Just checking in-- been ill

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compiler
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Date Joined Nov 2009
Total Posts : 7269
   Posted 6/1/2011 12:06 AM (GMT -6)   
Howdy:
 
I've been under the weather with some respritory crud for about a week. It greatly resembles a bad bout of pneumonia I had about 15 years ago. I'll be seeing my GP Tuesday morning.
 
It is ironic that I managed to avoid hitting that brick wall of fatigue with my IMRT, but I did hit it with whatever this is. Also, the two days before I got sick, I noted that my energy had pretty much returned to normal (as did my good gym workouts). In short, a good recovery from the SRT. But maybe it did screw with my immune system (?).
 
Also, I decided to take a break from HW (hardly even lurking) and I've done that. I do find once I make a key decision (in this case, setting up a consultation with Dr. Scholz) I often relax a bit more and at least return to a semblance of my pre-PC normal life.
 
Looking in now, I see so many new posters. Good luck to all.
 
David -- a special good luck to you on your PSA result. I gather you will be finding out on Monday?
 
Mel
PSA-- 3/08--2.90; 8/09--4.01; 11/09--4.19 (PSAf: 24%), PCA3 =75 .Biopsy 11/30/09. Gleason 4+3. Age: 64. Surgery: Dr. Menon @Ford Hospital, 1/26/10. Pathology Report: G 4+3. Nodes: Clear. PNI: yes. SVI: No. EPE: yes. Pos. Margin: Yes-- focal-- 1 spot .5mm. 100% continent by 3/10. ED- yes.. PSA on 3/10/10-: 0.01. PSA on 6/21/10--0.02. 9/21/10--0.06; 1/4/11-0.13,3/1/11--0.27. Now doing SRT

142
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Date Joined Jan 2010
Total Posts : 7080
   Posted 6/1/2011 9:20 AM (GMT -6)   
Mel,
 
Radiation certainly does, according to my GP, who follows many RT patients who return to his care, devastate your immune system.
 
The RO said any such impact whould be limited to the 60-90 days after RT ended, but the GP and the uro both say that it is long-term impact (1-2 years).
 
I am almost a year out from the end of RT, and my white blood cell count has not yet returned above minimum levels as reported by my lab. It is improving from the immediately post-RT level of virtually none, but...
 
I was warned to avoid crowds at all costs (i.e. shop off hours, no movie theaters, ball games, etc.), stay far away from anyone who was ill at all, and given a couple of different antibiotic open prescriptions to keep "on reserve".

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 6/1/2011 9:59 AM (GMT -6)   
Mel - hope you feel better soon. My immune system is bizzare, I never get colds, coughs, sore throats, ear aches, flu's,or allergy problems. Guess I am luck in that regards. Yes, chose to wait till next Monday for my PSA reading, when I meet with my GP

142- I tend to agree with the timeframe your GP said about post SRT matters, this is based on me having gone through RT twice in 11 years. Some side effects, even the worse of fatigue, can hit you out of the blue even 6 months or more after you think you are doing ok.

Get better Mel.

David in SC
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06, 2/11 1.24, 4/11 3.81
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/10

James C.
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Date Joined Aug 2007
Total Posts : 4463
   Posted 6/1/2011 10:08 AM (GMT -6)   
Mel, I know how you feel, guy. I caught some version of the crud 3 weeks ago yesterday- first week of severe cough, chills/fever/ the full case, then 2nd week hacking cough, now just a persistent little cough, which is aggravated by humid conditions, so don't you know we are in an early heat wave with record high humidity now. So it's inside for me, but I don't mind, better 72 degree than 94... smilewinkgrin Oh, first serious cold/whatever in over 15 years, so can't complain, had a long run of no sniffles...
James C, 64, East TN
Gonna Make Myself A Better Man tinyurl.com/28e8qcg
4/07: PSA 7.6, 7/07 Biopsy: 3 of 16 PCa, 5% inv, lf. lobe, GS6
9/07: Nerve Spar. open RP, Path: pT2c, 110 gms., clear except:
Prob. microscopic inv.-left apical margin -GS6
3 Years: PSA's .04 each test until 4/10-.06, 9/10-.09, 12/10-.09, 2/11-.08, 5/11-.08
Bimix .30

Fairwind
Veteran Member


Date Joined Jul 2010
Total Posts : 3887
   Posted 6/1/2011 12:19 PM (GMT -6)   
Have your PCP investigate "Walking Pneumonia", a nasty variant that can really knock you down. It responds quickly to antibiotics..

