Photodynamic Therapy (PDT)

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I use to be a fish
Regular Member


Date Joined Mar 2011
Total Posts : 57
   Posted 5/24/2011 8:58 AM (GMT -6)   
In our ongoing research on different treatment options, my husband was told by an oncologist who works with a healthfood store by answering individuals questions about Photodynamic therapy being performed in Indiana.  I read a little blurb about it in Dr. Walsh's Guide to Surviving Prostate Cancer book.  Apparently it treats prostate cancer by shooting light at a certain wavelength at the targeted area, which causes a photochemical reaction that is highly toxic to tissue. 
 
Has anyone investigated this option?  It is not covered by our insurance and the cost is $44,000 at the place in Indiana.  It sounds like the treatment takes 2 weeks.
 
Husband met with robotic surgeon here in Florida last Wednesday.  I think one of my husband's main concerns is not being able to go back to work for 1 month (not to mention undergoing major surgery.)  The doctor said no lifting, no bending, no stooping because it may pop open all the stitches and he would be incontinent.  He runs his own business and has no employees to cover for him during his absence and he is worried about losing his clients.  He does repair work for auto dealers on their lot and is super busy!!
 
He does not want to pursue radiation as a first line of treatment because of his relatively young age (49) and the concern for secondary tumors down the line.  Also feels that surgery would be the best option now and would still allow for radiation if the cancer did return.
 
His highest psa reading was 5.1.  His % free psa was between 10-13%.  He had four positive cores out of 12 on the biopsy and his gleason score was a 6.  One of the samples contained 90% cancer.  The other samples contained 40%, 67% and 20%.  The core with 20% also had perineural invasion.   I am concerned that this might be too much cancer to do AS, even though his gleason was a 6 (which could be upgraded after prostate is fully examined after surgery).  The surgeon told him he had the cancer of a 65 year old.  He said that it would not bother him in the next couple of years, but it will grow and it will be significant over time.
 
My husband is willing to do any alternative therapies and is reading the Max Gerson book on juicing, coffee enemas, etc.  He has two friends (both women) who did this type of therapy, one for leukemia and the other for colon cancer and were both cured many years ago.  The one lady with the leukemia told him it was very difficult therapy, but when she was diagnosed back in the 70's with leukemia the only treatment was blood transfusions, so she did the juicing, enemas, enzymes, etc. and after 6 months did not have the leukemia.  She continued that type of therapy for 9 months total.  She told him she didn't know how it would work for him, but it is very difficult therapy.
 
I appreciate everyone's thoughts & input.
 
Thanks.
 
 
 

RobertC
Veteran Member


Date Joined May 2011
Total Posts : 1300
   Posted 5/24/2011 11:58 AM (GMT -6)   
I think I read about Photodynamic therapy once and assumed it was totally experimental. Didn't know it was approved.
You could consider HIFU in the Bahamas for 25K, or possibly cheaper or for free in a clinical trial in USA.
Alternative therapy might slow the cancer down (maybe quite a bit). I don't believe it would reverse or cure the cancer.
Good luck.

JNF
Veteran Member


Date Joined Dec 2010
Total Posts : 3746
   Posted 5/24/2011 1:00 PM (GMT -6)   
I had HDR brachytherapy and IMRT, but am a few years older. You should check out the Nanoknife treatment as well. The first prostate procedures in the US were done here in Atlanta at the Malizia Clinic. Website is www.maliziaclinic.org and the doctor that performs the Nanoknife is Jaime Wong MD
PSA 59 on 8-26-2010 age 60. Biopsy 9-8-2010 12/12 positive, 20-80% involved, PNI in 3 cores, G 3+3,3+4,and 4+3=G7, T2b.
Eligard shot and daily Jalyn started on 10-7-2010.
IMRT to prostate and lymph nodes 25 fractions started on 11-8-2010
HDR Brachytherapy December 6 and 13-2010.
PSA <.1 and T 23 on 2-3-2011.
PSA <.1 on 4-7-2011
Second Eligard shot on 4-7-2011

Piano
Veteran Member


Date Joined Apr 2008
Total Posts : 847
   Posted 5/24/2011 3:22 PM (GMT -6)   
There is enough evidence for me (including Walsh's book) that diet is implicated in prostate cancer -- in particular red meat and dairy products.

I have chosen to go almost completely vegan and have had some modest success in slowing a rising PSA, but it is still too early to be counting the chickens!

If you see AS as a reasonable option, then why not follow that course, but combine it with whatever alternative therapy you think best. Do regular three-monthly PSA tests and plan on another biopsy in a year. Then you will have clear evidence if the alternative has worked, and if not, it still won't be too late to pursue a conventional therapy.
No symptoms; PSA 5.7; Gleason 4+5=9; cancer in 4/12 cores
Non-nerve-sparing RRP 7 March 2008 age 63
Organ confined, neg margins. Gleason downgrade 4+4=8
Fully continent
Bimix worked well; now using just VED
PSA undetectable at first but then rose to 0.4, doubling time 7 months
Following diet change, PSA static at 0.4...
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