Typical ED recovery time

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Viperguy
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Date Joined Nov 2010
Total Posts : 259
   Posted 6/5/2011 11:08 AM (GMT -6)   
I know everybody is different.  However what is considered typical healing period for the nerves that control Jr's sexual function after Da Vinci surgery?  The continence thing took about 3 months to become tolerable, but Jr. is still unresponsive.

Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4106
   Posted 6/5/2011 12:42 PM (GMT -6)   
Some guys are really quick back in the saddle, Others take a year. Dr said that what I would have a the 2 year mark would be what it is. Well I have improved after the 2 year mark. Still not perfect but much better. I do think that moving to injections which made Jr wake up a bit what the best thing that I did for getting Jr back in the game.

Cajun jeff
9/08 PSA 5.4 referred to Urologist
9/08 Biopsy: GS 3+4=7 1 positive core in 12 1% cancer core
10/08 Nerve-Sparing open radicalSurgery Path Report Downgrade 3+3=6 GS Stage pT2c margins clea
r3 month: PSA <0.1
19th month: PSA <0.1
2 year PSA <0.1
Only issue at this time is ED but getting better

pattersson
Regular Member


Date Joined Apr 2010
Total Posts : 97
   Posted 6/5/2011 12:50 PM (GMT -6)   
mine took 6 months

spottydog10
Regular Member


Date Joined Dec 2009
Total Posts : 345
   Posted 6/5/2011 1:48 PM (GMT -6)   
I'm 18 months out from a nerve sparing surgery and no sign of life without injections.
Bummer...
Mike

James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 6/5/2011 2:20 PM (GMT -6)   
ya don't wanna know............ smilewinkgrin




3 years, 8 months ,22 days, but I ain't counting--------- good lord, has it been that long?
James C, 64, East TN
Gonna Make Myself A Better Man tinyurl.com/28e8qcg
4/07: PSA 7.6, 7/07 Biopsy: 3 of 16 PCa, 5% inv, lf. lobe, GS6
9/07: Nerve Spar. open RP, Path: pT2c, 110 gms., clear except:
Prob. microscopic inv.-left apical margin -GS6
3 Years: PSA's .04 each test until 4/10-.06, 9/10-.09, 12/10-.09, 2/11-.08, 5/11-.08
Bimix .30

wigged-out
Regular Member


Date Joined Dec 2009
Total Posts : 130
   Posted 6/5/2011 4:46 PM (GMT -6)   
I'll be totally blunt here. Adults only, please.

I believe that everyone here deserves to do whatever one can do to help/expedite/sexual function.

First,adhere to dr.s prescribed ed meds i.e viagra, cialis, whatever.

As an unwilling member of this pca club, I found that cruising some outrageous por. site sites has been very helpful. Real raunchy stuff, I wouldn't consider visiting if not in the situation I'm in now. We all unofficialy have a license to do this, for whatever term it takes to work out.

Find what turns you on in the privacy of your own home. And yes, I am very happily married, but working some of this BS out by myself, and really learning to let go again, has required me to take things into my own hands so to speak. This will prepade you for the re-introduction to your partner (if you have one).

Sorry to be blunt, but you know what? This worked for me, and both the mrs. and I are thankful for that.

Nows not the time to get hung up on whatever religous, political views to help you heal sexually. Tons of filth on line, now go heal.

find what turns you on and "excercise". But please don't think of 'ol wigged when you do!!!!
Age: 55- good health. Exercise regularly, 200#.
Needle Biopsy 11/09- 12 samples. 11 OK. Right Lateral Mid- Adenocarcinoma Gleason score 3+3=6 9 involving 5% of specimen.
PSA risingto 8.0 thru 2010.
2nd biopsy- 2 positive cores, one a 3+3=6, 3% and the other a 3+4=7, 20%
Very last PSA- 12
DaVinci 2/14/11 Cath out 2/21/11 Path=10%, Gleason6+7 No lymph, pca contained to organ. Lots of pads.