They may want to do a chest X-ray..More radiation!! :)
Age 68.
PSA age 55: 3.5, DRE normal.
age 58: 4.5
61: 5.2
64: 7.5, DRE "Abnormal"
65: 8.5, " normal", biopsy, 12 core, negative...
66 9.0 "normal", 2ed biopsy, negative, BPH, Proscar
67 4.5 DRE "normal"
68 7.0 3rd biopsy positive, 4 out of 12, G-6,7, 9
RALP Sept 3 2010, pos margin, one pos vesicle nodes neg. Post Op PSA 0.9 SRT, HT. 2-15-'11 PSA 0.0

Sleepless09
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Date Joined Jul 2009
Total Posts : 1267
   Posted 6/1/2011 2:18 PM (GMT -6)   
Hi Mel, thanks for checking in, although sorry to hear about "the crud" as James so wonderfully puts it.

Sheldon AKA Sleepless
Age 67 in Apil '09 at news of 4 of 12 cores positive T2B and Gleason 3 + 3 and 5% to 25% PSA 1.5
Re-read of slides in June said Gleason 3 + 4 same four cores 5% to 15%
June 29 daVinci prostatectomy, Dr. Eric Estey, at Royal Alexandra Hospital Edmonton one night stay
From "knock out" to wake up in recovery less than two hours.  Actual surgery 70 minutes
Flew home to Winnipeg on July 3 after 5 nights in Ramada Inn  ---  perfect recovery spot!
Catheter out July 9
Final pathology is 3 + 4 Gleason 7, clear margins, clear nodes, T2C, sugeron says report is "excellent"
 
Oct 1st 09 -- dry at night, during day some stress issues.
Oct 31st padless 24/7 
 
First post op PSA Sept 09  less than 0.02
PSA on Oct 23, 2009 less than 0.02
PSA on Jan 8, 2010  less than 0.02
PSA on April 9, 2010 less than 0.02 
PSA on July 9, 2010 (one year) less than 0.02
  

compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7269
   Posted 6/1/2011 3:03 PM (GMT -6)   
Saw my doctor this morning. I have been slightly better in that part of the day I feel like I am at full strength (but half the day I've hit the wall).
 
He thinks it is a respritory virus. He gave me an inhaler prescription (albuteral) for the spasmadic coughing that seems to occur (now only a few times a day). We would like to avoid antibiotics and a chest x-ray if possible.
 
In a week, I am supposed to fly out to KC to be part of a huge group (one big crowd) grading AP tests. I'll make a final decision on that by Friday (or possibly Monday). I'd really like to do it, but not if I am ill. (I had not considered the danger of large crowds).
 
It's about 50-50 now. Half the time I lean towards going (when I feel okay) and the other half...
 
Mel

compiler
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Date Joined Nov 2009
Total Posts : 7269
   Posted 6/1/2011 3:47 PM (GMT -6)   
Just curious -- were any of you SRT guys warned about a lowered immune system after tx.?
 
My RO just said resume a normal life, basically (I was to continue a high protein diet and no antioxidents and use Prep H wipes for 2-3 weeks). No cautions about crowds ir anything like that.
 
Mel

142
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Date Joined Jan 2010
Total Posts : 7080
   Posted 6/1/2011 4:04 PM (GMT -6)   
My RO gave the warning I mentioned (2-3 months), and brushed off my other complaints. It just happened that my 6-month blood work was due about 10 days before the end of RT, and I unloaded on my GP. He said he has a large number of current patients, men and women, who have had RT for various reasons, and there are a lot of very similar complaints.
 
