Made arrangements to see Dr. Scholz

New Topic Post Reply Printable Version
33 posts in this thread.
Viewing Page :
 1  2 
[ << Previous Thread | Next Thread >> ]

compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7203
   Posted 5/12/2011 8:11 PM (GMT -6)   
I'm sure this will be fodder to those who think I worry too much. But if you've read my posts you know that I prefer to stay one tx. ahead. When I have a specific plan in place, I do NOT worry.
 
My SRT will be completed tomorrow. Next PSA is unclear. I think 3 months, but the RO said 8 weeks one time and 3 months another time so I need clarification.
 
Regardless, August is a very busy month. We have our anniversary (36 years!) and my wife's 60th birthday. The kids will be joining us (my daughter will be flying in from LA). Before her birthday, we have booked a vacation (condo for a week in Northern Michigan). After her birthday it is back to work.
 
So, we will be taking a 10-day vacation in July. We will be visiting our daughter in LA and visiting other relatives in California. Since I do want to touch base with a top-notch medical oncologist specializing in PC, I will be consulting with Dr. Scholz. My appointment will be a lengthy one on Monday, July 11th. My goal will be to get questions answered and have a plan in place. They have assured me (I've also spoken to one here on HW who sees him) that he does so telephone consultations to. He will also work with my local urologist, as needed.
 
We have our plane tickets and are looking forward to seeing our daughter.
 
Now that  a plan is set, I am set/relaxed.
 
Feel free to criticize, but my wife and I both think this is a good move.
 
Mel
 
 

compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7203
   Posted 5/12/2011 8:17 PM (GMT -6)   
Strange typos. I meant to say that Dr. Scholz does telephone consultations also, and I anticipate some of those down the road, if necessary.
 
Mel

F8
Veteran Member


Date Joined Feb 2010
Total Posts : 3800
   Posted 5/12/2011 8:18 PM (GMT -6)   
Mel -- how much will the consultation cost?
 
ed
 
 
age: 56
PSA on 12/09: 6.8
gleason 3+4 = 7
HT, BT and IGRT
received 3rd and last lupron shot 9/14/10
2/8/11 PSA <.1, T= 6 ng/dl

compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7203
   Posted 5/12/2011 8:29 PM (GMT -6)   
The consultation is $600.
 
Labs could be $300-$400.
 
Color Doppler is $995.
 
Now, in my case, sans prostate, I don't think they do a color doppler. Also, the lab is an estimate and it could be less.
 
This is before insurance.
 
I have good insurance but they are out of network. His office checked and it sounds like my out of pocket cost will be:
 
office visit: a little under $300.
 
Labs: about 30% of the above-quoted figure.
 
So, I figure $400. I think that will be well worth it. Incidentally, if you have Medicare I believe he accepts Medicare as payment in full for the office visit, but I'm not sure.
 
 
 
Mel

Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 5/12/2011 8:37 PM (GMT -6)   
Mel,
Marina del Rey is pretty. While you're there look up Point Furman and Point Huineme. And visit Santa Barbara. If you have time, stay on the US Highway 1 pathway headed north...

That is my CAM prescription...

;-)

Tony

compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7203
   Posted 5/12/2011 8:43 PM (GMT -6)   
We have been to Vegas about 25 times and to Ca. about 25 times.
 
My folks lived in Palm Desert and my stepmother still lives there. We hope to get together with her, too.
 
HWY 1 is beautiful!!
 
My daughter lives in Santa Monica; I don't think that's too far from Marina del Rey.
 
Mel

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 5/12/2011 9:10 PM (GMT -6)   
Hope you will share what you hear from this doctor. I will be sharinng what I learn from my new one in a couple of weeks.
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06, 2/11 1.24, 4/11 3.81
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/10

F8
Veteran Member


Date Joined Feb 2010
Total Posts : 3800
   Posted 5/12/2011 9:11 PM (GMT -6)   
good deal, Mel.  that would be the guy i would try to see but i don't even want to think about that.
 
ed
 
 
age: 56
PSA on 12/09: 6.8
gleason 3+4 = 7
HT, BT and IGRT
received 3rd and last lupron shot 9/14/10
2/8/11 PSA <.1, T= 6 ng/dl

142
Forum Moderator


Date Joined Jan 2010
Total Posts : 6945
   Posted 5/12/2011 9:39 PM (GMT -6)   
I could afford the labs or the visit or the airfare out there (check for comfortable bridges to sleep under), but to do two or actually come back makes it expensive (yes I checked, he is out of network, and there are oncologists in my area, so it is not covered, even out of network).
Dang - expensive to be sick.
DaVinci 10/2009
My adjuvant IGRT journey (2010) -
www.healingwell.com/community/default.aspx?f=35&m=1756808

compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7203
   Posted 5/12/2011 10:27 PM (GMT -6)   
I42:
 
So you would have to foot the entire medical bill?
 
