Advanced pc and long term survival

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Regular Member

Date Joined Dec 2010
Total Posts : 191
   Posted 5/24/2011 1:27 AM (GMT -6)   
Good morning gentlemen ( oh and ladies ) last night i attended a local support group here in the uk and i now understand why they exist.I walked into the room and the average age was approx 65 years so i must confess that i felt a little out of place being 45 years old.I was greeted and treated with kindness and respect.Each member of the group addressed the others and told of there journey and present situation and choices of treatment.It was my turn to speak and although im very confident i dont favour public speaking but i did my bit and i was very well received.Two things that matter happened last night as i will now explain.Firstly an oncology nurse that attends the class replied to my speach stating that she new a young man whom had presented with many skeletal mets and a psa of 5000> !!!!!! who is now at least NINE years into treatment and still doing good and keeping active.This imformation alone made my night and was a massive boost for me.Secondly at the end of the meeting another lady who was present with her husband came over and thanked me for my possitive words as her husband had recently discovered that he had bone mets and was obviously very upset about this.Hearing my story and my positive attitude it had made her and her husband much more upbeat about there situation.For me i felt like i had helped someone and that alone is the reason that i will be aregular participant at future meetings.I WENT I GOT SUPPORT AND I SUPPPORTED mission accomplished.

Regular Member

Date Joined Mar 2011
Total Posts : 92
   Posted 5/24/2011 2:48 AM (GMT -6)   
Well done, good story. It is good to talk to others who understand and share expiriences be it good or bad.
age 49, dx 21-01-2011 PSA 5.6
12 cores all positive >80% in some, Gleason 3+3=6, T2B
RALP 10-03-2011, post OP pathology, Gleason 4+3=7 and 1% 5+4=9
Prostate 50g, 48mmx40mmx40mm, largest tumor 48mmx34mmx24mm, extensive PIN also present, EPE left apex .2mm, perineural invasion, clear margins closest was .7mm, lymph nodes not checked.
path stage pT3A Nx Mx R0
post OP PSA ? 11/5/2011 - 0.03

Elite Member

Date Joined Oct 2008
Total Posts : 25355
   Posted 5/24/2011 6:23 AM (GMT -6)   
Great post
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06, 2/11 1.24, 4/11 3.81
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/10

Regular Member

Date Joined Dec 2010
Total Posts : 191
   Posted 5/24/2011 9:18 AM (GMT -6)   
Thank you gentlemen appreciated.
psa on dx 144, gleason 4+3 7 12 biopsie cores cancerous
T3a N2 M1.
psa after 3 months zoladex 20
T levels 0.5 after 3 months zoladex.
now taking 50mg cosadex daily also.

Jerry L.
Veteran Member

Date Joined Feb 2010
Total Posts : 3042
   Posted 5/24/2011 5:17 PM (GMT -6)   
Way to go...
Boy, can I relate to the first part of your story...I also go to my local support group and found that the average age is about 20 years older than me.
Good job...and great post...
Jerry L.
Nov. 2009 Dx at Age 44
Dec. 2009 DaVinci Robotic Surgery
Jan. 2010 T3b, Gleason 9
Feb. 2010 Adjuvant Radiation
March 2011 PSA Rise/scan indicates spot
April, 2011 Casodex / Lupron
May 2011 Radiation to pelvic bone

PSA History:
Nov. 2009 4.30
Feb. 2010 <.05
May 2010 <.05
Aug. 2010 <.05
Nov. 2010 <.05
March, 2011 .09
April, 2011 .06
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