Post Edited (wigged-out) : 6/5/2011 4:50:56 PM (GMT-6)


maldugs
Veteran Member


Date Joined Jun 2007
Total Posts : 784
   Posted 6/6/2011 1:45 AM (GMT -6)   
err 4 years so far, think at my age, nearly 71, it ain't never coming back to life!!...lol

ps ( really not all that worried about it)

Mal.
age 67 PSA 5.8 DRE firm Rt
Biopsy 2nd July 07 5 out of 12 positive
Gleason 3+4=7 right side tumour adenocarcinoma stage T2a
RP on 30th July,

Post op Pathology, tumour stage T3a 4+3=7, microcsopic evidence of capsular penetration, seminal vessels, bladder neck,are free of tumour, lymph nodes clear, no evidence of metastatic malignancy, tumour does not extend to the apical margins.

Post op PSA 0.5 26th Sept 07 Totally dry
PSA 23rd Oct.0.5
Started SRT on 5th Dec.
Finished 24 Feb 08
PSA from 30th April 08, until now range- 0.5 to 0.7

NY-Sooner
Regular Member


Date Joined Sep 2009
Total Posts : 463
   Posted 6/6/2011 6:15 AM (GMT -6)   
I was recieving rock solid erections , without drugs, the day the catheter was removed, but only with continual manual stimulation.  As soon as the manual stimuli stopped, so did the erection.
 
At about the two year mark post surgery, I started waking up every morning with nocturnal erections, but after a few seconds of being awake, the erection dies.
 
Now at 4 years post op, I can actually feel some slight tingling down there with just visual or mental stimulation, if I really concentrate.  I can not get anl erection from mental stimulation alone as I could prior to surgery, but at least I can feel something down there, and  if I add a little manual stimuli , I am rock solid and ready to go for hours.
 
Age 56, Biopsy 6/2007 - PSA 4.5, 2 of 12 with  <5% cancer Gleason 6
Surgery 9/2007 Strong Memorial,  Rochester  NY with Dr. Jean Joseph (1300 plus surgeries)
 Path - Negative margins, cancer in 20% examined tissue, Gleason 6
 Post Op - No ED issues, full erections without drugs,  used 5-7 pads a day for 3 months. Now dry except for stress leaks now and then.
 All post op psa's <.04

mowman
Regular Member


Date Joined May 2011
Total Posts : 20
   Posted 6/6/2011 6:39 AM (GMT -6)   
hey wigged, wondered about that but was afraid to ask.surgery soon. thanks for posting.

DaSlink
Veteran Member


Date Joined Feb 2011
Total Posts : 713
   Posted 6/6/2011 6:53 AM (GMT -6)   
At 4 months from surgery,I couldn't poke a hole through wet toilet paper until yesterday. While beating it like it owed me money,a little angry it seemed to get. Maybe I'm on to something.
Every minute you fish or ride,adds an hour to your life!

Age 52 Dx age 53 daVinci surgery
prostate volume 32 grams
Biopsy 12 cores with 7 positive
Gleason score of 7
1st PSA 38.7 10/05/2010
2nd PSA 49.9 11/23/2010
CT neg.
BS Negative
RRP on 01/25/2011
PT3a -40% involved
margin involved-Left anterior
lymph nodes -clear
1st post op PSA-0.26-03/16/11
2nd PSA-05/09/11-0.08

logoslidat
Veteran Member


Date Joined Sep 2009
Total Posts : 5815
   Posted 6/6/2011 7:55 AM (GMT -6)   
All true,wigged out but it does raise interesting conundrums, which each individual has to deal with.Internet sexual sites can be addictive and depending on your significant other, can be detremental to a relationship, no matter how " worthy the goal " Its a slippery slope, so use caution,JMO. Not you specifically but possibly others.
Diagnosed 8/14/09 psa 8.1 66,now 67
2cores 70%, rest 6-7 < 5%
gleason 3+ 3, up to 3+4 @ the dub
RPP U of Wash, Bruce Dalkin,
pathology 4+3, tertiary5, 2 foci
extensive pni, prostate confined,27 nodes removed -, svi - margins -
99%continent@ cath removal. 1% incont@gaspass,sneeze,cough 18 mos, squirt @ running. psa std test reported on paper as 0.0 as of 12/14/10 ed improving