That would be tough. As I said, apparently he does phone consultations. But initially I would prefer to see him. Heck, I might be displeased and have no more to do with him (I doubt that, but it could happen!).
 
I will report the experience to HW, of course! Meanwhile, after tomorrow, I hope to give PC a rest. It's tough to do going for tx. every day!
 
Mel

Herophilus
Veteran Member


Date Joined Sep 2009
Total Posts : 662
   Posted 5/13/2011 5:44 AM (GMT -6)   

Mel

I agree 100% with your philosophy…I have an algorithm developed and discussed with my wife type person and my PCP. I hope I don’t need it but none the less it is done. My wife and I are fans of upper Michigan, particularly the UP. I believe she has been up enough to be considered an honorary “Up-Gander” (such is the advantage of being a retired school teacher). Looks like you have a very busy schedule, have fun

Hero

 

 


142
Forum Moderator


Date Joined Jan 2010
Total Posts : 6945
   Posted 5/13/2011 8:23 AM (GMT -6)   
Mel,
 
Before they will pay a nickel of out-of-network, I have to pay a near $10K deductible just for out-of-network, so yes, at best I would have to pay it all, perhaps at a negotiated rate if the doc accepted the insurance company's "reasonable & customary" rates.
 
At worst, they can refuse it altogether if there is what they consider an acceptible in-network provider in my area.
 
And they pay nothing if a treatment is "experimental" or not FDA approved.

compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7203
   Posted 5/13/2011 8:32 AM (GMT -6)   
I42:
 
Ouch. That's lousy. But is their in-network decent. ie: can you go to Mayo Clinic and the like?
 
Still, I understand that Dr. Scholz is willing to work with your local medicos. I have a routine appointment with my urologist on Wednesday. I sure HOPE she is willing to work with Dr. Scholz. In this way, Dr. Scholz could request certain tests, but she could order it. In that way, I can do in-network stuff.
 
If she doesn't and Dr. Scholz orders a test, I'm not sure if my local lab would do it (ie: from an out-of-state doctor). If they do, since our local labs are in-network, I THINK our insurance would consider it in-network. These are questions that I will get answered, maybe later today.
 
Mel

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 5/13/2011 10:17 AM (GMT -6)   
Mel,

I still don't get why you are wanting to see Scholz at this point. What is it you are expecting him to say? You are not in any form of advanced PC, and its way too early to know if your SRT, which is only ending today, is going to work or fail. You may have zeros for years to come. I would almost think that a specialist like that wouldn't want to take a patient on that is not directly in need of his expertise. It's your dime of course, and your money is as good as the next man's.

David in SC
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06, 2/11 1.24, 4/11 3.81
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/10

John T
Veteran Member


Date Joined Nov 2008
Total Posts : 4223
   Posted 5/13/2011 10:24 AM (GMT -6)   
Mel,
It doesn't matter if a doctor is out of state. A lab order is good from any doctor. I've had lab orders and perscriptions from out of state doctors filled locally with no issues.
JT
66 years old, rising psa for 10 years from 4 to 40; 12 biopsies and MRIS all negative. Oct 2009 DXed with G6 <5%. Color Doppler biopsy found 2.5 cm G4+3. Combidex clear. Seeds and IMRT, 4 weeks of urinary frequency and urgency; no side affects since then. 2 years of psa's all at 0.1.

medved
Veteran Member


Date Joined Nov 2009
Total Posts : 1096
   Posted 5/13/2011 11:11 AM (GMT -6)   
I don't agree with David. I think if you can afford it, consulting with a very qualified oncologist is a great idea. Someone could argue that it is a little bit premature, but you might get some good insights and information -- he might even order some "baseline" tests -- and if you ever need his services, you will have developed a relationship. And, combined with a vacation, sounds like a no-brainer to me.

compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7203
   Posted 5/13/2011 12:06 PM (GMT -6)   
David:
 
Yes, it is slightly early, but for me the timing couldn't be better as we want to visit our daughter and other friends/relatives. She lives in Santa Monica, which is 5 minutes from Dr. Scholz. This will give me an opportunity to visit a top-notch doctor and establish a doctor/patient relationship. As I said, future consultations might be via telephone, although I suspect there might be another in-person consultation (maybe when it's time to visit my daughter again). I really want to establish a specific plan. If XXX happens, then I do YYY (which might include a convenient telephone consultation just to confirm such plans).
 
