3 Year Zero & In the News

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

kcragman
Regular Member


Date Joined May 2008
Total Posts : 240
   Posted 5/19/2011 9:08 PM (GMT -6)   
Hi guys:

I got my 3 year zero last week. And - Dr. Jason Engel finally got his study published which included me. He tracked 73 high risk patients who used only robot-assisted laparoscopic radical prostatectomies (RALP) and nothing else. I qualified as a high risk guy and the age range started at 52 (I was 52 so I don't know if that was me, but there was nobody younger). High risk was PSA >than 10, and/or Gleason >8 on the final pathologic evaluation, and/or stage >pT3. All of these measurements are "greater than or equal to."

Some of the bottom lines are: With follow up to 85 months (average 31 months) there is a recurrence-free survival rate of 77%. The average recurrence was at 7 months - so if it recurs, it is usually pretty quickly. Once again, this is RALP only.

The study is in the Journal of Endourology, Volume 24, Number 12, December 2010. Title: Oncologic Outcome of Robot-Assisted Laparoscopic Prostatectomy in the High-Risk Setting.

Engel is associated with the George Washington University Hospital in Washington, DC.

So, I applaud the guy for sticking his stats out there. He is seriously into getting real data out, and he did a bang-up job for me. I saw him for possibly the last time last week. He told me to have my PSA checked annually, and call him if there is a problem. No more trips to DC for me!

Surgery is not the answer for everybody, and I am not suggesting it is.

I wish everybody out there the very best,
kcragman

Herophilus
Veteran Member


Date Joined Sep 2009
Total Posts : 664
   Posted 5/19/2011 9:13 PM (GMT -6)   
Great News !
Thanks for the additional info.
Congrats
Hero

tatt2man
Veteran Member


Date Joined Jan 2010
Total Posts : 2845
   Posted 5/19/2011 9:21 PM (GMT -6)   
KCRAGMAN:
congrats on the zero - here's to a lifetime of them
smithmeek.com/tatt2man
- glad to see your doc's work published - publish or perish - good for him - good for you - and good for us - there is hope -
hugs,
BRONSON

davidg
Veteran Member


Date Joined Feb 2011
Total Posts : 4093
   Posted 5/19/2011 10:21 PM (GMT -6)   
good stuff...
40 years old - Diagnosed at 40
Robotic Surgery Mount Sinai with Dr. Samadi Jan, 2011
complete urinary control and good erections with and without meds
Prostate was small, 34 grams.
Final Gleason score 7 (3+4)
Less than 5% of slides involved tumor
Tumor measured 5 mm in greatest dimension and was located in the right lobe near the apex.
Tumor was confined to prostate.
The apical, basal, pseudocapsular and soft tissue resection margins were free of tumor.
Seminal vesicles were free of tumor.
Right pelvic node - benign fibroadiopse tissue. no lymph node is identified.
Left pelvic node - one small lymph node, negative for tumor (0/1)

AJCC stage: pT2 NO MX

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 5/19/2011 11:06 PM (GMT -6)   
congratulation on both counts, keep those zeros a coming.
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06, 2/11 1.24, 4/11 3.81
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/10

kcragman
Regular Member


Date Joined May 2008
Total Posts : 240
   Posted 5/20/2011 6:21 AM (GMT -6)   
Posting again with the hopes that my stats will show.
Thanks for good words, guys.

kcragman
Age: 55; 52 at DX
March 2006: PSA 2.5
Dec 2007: PSA taken for insurance application. I did not see the results until late
Jan '08 - after I was rejected. Their lab said PSA 4.5.
Feb 2008: PSA 3.7.
March 2008: Biopsy. Gleason 7 (4+3) 12 cores taken. 5 on the left side were
cancerous and the 6th was suspect.
May 5, 2008: Da Vinci robotic laparoscopy at GW Hospital, Washington DC. Doctor: J.Engel

kcragman
Regular Member


Date Joined May 2008
Total Posts : 240
   Posted 5/20/2011 6:27 AM (GMT -6)   
Posting yet again. No used to having my stats truncated.