Post Edited (logoslidat) : 6/7/2011 4:20:54 AM (GMT-6)


natural44
Regular Member


Date Joined Dec 2010
Total Posts : 172
   Posted 6/6/2011 8:15 AM (GMT -6)   
I am just shy of 9 months post RRP surgery nerve sparing, the injections made all the difference in the world in my recovering thus far I believe. Once I started the injections I noticed a slight responce to the oral meds in that i have nocturnal erections on nights i take the oral meds that are only about 30-40% firm but better than nothing. I can beat it like a step child and get 90-100% just last few days with no meds, however without constant stimulation still for now at least....it goes down fairly quickly...but the process as a whole is improving much faster now at the 6-9 month mark and post stating injections....also I used and still use the VED daily since cath out at one week post op.
age 44 when diagnosed 45 now
RRP 9-28-10
gleason 3+3
pathology report clear
11-1-10 PSA 0.02
3 month 0.00
6 month 0.00
12-1-10 noctural erections, not very strong maybe 20% none prior to Osbon pump use
3-30-11 Trimix 1st injection works GREAT! and more nocturnals and even some spontanious erections plus responding a little bit now to oral meds!!! The trimix really started things going!

Viperguy
Regular Member


Date Joined Nov 2010
Total Posts : 259
   Posted 6/6/2011 8:52 AM (GMT -6)   
Hey DaSlink,

You did it again, ROF**** "beating it like it owed me money". Tony Soprano would be proud, LOL.

The oral meds are not working very well. I'm 3 months post op and hopefully Jr. will get better. That pump thing is embarrassing but may be worth looking into. I don't have a clue which is the best VED or even how to use the thing.

I'll do without before using a needle, it's just not worth it to me. If I take enough Xanax probably will not care anyway. BTW, Xanax does make you leak bad at night. Things become too relaxed down there.
57 years old
2009 PSA 2.2
2010 PSA 3.2
Biopsy 24 cores 3 positive
Gleason 3 plus 3
Robotic Surgery March 3, 2011 @ 6 am
Cath removal 3/17/11
Still Leaking 04/21/11 but getting better
05/26/11 leakage is much improved one small pad daily
ED an issue but helped with a pill
Recovery is slow but sure
First post op PSA 06/22/11

James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 6/6/2011 10:32 AM (GMT -6)   
Encore ImpoAid Manual for $78 is one a bunch of the guys here have, that works well, is medically approved and safe, with relief valves and such. Any of the pumps up to about $150 are well made, medical grade, safe and easy to use, unless you have bad hand dexterity problems.

www.vitalitymedical.com/penis-pump.html

The use of it is well illustrated in the package or we got lots of homemade experts here to assist in instruction.

Don't discount the injections, once you prick you won't go back...or something like that. It's really a whole bunch of nothing to worry about.
James C, 64, East TN
Gonna Make Myself A Better Man tinyurl.com/28e8qcg
4/07: PSA 7.6, 7/07 Biopsy: 3 of 16 PCa, 5% inv, lf. lobe, GS6
9/07: Nerve Spar. open RP, Path: pT2c, 110 gms., clear except:
Prob. microscopic inv.-left apical margin -GS6
3 Years: PSA's .04 each test until 4/10-.06, 9/10-.09, 12/10-.09, 2/11-.08, 5/11-.08
Bimix .30