If my SRT by some miracle really works well, then it is true I will not have to do anything (but, who knows, Dr. Scholz might STILL suggest HT -- that seems to be the way the latest research is going. No pun intended, but that would be a tough pill to swallow!).
 
Frankly, David, your PC situation at the moment is one small step ahead of mine. I really do hope the doctor you see is not just a medical oncologist but one who absolutely specializes in PC. You criticize me for making these plans, but frankly I can't understand why you don't at least CALL the Gibbs Clinic and ASK them if they have such specialists. I know you deny putting your head in the sand, but it seems your tack has been the opposite of mine. 
 
But, we are all different. By now, you know me well enough to understand that I prefer having a plan. With this medical stuff, I hate surprises. I have consistently tried to stay one step (not many; just one) ahead. That just seems to be more in my nature.
 
Mel

ralfinaz
Veteran Member


Date Joined Jan 2011
Total Posts : 735
   Posted 5/13/2011 12:11 PM (GMT -6)   
compiler said...


Still, I understand that Dr. Scholz is willing to work with your local medicos. I have a routine appointment with my urologist on Wednesday. I sure HOPE she is willing to work with Dr. Scholz. In this way, Dr. Scholz could request certain tests, but she could order it. In that way, I can do in-network stuff.

Mel


Mel,
I know that he works with several medical oncologists here in Phoenix Metro. I know several patients that benefit from that setup. Tell Dr. S that Ralph sends regards from sunny Arizona. Wish you the best results from your visit to Marina Del Rey!

RalphV
Phoenix, Arizona
Surviving prostate cancer since 1992. RP; Orchiectomy;
GS (4 + 2); bilateral seminal vesicle invasion; tumor attached to rectal wall. Last PSA September, 2010: <0.1 ng/ml
Laughter is the best medicine!
www.pcainaz.org/phpBB304

compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7203
   Posted 5/13/2011 12:24 PM (GMT -6)   
OK Ralph! But maybe you could remind me before I leave. Our flight leaves on July 7th and we will return on the 18th.
 
Mel

Skate
Regular Member


Date Joined Oct 2010
Total Posts : 424
   Posted 5/13/2011 12:30 PM (GMT -6)   

Mel:

If I only what I know now  was what  I knew three years ago, I might have done things differently.  Still no regrets, just a lack of really understanding my cancer until now. I think you are doing exactly what we all should do and that's have a plan and one that we understand.  The more you know, learn and understand about your particular cancer pathway, the better you are able to make decisions in the future.  This is just one more addition to your learning curve.  I am thrilled that you are taking the initiative, just in case. Good on you!

Jack


Herophilus
Veteran Member


Date Joined Sep 2009
Total Posts : 662
   Posted 5/13/2011 1:10 PM (GMT -6)   

It is never to early. The more info that you can get, the better off you are. I always recommend at a minimum for the newly diagnosed; a consult with a major cancer treatment center before making a decision on treatment. Breast, prostate, lung; you name it, for any type of cancer I tell people that the treatment decision should not made at a good hospital or a great hospital, "you need to go to a recognized national cancer treatment center". (IMO) This avoids multiple problems. Even if it requires travel...(major recognized cancer treatment center is a must) After original therapy, as has been said...if you can get an appointment, and you can afford a consult with this quality of an individual that Mel is scheduled to see, it is real advantageous and smart. Now to be honest Mel may come away thinking that it was a huge waste of money and time, or that it was the best thing he ever did, or somewhere in-between. What he wont come away with is any harm. No harm can come from information.

Hero


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 5/13/2011 1:31 PM (GMT -6)   
OS- not going to take the bait with you this time around. I have seen good doctors, I have had a lot of problems that have nothing to do with doctors, and I am making the best of it. You think whatever you want to think.

