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melange123
New Member


Date Joined Jan 2010
Total Posts : 13
   Posted 5/11/2011 2:33 PM (GMT -6)   

Hi All,

 

It seems when I get in a troubled place I can write in this forum! Since I am the wife of someone with Pca I don’t feel like I have much to offer here and feel selfish always asking for advice or answers to questions, but I feel you guys have more information than the doctors at times. I just hate this disease and wish it had never arrived in our life but it did!!

We saw the Radiation Oncologist yesterday and he still just wants to watch the PSA before he calls it “failed”. There have been 2 consecutive rises in the PSA post SRT it went from 0.04 to 0.09 and then to 0.11, I thought that was considered failure? I sometimes feel that some of the doctors get there egos involved in the treatment and not sure but maybe take it personally that it was failed treatment before letting the patient move on to the next modality.  I know this is for the most part a slow growing cancer and there is time for choices but I know radiation isn’t going to be the next choice. Then we get into what Medical Oncologist should he see? Should he stay at City of Hope? Should he go see Dr. Scholz in Marina Del Rey? Should we fly somewhere? Should he start HT? Should he wait for HT? I guess the scary part now is there is no cure it’s just palliative care and quality versus quantity of life.

I really want to thank all of you!! This forum really helps me get through some tuff days.

 

Melissa


May 08 Dx age 57 my husband
PSA 4.7
June 08 DaVinci Robotic Surgery @ COH
Biopsiy: Gleason 8 4+4 1 positive margin T3b
PSA
10/08 .01
12/08 .01
03/09 .02
03/09 .03
July 09 Clinical trial after rising PSA
11/08 .05
1/10 .06
02/10 .07
April 10 SRT
PSA
6/10 0.10
01/11 0.04
04/13 0.09
All of this is the best of my memory

142
Forum Moderator


Date Joined Jan 2010
Total Posts : 7084
   Posted 5/11/2011 2:43 PM (GMT -6)   
Melissa,
 
I am going through the same situation. (DaVinci, IGRT; <0.01 06/10, 0.02 10/10, 0.096 04/11
 
I have been advised, outside of my uro's practice. to find a good medical oncologist (am in process with that).
 
My Uro considers failure to mean three consecutive increases (over .1), so for him I am not there yet.
 
Others will say that you have to get to 0.2.
 
I expect my next offered option will be HT. Not a pleasant thought.
 
Can't help with names on the west coast, but you are not alone in this stage.
 
 
DaVinci 10/2009
My adjuvant IGRT journey (2010) -
www.healingwell.com/community/default.aspx?f=35&m=1756808

compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7270
   Posted 5/11/2011 6:40 PM (GMT -6)   
FIRST, find the medical oncologist. Then that person can advise on the next tx.
 
I'm not sure SRT has failed. It's still a grey area.
 
I will probably see Dr. Scholz. I will have to fly out from Michigan.
 
I am completing SRT, so I am a few months behind you.
 
Mel

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 5/11/2011 7:19 PM (GMT -6)   
I also am in the same boat.

My surgery failed within 9 months, and now my SRT has failed in about the same time period. After my 2nd consecutive rise, it was declared a failure, and now I have a 3 and huge spike, and about to get a 4th reading, which will probably even be higher.

i am off to a new cancer clinic and a new medical oncologist for advisement.

with SRT, the general rule is that there shouldn't be any increases at all.

david in sc
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06, 2/11 1.24, 4/11 3.81
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/10

waterloo
Regular Member


Date Joined Jan 2009
Total Posts : 100
   Posted 5/11/2011 10:32 PM (GMT -6)   
HI
As a wife of a guy with PC I totaly understand how you are feeling.We are also in the waiting game his next pas test is in June.All I can say is hang in there,and as you know there are a lot of the guys and gal's to help you along with support and advise here.Be Strong but do'nt forget to take care of your self
.Deidre
My Husband DX at age of 54 in 2006 09/2006-RP Original Gleason 3+4=7Post OP 4+3=7
PSA PO RP .004 Everything going good till May 2008
05/08 PSA 0.05
07/08 -0.09
10/08 -0.16
01/09 -0.24
RT March 2009 33 in total
07/09 PSA 0.4 Testosterone -15
09/09 -0.55 T -13
10/09 bone scan Clear
12/09 PSA 0.52 T-13
03/2010 “ 0.7 T-11.8
06/10 “ 0.61 T - 9
09/10 “ 0.8 T -11.4
01/2011 PSA 1.07 T -12.7
03/2011 PSA 1.50 T-9.5

flippin out
Regular Member


Date Joined Mar 2006
Total Posts : 137
   Posted 5/12/2011 12:07 PM (GMT -6)   
Wives have it the Toughest!
I'm at a point I don't want her to know any results but she seems to know before I do.
its a real Peculiar type of disease I've had acquaintances unfortunately that were diagnosed and gone within a year with other "C"s as Dr. Scholz has reminded me of late! we have a cancer that even if persistent can be lived with for many years with many different types of therapy. So you hang in there a cure is around the corner and I for one will be standing there waiting! ? wait with me why doncha ( :
54Yr Cancer Detected 2005
PSA 8.0+ Gleason 7
55Yr DaVinci City Of Hope California
57Yr Cancer rise in successive PSA's
57Yr Proton Radiation Loma Linda Medical Center California
59Yr 2010 ^ Rising PSA 2011 Feb .18 May .26 and rising headed to the next step
Dr. Mark Scholz Marina Del Rey
Diabetic

compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7270
   Posted 5/12/2011 1:55 PM (GMT -6)   
MJR:
 
Can you email me?
 
I am going to see Dr. Scholz in July and I might have questions for you.
 
Mel

melange123
New Member


Date Joined Jan 2010
Total Posts : 13
   Posted 5/12/2011 4:17 PM (GMT -6)   
Thanks for all the encouraging words and thoughts!! We go tomorrow to see the Medical Oncoligist It is so hard to be on this side of Pca! I have to leave the choices of treatment to him and support what ever that is...  I for one am all about spreading the word of more awareness of "Prostate Cancer" I am amazed at how little people know about Pca or men checking their PSA. I am a flight attendant and wear my blue ribbon on my uniform and always get asked what it stands for!!
God bless you all on this journey!!
Melissa
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