I recently discovered this forum while researching penile injections. I was diagnosed last summer/fall after going in for a routine physical when I turned 50. I had an excellent urological surgeon, the best in the region if not the country. Based on the biopsy and other test results he recommended a radical prostatectomy, removing the lymph nodes and nerves as well. The radiologist that I consulted with gave me a 50/50 chance of requiring follow up radiation. I expected him to push for radiation, but he said that in my shoes he would go with the recommended surgery.
I had the surgery early December and the pathology report was excellent. It was a large tumor but completely contained. The surgery itself didn't go smoothly, I bled excessively and the procedure took 5 1/2 hours. I went into Disseminated Intravascular Coagulation, the acronym DIC is refered to as "death is coming" in the medical field. The doctor downplayed it, but he did say that it was like fighting a wild fire and my organs were oozing blood. During surgery and after I received 12 units of blood, 5 of plasma and 4 platelets. I remained in post op care for 2 days until they got my blood pressure back up over 90.
3 months after the surgery I had a whole battery of tests done on my blood and it all came back normal. The blood specialist said that it was most likely a one time event. They don't know why it happens sometimes, possibly a virus but the conditions where just right. The surgeon said he had it happen just one other time in 2002.
The catheter was left in for 3 weeks. The doctor is cautious and prefers to leave it in longer. In spite of my best efforts at taking care of it with polysporin, the tip of my penis was tender the entire time.
Other than that everything went very well. There was little pain and the incision healed up very well. Incontinence took about 3 months, it was a gradual process but I'm good now. Both PSA tests have come back undetectable.
I took care to follow orders of no physical activity for 3 months, then eased my way back into shape. I'm now back to playing hockey twice a week and feeling good. I also have more energy than I have had in a long time.
ED is the outstanding issue, which I expected since the nerves weren't spared. Friday I had my first penile injection (delayed a few long weeks because the doctor had injured himself). It's hard to relax while a nurse stands over you with a syringe in one hand and your penis in the other. It's also a somewhat odd experience to stand there while the nurse and your wife examine your erection. Fortunately she didn't use a protractor or ruler, but she thought that pointing at the door was a good first step. Looking forward to the next injection...
Glen, age 50
PSA 5.43 at June 2010 physical
Biopsy: 8 of 12 samples positive, 75% in 1 core. Gleason 7
Radical Prostatectomy Dec 3rd, 2010
Pathology: 3.5cm tumour, no capsular invasion, lymph nodes negative
PSA currently undetectable!