New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Sagittarian
Veteran Member


Date Joined May 2011
Total Posts : 546
   Posted 6/5/2011 6:45 PM (GMT -6)   
Update:
Tomorrow will be two weeks since surgery.  I am still off and on urinating blood.
It is not as much or red. Doc said bowel straining can trigger bleeding.  I was
not pleased with the stool softener.  Asked the uro if i can switch to metamucil,
he agreed.  Works much better, and it comes in crakers also, which is good with
soymilk.  The incisions are doing fine, no pain there.  The discomfort/pain is
mostly on pelvic floor.  No pain meds needed since it is not that bad.  Giving my
"little one" a brake.  I want to feel no pain before attempting that again.  I do
believe I went at it a little too hard, too soon.  My six incisions were glued, it is
slowly coming off on its own while washing them.  I am not pushing the issues
and picking it off too soon.  So invloved with the urintate/erection thing my eye
was off the ball, which is PCa.  Will have to wait for PSA test for that.
 
Glenn-AGE-53,NJ, PSA-4.2, FPSA-7%
4/09/2011 - Biopsy, 8 NEG, 4 POS (left), 2(3+3), 2(3+4)
5/23/2011 - Da-Vinci Surgery, Right Nerves Spared, Partial Left
5/25/2011 - PATH, pT2c, 4+3, Confined, Margin-Lymph-Seminal NEG
5/31/2011 - Catheter Removed
6/01/2011 - UTI, CIPRO 500mg 2 a day for 10 Days
7/12/2011 - First Post PSA test

142
Forum Moderator


Date Joined Jan 2010
Total Posts : 7078
   Posted 6/5/2011 8:38 PM (GMT -6)   
Sag,
 
I have always used a softener called Docusate Calcium (240mg). I've had colo-rectal issues for years - this works well but doesn't cause any issues.
 
No fiber, just changes the surface tension in the bowel, so that water absorbs more easily (at least this was the explanation of my colo-rectal guy - he used nothing else but mineral oil).
 
CVS, Walgreens, Kroger, all have house labels, but looking at the capsules, I think they all come from the same place.

rcroller
Regular Member


Date Joined May 2011
Total Posts : 327
   Posted 6/6/2011 6:39 AM (GMT -6)   
Glenn, Sounds familiar...my pain is pretty much limited to pelvic floor right near the rectum. Literally feels like a PIA. Still not taking anything for pain but Dulcolax X2/day and some MOM last night for a little assist. Think I may not have really been ready for that large pepperoni pizza quite yet. Sure was good though! Anyhow was getting harder to go(prolly the cheeze)...more pain with it. Still trying not to strain. Also had some leakage for the first time last night so I'm not 100% dry like I thought. Figures cause it was the first night I went back to wearing boxers as usual. At least I was on my back, noticed right away, and the bed didn't get wet. Also tried the little guy out this morning...totally dead...but dry org. and yes, more pain. Guess I'd better leave that alone for now...more healing needed. Thinking about changing my next Uro appt or going but just blowing off the PSA for a couple more weeks. I think they are testing me too soon and don't want unnecessary worry due to false high numbers. Rather play that safe. Noticed your PSA scheduled for 6 weeks post op which seems more reasonable. As you mentioned, the real issue here remains the PCa...the rest of this is just a bit of inconvenience at this point. Hang in there and feel better soon.
Age 53- PSA 2/11 3.5
4/21/11 BX Path Report: 3 of 12 Left PCa , 3+3, 3+4, 4+4
4/29/11 Received PCa DX, G-8
5/18/11 open RP Performed, Right nerve bundle spared
5/24/11 Post Op Path Report: G-7(4+3) 7%, pT3a N0M0, EPE, PNI+, SVI-, Left margin <0.1mm from inked margin
6/1/11 Cath removed - 99% Dry.

Post Edited (rcroller) : 6/6/2011 6:04:04 AM (GMT-6)


Sagittarian
Veteran Member


Date Joined May 2011
Total Posts : 546
   Posted 6/6/2011 9:00 AM (GMT -6)   
Bob:
 
Seems like we are reversing rolls for the time being.  Today
I have no leakage (so far).  I am not trying to awaken the
little one either for the time being, he is too scared and hurt.
I was feeling scared this morning.  I felt like I couldn't urinate
but wanted to.  Went for long walk, drank water, now back on
track.  Don't under estimate the walk-drink-walk-drink, that has
been mentioned to us many times.   Metamucil is working for me
, no plan on changing.  It's like "greased lighting" coming out.  We
have to remember the priority ladder, PCa, continence, sex.
Glenn-AGE-53,NJ, PSA-4.2, FPSA-7%
4/09/2011 - Biopsy, 8 NEG, 4 POS (left), 2(3+3), 2(3+4)
5/23/2011 - Da-Vinci Surgery, Right Nerves Spared, Partial Left
5/25/2011 - PATH, pT2c, 4+3, Confined, Margin-Lymph-Seminal NEG
5/31/2011 - Catheter Removed
6/01/2011 - UTI, CIPRO 500mg 2 a day for 10 Days
7/12/2011 - First Post PSA test

