Many thanks to all who have responded! Your warm words and wisdom have been a comfort to me. It sounds like the first item of business is to gain all the knowledge we can about this disease. I have been researching online and plan on purchasing the books mentioned by members of this group. I don't think it has quite sank in with my husband yet. It is not that he is denying it, but he definitely needs to get involved with this. He doesn't want to talk about anything until he gets the final results on Tuesday. He has 9 grown children(whom he hasnt told yet) and 10 grandchildren and he has been a step-dad for the past 11 years to my 2 girls (14,17) who live with us. We all love him so much and want to help him through this process.
The reason the uro spoke to me is because my husband works long, crazy hours and is difficult to reach by phone. He had told the uro in person that any information that had to be relayed to him (good, bad or indifferent) could be told to me, his wife. I have been with him on most appointments and of course through the whole urine retention and TURP procedure in 9/2009. So that office and uro are familiar with me.
I was surprised too that no gleason score was given. Does that mean its a better or worse diagnosis?
The CT and bone scans have been scheduled for Thursday, May 12. Is this standard procedure for a pc diagnosis? The uro did say that normally they do the meeting first, then the scans but he wanted the results of the tests before he met with us.
We are in the Raleigh area but very close to Duke(Durham) and UNC(Chapel Hill) which are notably good hospitals in this area.
I really appreciate the warm welcome and great/useful information that you all have provided us with.
I will keep you posted of the final results after Tuesday's meeting. Take care all!