AUS AMS 800 and Certain Car Seats

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tvwohio
Regular Member


Date Joined Sep 2010
Total Posts : 172
   Posted 6/6/2011 5:52 PM (GMT -6)   
I went out with my brother and his wife and my wife to dinner.  He had a brand new Honda CRX with leather seats etc.  Real nice car BUT --- when I got out of the front seat going to the restaurant and then getting out at a bar afterwards, I leaked enough that my shorts ( through underwear) had a nice spot.
 
I had AUS activated for 3 + months and no problem.   I read others had a problem getting out of a car/truck seat but this was new to me.   When I went to bathroom when I noted problem, I really didn't have allot of urine.
 
I have lifted weights, treadmill, cross trainer, stair climber and no problem.   Only time I get wet is if I don't have enough patience after I urinate and make certain I am completely done.
 
Any others have had this problem and any suggestions on avoiding this.
 
Thanks
 
Tom
Prostrate Cancer 2001 RP 50 years old PSA 6.8 Gleason 3 + 2 40% T3bNxMo moderately differentiated adenocarcinoma RP - cancer apex area, nerve sparing not successful Bulking using both collagen and teflex unsuccessful for continence. 4 sets of strictures within 1 yr after RP - 3 manual and 1 rotorotor -9/2010 stricture - suprapubic catheter folled by Homan Laser. AMS800 1/22/11. Dry 3/9/2011

knotreel
Veteran Member


Date Joined Jan 2006
Total Posts : 650
   Posted 6/9/2011 3:10 PM (GMT -6)   
Hondas use to be a little notorious for what was called "Honda seat" syndome. I experienced this on some long drives where the seat seems to become more unconfortable than it should.
I have had that experience in sitting and deactivating my AUS, but i can't make a correlation on any specific seat, yet anyway. It just happens some times I guess, maybe my panties are in a knot? I don't know. As time goes on maybe I will figure that out. One key might be anything that puts too much sitting pressure on the cuff that causes it to deflate a little. Sorta on this subject, I got a cystoscope a couple of weeks ago during my 6 month post-op follow up. Cystoscopy was for pain I had which is now almost 100% gone. Anyway, i got to see what actually happens when the thing opens. He ran the scope up to the cuff sphincter then he gave the pump a squeeze and went on through. I was a little surprised at the relative opening size. I always do one pump squeeze as he did and it only opens about 1/3 of the diameter of the urethra. However that is plently to allow me to pee a big stream. I was also surprised the see now nice a neat it looked, when closed it was squeezed to nothing very smoothly without wrinkles and same when it was open.
 
 

tallguy
Regular Member


Date Joined Oct 2009
Total Posts : 417
   Posted 6/14/2011 5:37 PM (GMT -6)   
I will get an occasional leak when sitting wrong but I can't find a pattern. I still wear a light pad because I will always get some residual drops probably because I don't give enough time for the Aus to close completely.
66 year old male
PSA jumped 3 to 8 Jan 2008
pt2b NO Mx with a Gleason score 3+3=6.
DaVinci RP, 7/23/08. Tumor type: Acinar
size 5.5 cm x 5.7 cm weight: 77 gm.
Incontinence & ED. Dry nights , no control during day.
FUDS and cystourethroscopy testing 10/09.
24 hr pad wt. 219gm. AUA sympton index 13/35=moderate
Virtue sling surgery 2/3/10 NYU med center
Appeared to help but gradually returned to pre surgery condition.
Back to 3-4 pads/day.
Latest PSA 4/1/10 negative.
AMS 800 artificial urinary sphincter implanted 7/8/10 at U of MI.
AMS 800 activated 8/25/10 Dry for first time in 2 years.
Links to my journey posts:
http://www.healingwell.com/community/default.aspx?f=35&m=1847812
http://www.healingwell.com/community/default.aspx?f=35&m=1710681
http://www.healingwell.com/community/default.aspx?f=35&m=1948599

Wigs
Regular Member


Date Joined Mar 2009
Total Posts : 89
   Posted 6/15/2011 8:19 AM (GMT -6)   
tvwohio,

I have been "activated" since July 2009. I still wear a pad daily because I do leak when I sneeze.