rcroller
Regular Member


Date Joined May 2011
Total Posts : 327
   Posted 6/6/2011 3:05 PM (GMT -6)   
You said it brother...ended up doing okay today...went to the mall and did lots of walking in the A/C...peeing pretty frequently and wearing a pad to be safe but no leaking...hopefully last night was a fluke. Still haven't called the Uro to change the next appt and PSA but probably will do it tomorrow. Hope you had a good day too.
-Bob
Age 53- PSA 2/11 3.5
4/21/11 BX Path Report: 3 of 12 Left PCa , 3+3, 3+4, 4+4
4/29/11 Received PCa DX, G-8
5/18/11 open RP Performed, Right nerve bundle spared
5/24/11 Post Op Path Report: G-7(4+3) 7%, pT3a N0M0, EPE, PNI+, SVI-, Left margin <0.1mm from inked margin
6/1/11 Cath removed - 99% Dry.

Sagittarian
Veteran Member


Date Joined May 2011
Total Posts : 546
   Posted 6/7/2011 9:57 AM (GMT -6)   
Expensive lesson.
Last night I forgot to take my metamucil.
This morning I strained a little with bowel movement
and bright red blood retuned to urine

rcroller
Regular Member


Date Joined May 2011
Total Posts : 327
   Posted 6/7/2011 10:34 AM (GMT -6)   
Sorry to hear that, Glenn. Whatever is causing the bleeding must be in a pretty delicate balance in there healing wise. Take it slow and easy today...
Got the last of the steri-strips off this morning in the shower and the incision is pretty well healed other than one small spot. Had a good night sleep last night with no sleeping meds and no leaking but still pretty sore down there and taking it easy for yet another day. Tomorrow will mark three weeks since my open surgery. Doc said I could start limited driving again and increase my lifting limitation to 10 pounds. My 84 year old father (14 year PCa survivor) had been visiting for the past two days so I have gotten out of the house but am looking forward to the new level of freedom driving myself will bring. Hang in there and take care,
-Bob
Age 53- PSA 2/11 3.5
4/21/11 BX Path Report: 3 of 12 Left PCa , 3+3, 3+4, 4+4
4/29/11 Received PCa DX, G-8
5/18/11 open RP Performed, Right nerve bundle spared
5/24/11 Post Op Path Report: G-7(4+3) 7%, pT3a N0M0, EPE, PNI+, SVI-, Left margin <0.1mm from inked margin
6/1/11 Cath removed - 99% Dry.

Sagittarian
Veteran Member


Date Joined May 2011
Total Posts : 546
   Posted 6/7/2011 11:09 AM (GMT -6)   
Bob:
Delicate balance for sure. With research it was discoverd that the
bladder neck connection is prone to injury for three months.  And is a
very sensitive area for healing.  I can vouch for that first hand.  I am trying
the best I can do to take it easy, I hate sitting around.  You would think I off
loaded a lawn mower from my truck and replaced a car battery (oops), did
I say that.  No frets, lesson learned.  I drove too soon also.  Pushing on the
brakes on the vehicle is what to watch out for, limited driving for sure.  Small
trips I was ok.  Taking daughter to airport, I started to bleed again.  Will do
nothing today.  I feel like a caged animal.  I am dry most of the time.  I give
a small squirt then go to the bathroom and urinate ok.  I put a small piece of
tissue between me and the pad.  Works great, just replace the tissue.  It works
beacause I only have small squirts.  Use one pad per day, but replace tissue about
12 times.   
Glenn-AGE-53,NJ, PSA-4.2, FPSA-7%
4/09/2011 - Biopsy, 8 NEG, 4 POS (left), 2(3+3), 2(3+4)
5/23/2011 - Da-Vinci Surgery, Right Nerves Spared, Partial Left
5/25/2011 - PATH, pT2c, 4+3, 25% cancer,Confined, Margin-Lymph-Seminal NEG
5/31/2011 - Catheter Removed
6/01/2011 - UTI, CIPRO 500mg 2 a day for 10 Days
7/12/2011 - First Post PSA test

HD_Rider
Regular Member


Date Joined Apr 2011
Total Posts : 416
   Posted 6/7/2011 12:55 PM (GMT -6)   
I haven't read a whole lot on the driving issue but have seen it mentioned a few times. What's generally acceptable as to how soon you can drive a vehicle after RALP surgery?
John (HD_Rider)
Age: 49
PSA: 3.5, 6/07
PSA: 4.5, 3/11
Biopsy, 12 cores: 04/13/11
Dx: 04/19/11
Gleason: 3 cores at 3+3=6 and one core at 3+4=7 (primarily on right side with <5% on left side)
DaVinci: scheduled for 06/09/11, hoping and praying for the best

Tim G
Veteran Member


Date Joined Jul 2006
Total Posts : 2358
   Posted 6/7/2011 1:11 PM (GMT -6)   
John (HD Rider),
 
Generally, you can drive once the catheter is removed.