Ger42
Regular Member


Date Joined Apr 2010
Total Posts : 189
   Posted 6/6/2011 1:37 PM (GMT -6)   
Coming up on 8 months but peter is not coming up. I'm using a pump but with the wife sick we haven't really gone for the plunge. On my own I do okay. Sure hope she gets better so we can enjoy it together.
Age 68 weight 185 height 6'
Samples taken 4/19/2010 sent to Bostwick
3 out of 12 samples cancer
1) gleason score 3+3 involving 65%
2) gleason score 3+3 involving 65%
3) gleason score 3+3 involving 10%
PSA 3.5 Mar 19, PSA 2.5 Apr 4
Bone scan clean CT scan clean
Da Vinci 10/12/2010 DR Paul Kahn all nerves spared
Home 10/19/20 Cath out 10/22/2010
Prostate 56 gm. Gleason grade 3+4 = 7
4 MO PSA 0.0

natural44
Regular Member


Date Joined Dec 2010
Total Posts : 172
   Posted 6/6/2011 5:06 PM (GMT -6)   
I was sorta worried about the first injection and found out it was alot about nothing....more pressure really than sharpness to the sensation...and I have found out that the more you "plump" prior to injection the less the sensation of the needle is anyways.....and the response I have had since the injections...WOW I can not praise the use of this stuff enough for the obvious effects and the "side effects" of speeding the recovery up without the injections......
age 44 when diagnosed 45 now
RRP 9-28-10
gleason 3+3
pathology report clear
11-1-10 PSA 0.02
3 month 0.00
6 month 0.00
12-1-10 noctural erections, not very strong maybe 20% none prior to Osbon pump use
3-30-11 Trimix 1st injection works GREAT! and more nocturnals and even some spontanious erections plus responding a little bit now to oral meds!!! The trimix really started things going!

Snowbound
Regular Member


Date Joined Jun 2011
Total Posts : 224
   Posted 6/7/2011 5:38 AM (GMT -6)   
I had my first injection of Friday, 6 months to the day from surgery. It was delayed because my ED specialist injured his back. Injections had been planned all along since I didn't have nerve sparing surgery. I'd been taking Cialis daily, but it had no noticable effect. In fact since the surgery it's been gradually getting worse and becoming a shrivelled up little old man. cry
 
The first injection was a low dose and I got halfway there. At first the width was there but it seemed stubby, but over the hour it gradually lengthened and all together lasted about 2 hours. It also ached, which I hope was just due to lack of use.
 
Since then I've noticed "big" improvements (more volume, vague signs of life) so I'm feeling more hopeful than I have in a long time. I'm looking forward to getting my training session and home kit smilewinkgrin
Glen, age 50
PSA 5.43 at June 2010 physical
Biopsy: 8 of 12 samples positive, 75% in 1 core. Gleason 7
Radical Prostatectomy Dec 3rd, 2010
Pathology: 3.5cm tumour, no capsular invasion, lymph nodes negative
PSA currently undetectable!

James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 6/7/2011 6:20 AM (GMT -6)   
Guys, can we raise the descriptions of some of our rehab acts a little further out of the gutter or locker room? Be creative, not necessarily vulgar, ok? We have a very wide range of people here, some of who may be offended with some of the more crass descriptions. Thanks
James C, 64, East TN
Gonna Make Myself A Better Man tinyurl.com/28e8qcg
4/07: PSA 7.6, 7/07 Biopsy: 3 of 16 PCa, 5% inv, lf. lobe, GS6
9/07: Nerve Spar. open RP, Path: pT2c, 110 gms., clear except:
Prob. microscopic inv.-left apical margin -GS6
3 Years: PSA's .04 each test until 4/10-.06, 9/10-.09, 12/10-.09, 2/11-.08, 5/11-.08
Bimix .30

Viperguy
Regular Member


Date Joined Nov 2010
Total Posts : 259
   Posted 6/7/2011 6:32 AM (GMT -6)   
I would think those injections would sting like a darn bee. Do you have to aim for large veins or anywhere area.  How about cost? I have been lucky with the insurance and daily Cialias at $30 per month. But the Cialias does not seem to do much that I can notice. Once or twice a week would probably be my desired limit with injections. Anybody use those autoinjection devices like the diebetics use?

I know me, and probably would not use a needle if it hurt before and after. Sex would become a night of dread but right now it's no night at all.

I remember my first attempt about a week ago. I took a full Lavitra (pardon spelling) waited 45 minutes. Wife and I tried and maybe a 50% er but not good enough. I got so frustrated, I sat on the couch and watched TV till 2 am and thought to myself "the hell with it" I'll give up trying. It's so humiliating. I'm at my wits end.
 
