Posted 5/4/2011 11:42 AM (GMT -6)   
I see David has responded. Keep in mind that much of his problem was due to radiation damage (have you had radiation)?
 
But I think there might have been some surgical issues also.
 
David -- feel free to elaborate is you think it will be helpful.
 
Mel

yobiks
Regular Member


Date Joined Feb 2011
Total Posts : 39
   Posted 5/4/2011 11:48 AM (GMT -6)   
No radiation thankfully the path report came back clean. I do appreciate the info. Once again I feel like I am on the cusp and must make the best possible decision to get out of this mess.

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 5/4/2011 12:55 PM (GMT -6)   
Mel, I had severe stricture problems immediately after surgery, had the first 3 corrective surgeries and the insertion of the suprapubic catheter before I ever had SRT. Had 3 more corrective surgeries related to strictures after the SRT had ended, prior to my bladder by-pass surgery. For me, it was definitely a chronic issue.
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06, 2/11 1.24, 4/11 3.81
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/10
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