On that blood test, my white blood cell count was very literally zero, and he was not the least bit surprised. He gave the advice I mentioned about crowds/groups.
 
I accidentally discovered verification in a strange way - I was being considered to lead a potential project in Central Africa, and was sent to get a number of vaccinations that have to be administered through a public health department. I was refused for two, which were "live" virus based, because of the radiation history. I was told by the CDC and the doctor that I had to wait at least two years, then get more blood work, before I could even potentially be allowed to get them. Bad news / good news sort of thing - didn't get the project, but it was because it never happened, not because I couldn't go.
 
I also read of this sort of side effect and the same warnings in an American Cancer Soc. booklet on general RT they had at the rad. clinic.

F8
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Date Joined Feb 2010
Total Posts : 3987
   Posted 6/1/2011 5:18 PM (GMT -6)   
Mel -- i still "hit the wall" in the afternoons especially the day after hard workouts or yardwork.  i've been negligent about seeing my regular doctor.  i haven't been ill otherwise.  my wife teaches AP biology.  in fact she has the first successful science AP course at her HS. 
 
ed
 
 
age: 56
PSA on 12/09: 6.8
gleason 3+4 = 7
HT, BT and IGRT
received 3rd and last lupron shot 9/14/10
2/8/11 PSA <.1, T= 6 ng/dl

compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7269
   Posted 6/1/2011 5:33 PM (GMT -6)   
Hmmm... strange that I was never given any "immuno-compromised" type warnings (avoid crowds, etc.). That puts a new slant on this AP thing. I will call my RO tomorrow.
 
I guess that brings up 2 questions for those who have had radiation:
 
1) Were you given such post-radiation warnings and
 
2) Did you experience that type of health issue post-radiation?
 
I'm going to look into this.
 
Mel

142
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Date Joined Jan 2010
Total Posts : 7080
   Posted 6/1/2011 5:48 PM (GMT -6)   
Mel,
 
As I mentioned, my RO treated all of it as a non-issue, and brushed it off. They have an "image" to defend, in my opinion.
 
1) Yes, by my GP, not my RO.
2) Yes, all fall and winter, if anyone in the office sneezed, within 24 hours I was sick with fever. Lots of trips to the GP, all real. Now I work from home whenever possible.

mr bill
Veteran Member


Date Joined Sep 2010
Total Posts : 709
   Posted 6/1/2011 5:58 PM (GMT -6)   
Mel,
Had RT after surgery.  Finished this past April 12th. Was not given any such warnings by anyone.  I don't think my white blood cells were even checked. If so, they did it when I was not looking. However, have not had any illness such as that post radiation. We travelled two weeks after radiation, exposed to aiirplane air, crowds, etc. No symptoms other than a little fatigue.

Northfoot
Regular Member


Date Joined Mar 2011
Total Posts : 81
   Posted 6/1/2011 7:13 PM (GMT -6)   
Mel,
All along my SRT I was never given any warnings about WBC count being lowered. I only felt tired for a few weeks. I am at a loss as to why immune system should be so effected. I would think the limited targeting zone for radiation would preclude that problem. I guess I should never assume anything.
Bill

Todd1963
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Date Joined Oct 2008
Total Posts : 3254
   Posted 6/1/2011 7:33 PM (GMT -6)   
Get well Brother.
dx:06/03/06
Age at dx: 42 age now 45
Treated for sciatic nerve pain 6 months prior to dx.
Heavy amount of blood in urine Unable to urinate 
Lung x-ray for pnumonia revealed multiple lesions in each lung
P.S.A. at time of dx. 3216.14
Began lupron and casodex
Cat scan showed large mass in the pelvic area affecting the bladder multiple nodules in both lungs and lymph node envolvement.
Bone scan revealed possible bone involvment in the pelvic area
Biopsy 12 of 12 cores positive gleason 3+4=7
P.S.A.s since lupron 2946, 1274, 532, 5.01 1.23, .09
Begining jan 08 psa .o9, .25, .44, .86, .73, 1.34, 1.49. Doubling time is a little over 3 months
Cat Scan 12/12/08 Prostate normal size and shape. No tumors detected. Left lung clear of all nodules right lung showing only benign scar tissue. Lymph nodes normal
Bone Scan 12/24/08. Clean!!! went off casodex January 4 2009
Current psa 2/13/09 .16
Latest P.S.A. 0.05 newest P.S.A. undetectable

compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7269
   Posted 6/1/2011 10:53 PM (GMT -6)   
OK, thanks so much for the input. Probably the answer is the simplest: I caught a bug and I'm ill, perhaps due to a somewhat weakened immune system.
 