Mel - not critisising you as much as you think. You say you are one small step behind me. I don't even get that remark. I have a sky rocketing post-SRT PSA going on with a very failed SRT experience, one that came with ******g my body up for life, that's hardly one small step in front of you. It's an entire different world now.

What difference does it matter if I know now, or on the 25th when I go to Gibbs, I already have my appointment, actually a full month ahead of my original schedule. They have 10 medical oncologists there on staff, and the first visit is long, because they have to evaluate my situation, and fit me with the most suited of their staff to my circumstances. You just need to chill sometime, it would drive me nuts to be so OCD about every little factor going on like this. I am seeking higher level help, what else should I do?

Sometimes I think one should be careful for what they ask for. After I take this step, am I expected to start scouting out fureral directors and cemataries, in case that's needed too in my future? Perhaps that would be considered the norm here too.

David in SC
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06, 2/11 1.24, 4/11 3.81
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/10

142
Forum Moderator


Date Joined Jan 2010
Total Posts : 6945
   Posted 5/13/2011 1:59 PM (GMT -6)   
Ah, if any of us got a do-over ....
 
The more I plan, the better I can assign blame once it goes down in flames. That's all plans do for me, since as soon as I establish one, everything works around it. Really good plans, for me, seem to indicate the exact things that will not happen shakehead
 
But I do tend to think that Mel sets a new standard for planning ahead. Except that I do already own my gravesite, if anyone cares to bury me there. No, not PCa planning, its a long story.
 
 
 

Tudpock18
Forum Moderator


Date Joined Sep 2008
Total Posts : 4149
   Posted 5/13/2011 1:59 PM (GMT -6)   
Mel, I applaud your proactive thinking and believe you have a good plan.  If there is one thing I have learned from HW it is to see an expert...and the earlier the better.  Even though I'm doing great, I think if I had a do-over it would include seeing Dr. Scholz or equivalent expert prostate oncologist right from the start.  I was lucky enough to see a good urologist and good RO early on but going for the trifecta of experts is really the smart play.
 
Anyway...good for you!
 
Tudpock (Jim)
Age 62 (64 now), G 3 + 4 = 7, T1C, PSA 4.2, 2/16 cancerous, 27cc. Brachytherapy 12/9/08. 73 Iodine-125 seeds. Procedure went great, catheter out before I went home, only minor discomfort. Everything continues to function normally as of 12/8/10. PSA: 6 mo 1.4, 1 yr. 1.0, 2 yr. .8. My docs are "delighted"! My journey:
http://www.healingwell.com/community/default.aspx?f=35&m=1305643&g=1305643#m1305643

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 5/13/2011 2:16 PM (GMT -6)   
Another puzzling and inaccuarate reply. The only thing I have ever hinted at doing different, was that I wished I had a higher level second opinion of my post surgery pathology.

My only beef is with the RO that left me in such terrible pain and destroying my bladder because of her bad judgement. And that's why I am in the midst of an agressive malpractice law suit. I met with 3 of that clinics ROs, I felt like she was the best pick. Once I made that choice, according to the law, I had a doctor-patient relationship, and it was the doctor's responibility to provide the correct standard of care at all points of my SRT. That's how it works. I had checked out her reputation with several of her patients, she came highly reccomended, her academic background and training was the best of the 3, and her accumulated experience. As far as the rest of it, "it" happens. And it just happened to happen to me.

My uro/surgeon has been excellent in every way. Blaming him for my one tiny positive margin is absurd. That would be like saying Sonny and Mel made a mistake choosing Dr. Mennon at the Ford center because both their surgeries failed. Common sense would tell anyone that would be absurd too.

I don't play the blame game at every turn, solutions are better than blame.

David in SC
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06, 2/11 1.24, 4/11 3.81
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/10
New Topic Post Reply Printable Version
33 posts in this thread.
Viewing Page :
 1  2 
Forum Information
Currently it is Monday, June 18, 2018 7:56 AM (GMT -6)
There are a total of 2,972,742 posts in 326,009 threads.
View Active Threads


Who's Online
This forum has 160851 registered members. Please welcome our newest member, Linda T.
392 Guest(s), 9 Registered Member(s) are currently online.  Details
81GyGuy, Kent M., countess18, Bebopgeo, Girlie, Garion, Noah2112, phillyroll05, CAdogsRus