Welcome to the board. I was bumped up to a Gleason 9(5+4) after surgery. Seminal vesicle invasion,positive margins and two positive nodes. Post surgery PSA was .6. A prostascint scan couldn't find anything outside the bed so I opted for SRT nine months later. Didn't drop the PSA and it's continuing to climb nine months later. I'm now at 2.3 but since my doubling time is over 12 months I have chosen not to begin hormone therapy yet. This may or may not be a wise decision but I am currently trying a number of supplements to slow the progression and buy some valuable time as I watch the progress of clinical trials. Collect the best advice that you can and make your choices. Never consider for a moment that your situation is hopeless because it truly is not. Continue soliciting advice and moral support from the brothers on this board because this is a great gang of guys and they are weathered and wise. Best of luck.
11/08/08 annual checkup (3 yrs late) PSA 8.04 from previously 2.7 in 11/05
1/23/09 biopsy 12 cores positive, 10 cores Gleason 7, 2 cores Gleason 8 70% tumor
2/06/09 cat +bone scans clean ..
3/26/09 RRP surgery Post op path .. upgraded to Gleason 9 (5+4), seminal vesicles involved, several positive margins, 2 of 9 lymph nodes positive.
4/4/09 Dr. advising wait for significant rise in PSA and start hormonal treatment.
1st post op at 4 weeks PSA .6 urologist concerned
will retest in one month
8/15/09 bone and pelvic scans redone .. clean PSA .65
onc/radiologist recommending starting radiation treatments and 6 month shot of Lupron .. decided against this gameplan
9/11/09 consulting with med/onc today .. not impressed
My urologist now suggesting prostascint scan
Prostascint test done at U of Penna indicates cancer still confined to prostate bed.
PSA at .7
Gonna need a bigger boat .. found a good rad oncologist
10/21/09 Rad onc suggesting clinical trial of samarium 153 followed by IMRT
2/1/10 Samarium trial completed PSA 1.0
2/1/10 began IMRT 39 treatments 70 Gy
3/25/10 finished IMRT
4/28/10 PSA .93
7/23/10 PSA 1.2