Mel

English Alf
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Date Joined Oct 2009
Total Posts : 2217
   Posted 6/2/2011 12:33 AM (GMT -6)   
Mel - sorry you've hit by a bug
Sounds a bit like a bug I had after SRT. Felt like a normal cold to start with but took about three times longer to get through and to recover from. I think the immune system and indeed the whole body gets affected a lot more my SRT than you realise (or get told), rather than just the area that gets targetted. I even felt that it took a long time for some cuts and grazes on my leg to heal.

I guess it's something like the White blood cells getting used up trying to deal with the RT damage and being in short supply to deal with anything else.

Hope you soon feel much better.

Alf

JNF
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Date Joined Dec 2010
Total Posts : 3886
   Posted 6/3/2011 10:14 AM (GMT -6)   
Mel,

Thanks for all the great information you have posted. I would have benefited by your SRT daily log, but I finished RT before you started.

I am interested, if you would share, in your workout routine. I am starting an organized workout regimen as I have gained some weight and am more concerned about bone health since I am now on HT for eight months and probably will be for another year. Today I am doing my initial assessments with the trainer and then will build the regimen.

What comprises your regimen?
PSA 59 on 8-26-2010 age 60. Biopsy 9-8-2010 12/12 positive, 20-80% involved, PNI in 3 cores, G 3+3,3+4,and 4+3=G7, T2b.
Eligard shot and daily Jalyn started on 10-7-2010.
IMRT to prostate and lymph nodes 25 fractions started on 11-8-2010
HDR Brachytherapy December 6 and 13-2010.
PSA <.1 and T 23 on 2-3-2011.
PSA <.1 on 4-7-2011
Second Eligard shot on 4-7-2011

compiler
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Date Joined Nov 2009
Total Posts : 7269
   Posted 6/3/2011 10:36 AM (GMT -6)   
JNF:
 
Due to my current ill health, I'm not doing much at all. I might go see the RO today. But, regularly, here is what I try and do 2-3 times per week,:
 
During the decent weather, I walk brisky (about 3-3.2) mph to my gym, which is about 0.8 miles each way. I then do 8-14 laps on the treadmill. Most typical is 10 laps, mostly at 3.5-3.9 mph (sometimes a bit lower, sometimes higher), Then I use the sybex machines. I forgot the exact names, but I'll do the:
 
Chest Press, Pect. Fly, Arm Curl, Back ext., and Lateral Pulldown.
 
I may be forgetting one or mislabeling one. I will do these 10 times, with 3 reps.
 
They also have a hydromassage thing and I'll finish my workout with 10-15 minutes of that (but not during SRT as it is like a warm pack, which you are not supposed to do). When done, I walk home briskly.
 
Now, I just described my best workout and ideally I should be doing this 3 times a week. When I get in a groove, I look forward to doing it. Thee workout takes about 2 hours (from leaving house to returning home).
 
In your situation, is this a suitable workout? Or do you need to use free weights?
 
I am certainly not exercising all my muscles. I have a surgically repaired knee and I find some of the leg machines start to irritate my knees, so I've dispensed with that. I've never tried free weights as I also have back problems at times and I am afraid of "moving wrong." Anyway, I find my workout seems to be a good cardio and at least a decent upper body workout.
 
Mel
 

JNF
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Date Joined Dec 2010
Total Posts : 3886
   Posted 6/3/2011 1:46 PM (GMT -6)   
Thanks Mel, great information.

I am going for a good blend of cardio (weight control and heart health) and strength (bone density and strength). I will be able to go at least 3 times a week. I currently use a nordic track (sporadically) at home.