However, I have on six or seven occasions, accidentally "hit the button" and opened the AUS cuff and emptied. All but two of those events occurred getting in or out of a vehicle. The other two times, I was readjusting myself in a seat. The bottom line is that when sitting down, in a chair or car seat, or readjusting in a seat I have learned to take my time. All of the events happened due to the fact that I was not thinking or in a hurry.

That being said, I am thankful that I do wear a pad for the "sneezy leaks"...

Wigs
Diagnosed @ age 46 - September 1997 - PSA 5.0 / Gleason 3+3
Seed Implant - January 1998 @ Trident Hospital, SC
PSA 2.4 - July 2007 / PSA 2.7 - July 2007 / PSA 3.0 - November 2007
Diagnosed @ age 57 - December 2007 - Gleason 4+3
Salvage Prostatectomy & Colostomy - March 2008 @ MSKCC, NY
Rectal/Urethra Reconstructive Surgery – August 2008 @ Cleveland Clinic
PSA < .01 – August 2008 / PSA <.01 – October 2008 / PSA < .01 – December 2008
Colostomy Reversal @ Cleveland Clinic – January 2009
AUS implant @ Cleveland Clinic – May 2009
PSA <.01 May 2009 / PSA <.01 August 2009 / PSA <.01 December 2009
IPP implant @ Cleveland Clinic – December 2009
PSA < .03 April 2010 / PSA <.03 November 2010

Neoman
Regular Member


Date Joined Nov 2010
Total Posts : 192
   Posted 6/15/2011 8:48 AM (GMT -6)   
I have a Honda Accord, and intially had some problems sitting correctly. I did not leak per say, but felt uncomfortable. On longer trips, I learned to sit to one side so the AUS is not felt or to cause me to leak.
 
Most new cars and office chairs have this molded foam seat. I think that is the problem because it acts like a softer version of a wood seat. I am now sitting on a molded foam office chair, just like the Honda and I am aware of the pressure on the cuff.
 
I have the same issue with my wifes Mitsibishi Outlander...
 
By the way, how do you like the AMS 800. By your lead in comment, all is good!!
 
Personally, it has changed my life.. I would hate for anything to go wrong. I blogged with a guy on my Bladder Cancer blog site where after 3 years his developed a leak and no longer works.. They will have to go in and find the problem.. Always a possibility.. Hope not mine (or yours!!).
 
Chris
Bladder Cancer fall 2008, age 53
MVAC Chemo fall 2008 to Jan 2009.
RC of Bladder Feb 2009
Stage 2 high grade bladder cancer
also detected after bladder surgery high grade Prostate cancer
Had AMS 800 implanted July 2009 but surgeon nicked uretha and the cuff had to come out. Then developed infection soon after and they took it all out. Reimplanted Oct. 12 2010 after fistula/infections healed

tallguy
Regular Member


Date Joined Oct 2009
Total Posts : 417
   Posted 6/15/2011 11:07 AM (GMT -6)   
Sounds like we all have similar experience. Bottom line is that anything that puts enough pressure on the bulb can do a partial or full activation. But, it is a rare occurance for me. I get more aggrevation from the residual dribble if I don't take enough time to empty properly....just like to move fast. Once I mastered the one hand thing I step up to the urinal wip willie out with one hand...run the other hand down inside between my pants and underwear and squeeze the bulb from the outside of the underwear. Empty quickly....wait a few seconds to try and get the drops out and get on with life.
 
 The only other thing is that my "package" is still a bit more bulky. When laying in bed I need to position "the package" so it does not get caught between my legs when laying on my side or it's uncomfortable. Also, I don't wear a pad at night and get along fine even though I will still get up 2-3 times to pee. Once I feel any significant urge it will keep me awake if I don't go relive myself. This has nothing to do with the AUS. I think that since the one sphincter is gone the urine that flows down the urethera activates nerves more quickly. That may be unique to me. I have been going 2-3 times per night ever since RP. Others don't seem to have that situation. It does not bother my sleep since I doze back off immediately after jumping back in bed.
I am totally pleased and it also changed my life back to normal. Just hope the thing lasts a few years. Having it redone does not worry me all that much. After going through 3 surgeries in two years I know the recovery is not all that bad.....and, it's worth it to have a properly functioning AUS.
 
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