(James C., I toned it down a little, that's why the edit, drop me a note if I cross the line)  Thanks for your suggestions. 
57 years old
2009 PSA 2.2
2010 PSA 3.2
Biopsy 24 cores 3 positive
Gleason 3 plus 3
Robotic Surgery March 3, 2011 @ 6 am
Believe it or not it didn't hurt much (1 pain pill)
Cath removal 3/17/11
Still Leaking 04/21/11 but getting better
05/26/11 leakage is much improved one small pad daily
ED an issue but helped just a bit with a pill
Recovery is slow but sure
First post op PSA 06/22/11

Post Edited (Viperguy) : 6/7/2011 6:43:34 AM (GMT-6)


Ausboy
Regular Member


Date Joined Mar 2011
Total Posts : 92
   Posted 6/7/2011 7:07 AM (GMT -6)   

Hey Viper

I was 1 week after you with Ralp, needles don't sting like a bee, don't aim for a vien and sex should not be a night of dread!!! dam it man don't hang up your boots just yet.

Frustrating yes, but not by any means a lost cause. We are both still in early days of recovery, my Uro has explained to me it's best to use needles now if pills don't provide a full erection. He said VED will only fill vesseles outside body and penis needed to be filled for entire lenght. I have injected 4 times with varying results, but I am taking it slow. I am on aprostotil or something, away from home now so haven't got bottle, it's a uni mix not tri or a bi mix. Costs $70 for 10ml and will use .3ml per dose so not to bad. Started at .1 and worked up  he said 3 times a week, and see how it goes. Anyway erection feels better than with rings etc. and it does not need stimulation, it works anyway, who knows may not be for ever, so if your Uro says ok go for it, obviously it is not to early to try cause mine says he has had some very promising results with early stimulation if pills not effective,  sounds like you have nothing to loose, so don't worry. best of luck tongue


age 49, dx 21-01-2011 PSA 5.6
12 cores all positive >80% in some, Gleason 3+3=6, T2B
RALP 10-03-2011, post OP pathology, Gleason 4+3=7 and 1% 5+4=9
Prostate 50g, 48mmx40mmx40mm, largest tumor 48mmx34mmx24mm, extensive PIN also present, EPE left apex .2mm, perineural invasion, clear margins closest was .7mm, lymph nodes not checked.
path stage pT3A Nx Mx R0
post OP PSA ? 11/5/2011 - 0.03

Snowbound
Regular Member


Date Joined Jun 2011
Total Posts : 224
   Posted 6/7/2011 7:14 AM (GMT -6)   
James, I'll try to be more discreet.
 
Viper, the injection goes into the muscle. If you check out youtube you'll find demonstration videos, using models. The injection wasn't bad at all, just a little sting. The first self injection will be difficult, but once you get over the squeemish feeling and get a bit of practice it should be pretty easy. I've feeling nervous about but after the experience of my first injection I'm looking forward to the next appt. I'm with you there on the lack of response from the drugs and the late night frustrations.
 
I have some experience with self injecting. My son has Type 1 Diabetes. He's on an insulin pump now but for the first couple of years we were doing injections. When we first started we had a saline solution so my wife and I could practice on each other. We also let our son inject us to help him get over the initial hurdle. I can tell you that my first self injection in the stomach was very difficult but once I did it I found subsequent attempts less painful and easier than having my wife or son do it.
Glen, age 50
PSA 5.43 at June 2010 physical
Biopsy: 8 of 12 samples positive, 75% in 1 core. Gleason 7
Radical Prostatectomy Dec 3rd, 2010
Pathology: 3.5cm tumour, no capsular invasion, lymph nodes negative
PSA currently undetectable!

