greetings: 6 months post surgery

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Regular Member

Date Joined Jun 2011
Total Posts : 224
   Posted 6/6/2011 12:44 PM (GMT -6)   
Hello everyone,
I recently discovered this forum while researching penile injections. I was diagnosed last summer/fall after going in for a routine physical when I turned 50. I had an excellent urological surgeon, the best in the region if not the country. Based on the biopsy and other test results he recommended a radical prostatectomy, removing the lymph nodes and nerves as well. The radiologist that I consulted with gave me a 50/50 chance of requiring follow up radiation. I expected him to push for radiation, but he said that in my shoes he would go with the recommended surgery.
I had the surgery early December and the pathology report was excellent. It was a large tumor but completely contained. The surgery itself didn't go smoothly, I bled excessively and the procedure took 5 1/2 hours. I went into Disseminated Intravascular Coagulation, the acronym DIC is refered to as "death is coming" in the medical field. The doctor downplayed it, but he did say that it was like fighting a wild fire and my organs were oozing blood. During surgery and after I received 12 units of blood, 5 of plasma and 4 platelets. I remained in post op care for 2 days until they got my blood pressure back up over 90.
3 months after the surgery I had a whole battery of tests done on my blood and it all came back normal. The blood specialist said that it was most likely a one time event. They don't know why it happens sometimes, possibly a virus but the conditions where just right. The surgeon said he had it happen just one other time in 2002.
The catheter was left in for 3 weeks. The doctor is cautious and prefers to leave it in longer. In spite of my best efforts at taking care of it with polysporin, the tip of my penis was tender the entire time.
Other than that everything went very well. There was little pain and the incision healed up very well. Incontinence took about 3 months, it was a gradual process but I'm good now. Both PSA tests have come back undetectable.
I took care to follow orders of no physical activity for 3 months, then eased my way back into shape. I'm now back to playing hockey twice a week and feeling good. I also have more energy than I have had in a long time.
ED is the outstanding issue, which I expected since the nerves weren't spared. Friday I had my first penile injection (delayed a few long weeks because the doctor had injured himself). It's hard to relax while a nurse stands over you with a syringe in one hand and your penis in the other. It's also a somewhat odd experience to stand there while the nurse and your wife examine your erection. Fortunately she didn't use a protractor or ruler, but she thought that pointing at the door was a good first step. Looking forward to the next injection...
Glen, age 50
PSA 5.43 at June 2010 physical
Biopsy: 8 of 12 samples positive, 75% in 1 core. Gleason 7
Radical Prostatectomy Dec 3rd, 2010
Pathology: 3.5cm tumour, no capsular invasion, lymph nodes negative
PSA currently undetectable!

Elite Member

Date Joined Oct 2008
Total Posts : 25355
   Posted 6/6/2011 12:59 PM (GMT -6)   
Welcome to HW, glad you found us. That is some surgery story, glad you are alright now. There are a lot of very experienced men here dealing with all the facets of ED, injections in particular.

Glad you got a couple of good post-surgery PSA numbers behind you, sounds like you are off to a good start, having your incontinence issues under control.

Hope you continue to do so well, and please keep us posted of your own particular PC journey.

David in SC
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06, 2/11 1.24, 4/11 3.81
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/10

Veteran Member

Date Joined Sep 2009
Total Posts : 639
   Posted 6/6/2011 1:20 PM (GMT -6)   


Welcome to HealingWell... your correct DIC is almost universally fatal.  Congratulation on not waking up dead!!! Good luck with the injections.  As you are aware there is no such thing as off limits in health most other setting in our civilization standing in front of another female with an erection would get you a visit by the police. Giving some thought to the situation I bet that was rather weird....


Age 51 PSA 6.8
Bxy 10 of 12 Cores positive for Gleason 6. up to 75%
Robotic surg 11-02-09
Post op path. 20% neoplasm;4+3=7 Gleason
All nodes (14) and other related tissue negative for cancer
Post op PSA x 3, all <0.01

Steve n Dallas
Veteran Member

Date Joined Mar 2008
Total Posts : 4818
   Posted 6/6/2011 1:33 PM (GMT -6)   
Hey Glen - welcome to the site tongue

Veteran Member

Date Joined Jun 2011
Total Posts : 1090
   Posted 6/6/2011 4:25 PM (GMT -6)   
Whoa, what a scary story! Very glad you recovered and joined here. What a weird cancer this is. First shots in the penis and then erections in front of another women with your wife. Theres got to be joke here somewhere, LOL. Keep us posted.
1985-age 25 diagnosed with enlarged prostate
March 2000 psa=.08
April 2002 psa = 1.4
April 2011 psa = 47.6 age 51
May 17, 2011-Prostate Biopsy
Prostate volume 97--(whoa, that is big!)
3 of 12 cores Positive
Right Medial Base: G7 (3+4) 6 mm of 15 mm
Right Medial Mid G6 (3+3) <1.0 mm of 15 mm
Right Lateral Mid G7 (3+4) 1.0 mm of 4+7 mm (2 pieces)
Bone=neg;ct=50/50 chance within capsule

Regular Member

Date Joined Jun 2011
Total Posts : 224
   Posted 6/7/2011 5:24 AM (GMT -6)   
Thanks guys. I hope I didn't scare anyone off the idea of surgery, that wasn't my intention. It was a rare occurrence and if I had to do it again I'd still choose surgery. I would have preferred the robotic surgery, but experience/skill was more impoortant to me.

The nurse was my age or a little older which made it a little easier. It probably would have been a lot harder on my male ego if it had been the young, very attractive french nurse who assisted in my biopsy.
Glen, age 50
PSA 5.43 at June 2010 physical
Biopsy: 8 of 12 samples positive, 75% in 1 core. Gleason 7
Radical Prostatectomy Dec 3rd, 2010
Pathology: 3.5cm tumour, no capsular invasion, lymph nodes negative
PSA currently undetectable!
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