kcragman
Age: 55; 52 at DX
March 2006: PSA 2.5
Dec 2007: PSA taken for insurance application. I did not see the results until late
Jan '08 - after I was rejected. Their lab said PSA 4.5.
Feb 2008: PSA 3.7.
March 2008: Biopsy. Gleason 7 (4+3) 12 cores taken. 5 on the left side were
cancerous and the 6th was suspect.
May 5, 2008: Da Vinci robotic laparoscopy at GW Hospital, Washington DC. Doctor: J.Engel

kcragman
Regular Member


Date Joined May 2008
Total Posts : 240
   Posted 5/20/2011 6:28 AM (GMT -6)   
Well, screw it. Post op I was a Gleason 9, stage pT3a.

kcragman
Age: 55; 52 at DX
March 2006: PSA 2.5
Dec 2007: PSA taken for insurance application. I did not see the results until late
Jan '08 - after I was rejected. Their lab said PSA 4.5.
Feb 2008: PSA 3.7.
March 2008: Biopsy. Gleason 7 (4+3) 12 cores taken. 5 on the left side were
cancerous and the 6th was suspect.
May 5, 2008: Da Vinci robotic laparoscopy at GW Hospital, Washington DC. Doctor: J.Engel

reachout
Veteran Member


Date Joined May 2009
Total Posts : 739
   Posted 5/20/2011 6:39 AM (GMT -6)   
Congratulations! I almost chose Dr Engel but decided to stay on my side of the river and save some driving time. In that study do you know what was his definition of recurrence?
Age: 66
PSA: 7 tests over 2 years bounced around from 2.6 to 5.6
Biopsy 8 of 12 positive, Gleason 3+4, T2a
DaVinci August 2009, pathology Gleason 4+3, neg margins, T2c
Continent right away, ED
Viagra, Cialis did't work, Trimix works well
Post-surgery PSA:
3, month: undetectable <.1; 6 month: undetectable <.014 (ultrasensitive); 9, 12, 15 month: undetectable <.1; 18 and 19 month detectable .05.

rob2
Veteran Member


Date Joined Apr 2008
Total Posts : 1132
   Posted 5/20/2011 12:47 PM (GMT -6)   
Great news. I was going to send you an email to see how you were doing. I am doing the same. It is amazing it has been 3 years since the prostate removal. Hope all is well with you on all fronts.
 
Age 48 at diagnosis
occupation accountant
PSA increased from 2.6 to 3.5 in one year
biopsy march 2008 - cancer present gleason 7
Robotic Surgery May 9, 2008 - houston, tx
Pathology report -gleason 8, clear margins
22 month  PSA <.04
continent at 10 weeks (no pads!)
ED is still an issue

Ed C. (Old67)
Veteran Member


Date Joined Jan 2009
Total Posts : 2461
   Posted 5/20/2011 1:42 PM (GMT -6)   
kcragman,
That is great news for you and the rest of us who fall into the same group.
Age: 67 at Dx on 12/30/08 PSA 3.8
2 cores out of 12 were positive Gleason (4+4)
Davinci surgery 2/9/09 Gleason 4+4 EPE,
Margins clear, nerve bundles removed
Prostate weighed 57 grams 10-20% involved
all PSA tests since (2, 5, 8, 11, 15, 18, 21, 2 years <.008? ) undetectable
27 months: .005

kcragman
Regular Member


Date Joined May 2008
Total Posts : 240
   Posted 5/21/2011 8:10 PM (GMT -6)   
Back again.

reachout: Yeah, I live in Fairfax. My wife is a has a PhD in anatomy, and is a pretty sharp researcher, and when we first met with Engel, his almost exact words were: You won't come across the river, so go ahead and ask me anything. I'll tell you anything you want to know. So several discussions later, we decided to cross the river. In his study, recurrence is "postoperative PSA level > or equal to 0.2."

rob2: Early on I told my wife that all of this would be a bad memory, and so fortunately it has turned out to be. I am well (coaching my 35th girls soccer team in 31 seasons over 19 years), and I hope you are the same.

