Gibbs Center Appointment Made

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Purgatory
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Date Joined Oct 2008
Total Posts : 25380
   Posted 5/10/2011 10:37 AM (GMT -6)   
I got the news this morning.  My appointed as been set for the Gibbs Cancer Center in Spartanburg, they are the place affiliated with MD Anderson.  My appointment is on May 25th.  I would have prefered to have it after my May 31st PSA reading and my uro's visit on June 5th, but I will take it.  With a fast rising post SRT reading of 3.81, waiting to see the next increase isn't going to change anything. 
 
Asides from a general consulation and evaluation of my case,  I want to make sure out of  their staff of medical oncologists, that I either end up with one that specializes in Prostate Cancer, or at least highly experienced.
 
The other good news, is it would have been about a 50 miles drive for me each way, but I didn't realize that they had a sattelite office in Greenville, so should only be half that distance.
 
David in SC

medved
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Date Joined Nov 2009
Total Posts : 1096
   Posted 5/10/2011 11:24 AM (GMT -6)   
I assume, if you want to, you could get a psa test done a few days before your May 25th visit, so you would have "the latest info" when you go to Gibbs. (Don't know if it matters or not -- but I suppose more info, and more up to date info, can't hurt). Best wishes, Medved

compiler
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Date Joined Nov 2009
Total Posts : 7205
   Posted 5/10/2011 11:58 AM (GMT -6)   
David:
 
Yes, you most certainly need a medical oncologist specializing in PC!
 
Ask them if you should get the PSA sooner.
 
(If you are like me, you probably don't want to get it sooner!)
 
Mel

Purgatory
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Date Joined Oct 2008
Total Posts : 25380
   Posted 5/10/2011 12:27 PM (GMT -6)   
With a PSA increase from 1.24 to 3.81 in just 7 weeks, Im not sure its going to greatly matter for the consulation, and then a week later will have the new reading. I could force an earlier test, but not sure I will do that. I probably won't be seeing the actual doctor that I will be assigned on the first visit.

Suppose to be getting a lot of info in the mail before then.

david in sc
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06, 2/11 1.24, 4/11 3.81
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/10

compiler
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Date Joined Nov 2009
Total Posts : 7205
   Posted 5/10/2011 12:32 PM (GMT -6)   
David:
 
As I said, I am seriously considering flying out to see Dr.  Scholz. We would like to visit our daughter in Los Angeles, so it would really be just including him in our vacation (strange way to phrase that).
 
My SRT ends this week. I figure to do the follow-up PSA in August, but we would most likely schedule our visit in mid or late July, so I may have to make that same decision. I would probably just ask his office. I suspect they would say I should get the PSA before I see him.
 
Mel

Purgatory
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Date Joined Oct 2008
Total Posts : 25380
   Posted 5/10/2011 12:41 PM (GMT -6)   
Mel,

I think your last sentence is most likely. It will take at least 2-3 readings, like with me, before there would be any indication of SRT failure, so some might think its jumping the gun a bit. The concensus of opinion I did get at the local level, that once your PSA peaked out prior to or even once your SRT began, there should be no increase at all in the future. There is no PSA bounce as is common with RT as a primary treatment. Three doctors here all agreed on that principle.

David
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06, 2/11 1.24, 4/11 3.81
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/10

compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7205
   Posted 5/10/2011 4:35 PM (GMT -6)   
David:
 
If my PSA is up after SRT, then why would it take 2 more readings? I can see maybe one more just to confirm.
 
We will be looking at possible flights for mid-July. We may schedule something yet this week.
 
Once mid-August comes, I'd rather be thinking of work and a regular life, than having to miss work to schedule stuff.
 
Mel

tvwohio
Regular Member


Date Joined Sep 2010
Total Posts : 172
   Posted 5/10/2011 5:59 PM (GMT -6)   

David

Glad to hear you have settled down and going the next step.   Congratulations.

Happy to hear about your Greenville connection.

Will be in Simpsonville in August babysitting my Grandboys with Wife so maybe we can talk.

I appreciated your support

Tom of Ohio


Prostrate Cancer 2001 RP 50 years old PSA 6.8 Gleason 3 + 2 40% T3bNxMo moderately differentiated adenocarcinoma RP - cancer apex area, nerve sparing not successful Bulking using both collagen and teflex unsuccessful for continence. 4 sets of strictures within 1 yr after RP - 3 manual and 1 rotorotor -9/2010 stricture - suprapubic catheter folled by Homan Laser. AMS800 1/22/11. Dry 3/9/2011

maldugs
Veteran Member


Date Joined Jun 2007
Total Posts : 784
   Posted 5/10/2011 6:40 PM (GMT -6)   
Mel, they usually want to take 2-3 PSA readings after SRT to see if there is a trend up or down, I hope yours is downward.

David, following your progress, good luck.


Regards Mal.
age 67 PSA 5.8 DRE slightly firm Rt
Biopsy 2nd July 07 5 out of 12 positive
Gleason 3+4=7 right side tumour adenocarcinoma stage T2a
RP on 30th July,

Post op Pathology, tumour stage T3a 4+3=7, microcsopic evidence of capsular penetration, seminal vessels, bladder neck,are free of tumour, lymph nodes clear, no evidence of metastatic malignancy, tumour does not extend to the apical margins.

Post op PSA 0.5 26th Sept. Totally dry since catheter removed
PSA 23rd Oct.0.5 seeing Radiation Onocologist 31st Oct.
Started radiation treatment on 5th Dec, to continue until 24 Jan. 08.
Finished treatment, next PSA on 30th April.
PSA from 30th April 08, until now range- 0.5 to 0.6, I am now 70

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 5/10/2011 6:53 PM (GMT -6)   
With the ultrasensitive testing, they want to make sure its not just a fluke or a glip. Still don't understand why you would want to invest in the time and money to see a Medical Onclogist so far in advance. He will still be there if you need him, and even a slight rise doesn't mean you have to trigger an immediate response. Guess that's just your style, and that's ok. I tend not to want to look for a problem that may never exist.

David

Tom: thanks perhaps we can hook up when you do come to SC, I only live about 20 miles from Simpsonville.
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06, 2/11 1.24, 4/11 3.81
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/10

compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7205
   Posted 5/10/2011 11:03 PM (GMT -6)   
David:
 
I'm very busy starting in August. So, if I see him in July and get established, future consults may be via telephone.
 
Also, less pressure/urgency in July
 
Mel

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 5/11/2011 2:26 PM (GMT -6)   
Update, May 11th

Got a huge pack in the mail today from the Gibbs Cancer Center. There must be at least 20 pages of info I must fill out before going on my appointment. They said to allow for 3 hours for the initial consultation. On a seperate thread, I want to list the available oncologists to see if anyone, particular the other SC guys, have had any experience with or knowing anythng about them. I don't know a single one of them.
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06, 2/11 1.24, 4/11 3.81
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/10

compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7205
   Posted 5/11/2011 4:58 PM (GMT -6)   
David:
 
You have a list of oncologists, but did it list any specialties (like...say... prostate cancer)?
 
Mel

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 5/11/2011 6:23 PM (GMT -6)   
No, doesn't list by specialties, they are all medical oncologists and internal med doctors on the list.
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06, 2/11 1.24, 4/11 3.81
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/10
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