I have not used machines in the past, only free weights. I don't have any restrictions so I will do a full body workout. I assume I will start with cardio and am open to treadmill, bike, stairmaster, and eliptical. I hate cardio so I may mix it up with different routines. As for strength I will wait for the trainer's ideas as to machines, free weights, or combination.

I will plan to finish with a swim. My wife is just recovering from her second reconstructive surgery from her double mascetomy last year. She is a fish as she was a competitive college swimmer and has never given it up. She will be back in the pool, in two weeks. I am a terrible swimmer and will improve with her guidance in order to build in no-impact cardio and cool down.

I get my assessment today (height, weight, bp, strength, flexibility, endurance) and will set baselines. My first training is next Wednesday. I have listed several specific objectives to present to the trainer to develop a routine and expectations.

I'll keep ypu posted,

Jack
PSA 59 on 8-26-2010 age 60. Biopsy 9-8-2010 12/12 positive, 20-80% involved, PNI in 3 cores, G 3+3,3+4,and 4+3=G7, T2b.
Eligard shot and daily Jalyn started on 10-7-2010.
IMRT to prostate and lymph nodes 25 fractions started on 11-8-2010
HDR Brachytherapy December 6 and 13-2010.
PSA <.1 and T 23 on 2-3-2011.
PSA <.1 on 4-7-2011
Second Eligard shot on 4-7-2011

compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7269
   Posted 6/3/2011 5:06 PM (GMT -6)   
Jack:
 
By all means, keep me posted. I have NEVER done free weights. My concern would be doing something the wrong and twisting/pulling something. I guess I could consult with a trainer. I'll see what Dr. Scholz says -- hopefully he will not have me on HT, but I guess that certainly depends on PSA results.
 
Also, I meant to add that once in awhile I switch off and do the elliptical instead of the treadmill, especially if my knee acts up. But usually (90%) it is the treadmill. One of the reasons has nothing to do with exercise. At our gym there is a TV in front of each treadmill. We wear headphones and can tune in to any of the TV's. I often go when there is something I specifically want to watch (go Tigers!). I find it makes a world of difference. When I can watch something, I can do quite a few more laps!!
 
Mel 

F8
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Date Joined Feb 2010
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   Posted 6/3/2011 5:14 PM (GMT -6)   
>>I have NEVER done free weights.<<
 
at your advanced age i'd recommend machines, Mel cool .  i've been lifting lots of years and i only do a couple of exercises with free weights anymore.
 
ed
age: 56
PSA on 12/09: 6.8
gleason 3+4 = 7
HT, BT and IGRT
received 3rd and last lupron shot 9/14/10
2/8/11 PSA <.1, T= 6 ng/dl

compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7269
   Posted 6/3/2011 6:25 PM (GMT -6)   
I prefer to think of my age as...pre-advanced!
 
<G>
 
Yes, I like the machines. It is hard to mess up and pull something, although I've managed to even do that once or twice a year!!!
 
But are the machines reasonable good exercise for an HT patient (I know I'm not there yet).
 
Mel

F8
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Date Joined Feb 2010
Total Posts : 3987
   Posted 6/3/2011 6:39 PM (GMT -6)   
Mel -- machines are great.  you want to stay fit but uninjured.  if you are young and want to bulk up free weights are the way to go -- heavy and fewer reps.   these days if i can't get at least 10 reps i figure i am working too heavy.  occasionally i still strain something but i don't get hurt the way i used to.  it's too hard to recover these days and really all i'm trying to do is delay the inevitable mutation and burn more calories so i can eat more cool .
 
ed
 
 
age: 56
PSA on 12/09: 6.8
gleason 3+4 = 7
HT, BT and IGRT
received 3rd and last lupron shot 9/14/10
2/8/11 PSA <.1, T= 6 ng/dl

Swimom
Veteran Member


Date Joined Apr 2006
Total Posts : 1732
   Posted 6/3/2011 11:09 PM (GMT -6)   
Get well and get strong Mel....best wishes.

Swim
 Hilarem datorum diligit Deus
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