Sagittarian
Veteran Member


Date Joined May 2011
Total Posts : 546
   Posted 6/7/2011 1:12 PM (GMT -6)   
John:
I have read many things reguarding driving.
Rangin from as soon as cather is out to three weeks afte surgery.
I didn't expect much on that research, since the medical community is not
in agreement for PCa itself, other than do something.
 
So from my own personal experience this is what I noticed.
I drove the day after, something felt weard down there.
The more I drove the weirder it felt, then pain, then blood.
I would wait at least a couple of days after catheter is out.
The do a very short trip to feel whats going on.  I think its
the combination of sitting too long, and pushing the gas/brake pedal

142
Forum Moderator


Date Joined Jan 2010
Total Posts : 7078
   Posted 6/7/2011 1:28 PM (GMT -6)   
For driving - I wasn't allowed to drive again until about three weeks after DaVinci (almost 4). The advisory was written in my file.
 
The discussions made to me are these:
- As long as you are taking serious pain killers, ever just once a day, you will meet the "driving under the influence" laws in a lot of states (mine included). Should you have an accident of any sort, at fault or not, very bad news.
- As long as the advisory is in your medical file, should you have an accident, even worse news.
- Sudden / emergency braking - may tear out internal sutures.
- Sudden stops / getting rear-ended - seat belt pressure on your abdomen.
- Emergency turns - torso stress - may tear out internal sutures.

rcroller
Regular Member


Date Joined May 2011
Total Posts : 327
   Posted 6/7/2011 1:31 PM (GMT -6)   
I think the three week driving restriction was more from the open surgery and the four inch midline incision at seatbelt level healing than from anything else. Also my cath was in for two full weeks and wouldn't have driven even if I could have.  Good luck John...we're all routin for ya!
 
Okay, scratch that...142's answer makes more sense.

Age 53- PSA 2/11 3.5
4/21/11 BX Path Report: 3 of 12 Left PCa , 3+3, 3+4, 4+4
4/29/11 Received PCa DX, G-8
5/18/11 open RP Performed, Right nerve bundle spared
5/24/11 Post Op Path Report: G-7(4+3) 7%, pT3a N0M0, EPE, PNI+, SVI-, Left margin <0.1mm from inked margin
6/1/11 Cath removed - 99.9% Dry.

HD_Rider
Regular Member


Date Joined Apr 2011
Total Posts : 416
   Posted 6/7/2011 1:34 PM (GMT -6)   
Thanks for the info, guys. Both my car and truck are "standard", meaning lots of clutch and brake action. I guess I will plan on leaving the vehicles parked. With my surgery scheduled for Thursday, I would expect the catheter to come out sometime late next week and I hope to go back to work on the 27th (cushy cubicle job). Hopefully that will allow enough time for healing.
John (HD_Rider)
Age: 49
PSA: 3.5, 6/07
PSA: 4.5, 3/11
Biopsy, 12 cores: 04/13/11
Dx: 04/19/11
Gleason: 3 cores at 3+3=6 and one core at 3+4=7 (primarily on right side with <5% on left side)
DaVinci: scheduled for 06/09/11, hoping and praying for the best

GTOdave
Regular Member


Date Joined Oct 2010
Total Posts : 175
   Posted 6/7/2011 3:44 PM (GMT -6)   
HD (John), I am notoriously bad at heeding doc's advise, and I drove on day 4 after robotic surgery.  My GTO is a 6 speed, with a well deserved rep for a notchy, balky shifter.  Went to the store, bought food and came home and cooked din-din.  I was stir crazy, what can I say?
 
Frankly, if I didn't think I was up to it, I wouldn't have tried.  The half-hour out and about was highly therapeutic.  Stupid, but therapeutic.
 
My point:  You can heal pretty darn well and quickly after robotic.
 
On another point, I asked my surgeon the day I had the catheter removed  if he thought my op would have turned out better had he done an open procedure.  He's done thousands of open procedure, still does, but prefers the DaVinci when it makes sense to use it.  He said that without question, the robotic procedure is superior in terms of healing, less blood loss and nerve sparing. 
 
Yup, I drove on day 4 and haven't used a pad since 2 weeks post-op.
52 yr old, PSA 3.5, Gleason 6 with 3 of 4 top nodes (0%;1%;10%;1%) cancerous. Bottom 2 floors are clean.

PSA 7/08: 2.2; 7/09: 2.9; 7/10: 4.1; 11/10: 3.5

First post-op PSA =.00! 7 weeks after operation

DaVinci surgery at Yale 3/4/11. Dr. John Coleberg THE BEST!!!

45 gram gland weight
Gl 3+3
PT2C
margins clear
no metastasis
5% of gland adenocarcinoma
New Topic Post Reply Printable Version
Forum Information
Currently it is Wednesday, September 19, 2018 3:48 AM (GMT -6)
There are a total of 3,004,537 posts in 329,153 threads.
View Active Threads


Who's Online
This forum has 161744 registered members. Please welcome our newest member, csorthofeet.
222 Guest(s), 2 Registered Member(s) are currently online.  Details
bigecase, ceebs13