Gordy, so sorry to hear of your extreme difficulties. I am in no ways trying to make a comparison between your PC journey and mine. I didn't quite get what you meant when you said "I am sorry to put a downer on all this"
I do not believe I have mets at this time, bone or otherwise. Neither does my uro nor even my new medical urologist. But the new doctor won't rule out the possibility of that at this point. Thus further tests and he wants to do coventional x-rays soon.
My journey has been an odd one too, doesn't look bad based on my original post surgery pathology, but has acted agressive and fast ever since. Having both quick recurrance from both surgery and SRT.
We are both ostomite's at this point. How are you adapting to your stoma? And is yours a temp, or the perm variety? Last September, I underwent major surgery for the Urostomy, as the result of faulty radiation destroying the functionalness of my bladder. If you ever want to disucss wafers and appliances, I am getting use to the lingo. My stoma ended up being a convex one instead of the normal concave, so its taken several months to get the right product. I can get one to last 7-8 days now.
I understand about the pain drugs. I have been on Loratabs since July of 2009 continuous (all under doctor's approval), with the exception of a short period (Nov/Dec 2010). My new oncologist has actually increased my doseages in order to get a better handle on pain control for me.
These hip pains, and now lower back, did not exist beyond 6 months ago, and they have been increasing. I have to walk with a cane at all times outside, and at times, should be using a walking, but my foolish pride has kept me from doing it so far.
I wish you all the best, my friend, and PC brother. You are traveling a very rough path, yet you are a fighter still. Please keep in touch with all of us here. We really do care. And we want to support you all we can.
David in SC
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06, 2/11 1.24, 4/11 3.81
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/10