Ed C. Continued success to you - and everybody else.

kcragman
Age: 55; 52 at DX
March 2006: PSA 2.5
Dec 2007: PSA taken for insurance app. I did not see results until late
Jan '08 - after rejection. Their lab said PSA 4.5.
Feb 2008: PSA 3.7.
March 2008: Biopsy. Gleason 7 (4+3) 12 cores taken. 5/left side were
cancerous, 6th was suspect.
May 5, 2008: Da Vinci robotic laparoscopy at GW Hospital, Wash DC. Doctor: Jason Engel.
Post Op: Gleason 9, stage pT3a.

az4peaks
Regular Member


Date Joined Feb 2011
Total Posts : 112
   Posted 5/22/2011 4:12 AM (GMT -6)   
Hi kcragman, - Congratulations! Was the post-op Gleason 9, a (4+5) or (5+4)? I assume your "undetectable" post-op PSA 's have consistantly been LESS THAN 0.1 (<0.1 ng/ml)? What was the clinical (pre-surgical) STAGE assigned to your disease? Thanks and I wish you continued success. - John@newPCa.org (aka) az4peaks

kcragman
Regular Member


Date Joined May 2008
Total Posts : 240
   Posted 5/22/2011 9:15 PM (GMT -6)   
az4peaks:

Ouch, you are rattling the old brain cells there. I had to go back and dig thru my medical pile, I mean file. Post op I was a Gleason 9 4 + 5, with 15% of the prostate involved.

Undetectable: I believe the standard measurement methods don't go below 0.1, so if you have a 0.1 they assume you are a zero. All my doctor says is that I am undetectable so I assume it is a 0.1.

My pre-surgical stage was a T2 - and both my wife and I forget the following alpha. She does not believe I was an "a," but I cannot find in my papers exactly what I was. I actually had the biopsy done in Fairfax, VA by a urologist that I liked a lot, but he only did open surgery, and I wanted to go robotic - so I went to DC to find the best guy I could.

I hope this answers your questions. If you have any others, please let me know. (PS: I have to be considered fully functional - especially with viagra - on the ED side. I developed a case of pyronie's like A MONTH before I started this PCa drill, so the combo has left me a little, um, short of expectations, but like I said, I have to be considered fully functional. I still wear one light pad a day because I have a few drips every day and I just cannot stop it, but I consider that a very small price to pay to remain above ground.)

I wish you the best,
kcragman
Age: 55; 52 at DX
March 2006: PSA 2.5
Dec 2007: PSA taken for insurance app. I did not see results until late
Jan '08 - after rejection. Their lab said PSA 4.5.
Feb 2008: PSA 3.7.
March 2008: Biopsy. Gleason 7 (4+3) 12 cores taken. 5/left side were
cancerous, 6th was suspect.
May 5, 2008: Da Vinci robotic laparoscopy at GW Hospital, Wash DC. Doctor: Jason Engel.
Post Op: Gleason 9, stage pT3a.

Tim G
Veteran Member


Date Joined Jul 2006
Total Posts : 2361
   Posted 5/23/2011 12:43 PM (GMT -6)   
Congratulations and all the best to you for a lifetime free of prostate cancer recurrence....Tim
Age 62 PSA quadrupled in one year (0.6 to 2.6)
DRE negative Retested at 3 months
1 of 12 biopsies positive (< 5%) G6
RP open surgery June 2006 at age 57
Bilateral nerve-sparing
Organ-confined to small area, downgraded to G5
Prostate weight 34 grams
PSAs < 0.1

stevmac1
Regular Member


Date Joined May 2010
Total Posts : 129
   Posted 5/23/2011 4:58 PM (GMT -6)   
Thanks for the post and congrats!!!
I'm a few weeks shy of one year.
Does the anxiety ever lessen?
:-)  
steve
50 Yrs. old at DX (51now) Feb, 2010 w/6.6 PSA.
Biopsy 04-24-10, Gleason 3+3
4 of 5 cores left side inv. 4 of 6 rt side
RRP 06-07-10
16 days post-op, catheter out.
Gleason upgraded to 3+4
Totally continent @ 8 weeks post-op. (!!!)
1st post-op PSA @ 12 weeks - <0.05
2nd " " " @ 6 months - <0.05
New Topic Post Reply Printable Version
Forum Information
Currently it is Friday, September 21, 2018 9:59 PM (GMT -6)
There are a total of 3,005,613 posts in 329,243 threads.
View Active Threads


Who's Online
This forum has 161786 registered members. Please welcome our newest member, Wildcat44444.
284 Guest(s), 8 Registered Member(s) are currently online.  Details
Mind body spirit, clocknut, Fegyduck7, Wildcat44444, island time, sebreg, Healing98, Alxander