MrGimpy
Veteran Member


Date Joined Jul 2009
Total Posts : 504
   Posted 6/7/2011 8:42 AM (GMT -6)   
The Inj therapy for me has been very effective. I have also been using the BD Inject-Aide which makes it close to a foolproof process. Perfect aim and never once did I feel a thing. I use 30 guage syringes. My cost was $64 delivered packing in ice packs for a 5ml vial of full strength Trimix. The Uro gave me the auto-injector, syringes were covered by my Ins. Alcohol wipes are cheap at any drug store

To Viperguy, My Dr told me that at 2yrs the stretched nerves from nerve sparing Robotic RP should be as healed as they are going to get. For the most part he is correct but at 2 1/2 years post op I do find more unaided erections as time continues to pass. By unaided I mean no injections and no ED meds at all

I had been using Trimix since the 5th month post op sometimes 3 times a week, Now I still have a vial from December and use it only once in a while, it still works being in the fridge all that time

James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 6/7/2011 11:52 AM (GMT -6)   
vipirguy, read thru this thread that I put below and some of the links inside for plenty of info about injections, along with lots fo reassurance about it's relative ease.

www.healingwell.com/community/default.aspx?f=35&m=1827385
.
James C, 64, East TN
Gonna Make Myself A Better Man tinyurl.com/28e8qcg
4/07: PSA 7.6, 7/07 Biopsy: 3 of 16 PCa, 5% inv, lf. lobe, GS6
9/07: Nerve Spar. open RP, Path: pT2c, 110 gms., clear except:
Prob. microscopic inv.-left apical margin -GS6
3 Years: PSA's .04 each test until 4/10-.06, 9/10-.09, 12/10-.09, 2/11-.08, 5/11-.08
Bimix .30

Post Edited (James C.) : 6/7/2011 11:57:03 AM (GMT-6)


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 6/7/2011 12:07 PM (GMT -6)   
I was just reviewing some of my links and cam across a doctor's comment concerning recovering our sex life. I really like the term 'outercourse" as this is the first step that we always recommend to guys, to relearn their sexuality and sensitivity, to adapt to their new sexual situation. Closeness, sharing, etc. are all an important part of helping to rewire the brain after all our nerves have been stretched, bruised and helps us to get the new signals understood and acted upon by the brain. Hopefully, the intercourse will be much more successful.

"Throughout the journey back to sexual intercourse or sexual intimacy after prostate cancer surgery, men and their partners can seek sexual pleasure and fulfilment in many ways. Realistic expectations, patience, communication, a little risk taking or experimentation, and, above all, love are very important ingredients. Discuss your fears, feelings, frustrations, and fantasies with your partner. Practice (and help oxygenate the penis) through mastaurbation. Try sexual intimacy using outercourse before you try intercourse. But, most of all, do what works for you and your loved one. "

www.cpcn.org/arch_0069_penile.htm
.
James C, 64, East TN
Gonna Make Myself A Better Man tinyurl.com/28e8qcg
4/07: PSA 7.6, 7/07 Biopsy: 3 of 16 PCa, 5% inv, lf. lobe, GS6
9/07: Nerve Spar. open RP, Path: pT2c, 110 gms., clear except:
Prob. microscopic inv.-left apical margin -GS6
3 Years: PSA's .04 each test until 4/10-.06, 9/10-.09, 12/10-.09, 2/11-.08, 5/11-.08
Bimix .30

Post Edited (James C.) : 6/7/2011 12:28:35 PM (GMT-6)


stevmac1
Regular Member


Date Joined May 2010
Total Posts : 129
   Posted 6/7/2011 3:14 PM (GMT -6)   
Viper,
I'm 1 year out and penetration is finally a reality. I've used generic Viagra all along for blood flow. At 6 months I was at about 75 or 80%, but just in the last 4 weeks I've improved drastically. Hang in there!!!
steve
50 Yrs. old at DX (51now) Feb, 2010 w/6.6 PSA.
Biopsy 04-24-10, Gleason 3+3
4 of 5 cores left side inv. 4 of 6 rt side
RRP 06-07-10
16 days post-op, catheter out.
Gleason upgraded to 3+4
Totally continent @ 8 weeks post-op. (!!!)
1st post-op PSA @ 12 weeks - <0.05
2nd " " " @ 6 months - <0.05
@ 9 months - <0.05
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