Guys......you're not nuts, and your not necessarily depressed (although that could be a cause)........I've had this problem since about 3 months post surgery. Same symptoms you all describe above. I have function, and have been able to achieve more than stuffable erection on a couple of rare occasions, but would rather watch paint dry than engage in sex. Tried every form of erotic stimulation in the book, and ---------nada! I'm about 28 months out now, and have just started to scratch the surface of hormonal intricacies. I've been absent posting for a while, as I've been concentrating on "getting right" and then reporting back. The long story short is, my cortisol levels aren't just through the roof, they're in another galaxy. So much so, that if they continue there, adrenal fatigue and failure will occur, and if not treated, eventually can kill you........I've also been taking "T" shots; starting on 4/1 with a very conservative does of 50mg, then increased to 100 mg every two weeks, and this Friday, I'll increase to 200 mg-------"T" and cortisol are like the old Mad magazine's Spy vs Spy feature. Knocking each other around but not achieving much. If cortisol remains too high, "T" is suppressed, which is what's happening to me. I haven't found a good endocrinologist in this area, and my next move is to Johns Hopkins. I believe that getting to the root of the elevated cortisol (or stress hormone) will get my T levels back in line, and my libido will bounce back. But it's a tricky business, this stuff, and maddening.
I suggest that you guys get some hormone testing done if you haven't already. I realize that not eveybody can do that based on treatment stats and results, but it's worth looking into. BTW, we've been monitoring my PSA during supplementation ( I was on bio-identical "T" cream from January through March), and it reamins <0.1
Hope to have more to add to this saga shortly, becasue obviously, it affects quite a few of us.
Arnie in DE
Age 56 (biopsy & surgery)-PSA-3.9-Biopsy 8/19/08--4 of 12 cores positive; 5% involvement, Gleason 6 (3+3) 1/26/09-DaVinci Prostatectomy at Presbyterian Medical Center/HUP-Phila, PA-Dr. David Lee
Path. Report- G7 (3+4)Adenocarcinoma, no capsular involvement, seminal vesicles clear, lymph nodes clear, negative margins
Continent at 3 mos.------ED improving
PSA at 2 yrs-<0.1