You guys amaze me sometimes. Gleasson6 goes to the Mayo (who would doubt their credibility?) and all I see is folks here trashing the opinion he was given. How do you know that surgery isn't the best choice for him? You aren't the doctor, you don't know all the facts. I find this amazing considering that most of the men here at HW are surgery patients. A lot of what the doctor told him is true a lot of the time. And he is going to get a Radiation opinion next.
This doctor was 100% right on one point, when the RO finishes messing you up (as happened to me in a drastic way), I litteraly got dumped by the RO and Radiation clinic back on my Uro's doorstep. They didn't ( and still haven't) given a rat's hair about all the pain and damage that they directly caused. It was my Uro's compassion and care that kept me going after SRT, and even now. And the radiation made the most money out of all my treatments and operations. My uro has spent part of his long career fixing the damaged patients from radiation, which can be a very difficult task.
The penis shrinkage issue is an urban myth in my opinion. The way it was explained to me, that after prostate removal, the bladder's angle is changed where the bladder neck joins the urethra, and the bladder has one less "mounting point". The weight of the bladder pulls back in a small amount in the flacid state of the penis. So it appears shorter. Since I have never experienced any ED, I will attest, that in the errect state, my penis length is 100% pre-surgery, but in the flacid state, it is a tiny bit shorter. My uro/surgeon drew me a picture after surgery to explain how this worked.
Some of the posts to this thread, shows me that people have their own built-in bias, and they can't see past them to look at the bigger picture. That's not helpful too someone that is trying to make an informed and intelligent and tough primary treatment decision.
The surgery vs. radiation debate will go on forever. This doctor has the priorities right: cancer first, incontinence second, and ED third. The best treatment is the one that has the highest means of eradicating the cancer. Who can disagree with this?
Was real disapointed with the bulk of the answers on this thread.
Gleason6: I feel you are doing your due dilligence, and should continue to do so. When you decide in the end, I am sure that you will make the best choice for your self and your particular circumstances.
People should stop playing "doctor" and let the doctors be the doctors. We are here for support and encouragement, or at least I thougth that was the original game plan.
David in SC
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06, 2/11 1.24, 4/11 3.81
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/10