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houtex
New Member


Date Joined Jun 2011
Total Posts : 3
   Posted 6/9/2011 3:48 PM (GMT -6)   
I had my DaVinci robotic radical prostatectomy one year and 9 months ago. I'm now usually going through a pad a day for leakage and still have ED. The doctor I chose is at the Houston Medical Center , Dr. Miles who is the Head of the Davinci Robotic Arm department. He had performed over two thousand Davinci Prostate surgeries (he also trains ALL Houston, Texas doctors who will use Davinci) so I was completely confident in my choice.

He removed the Prostate and also hung the bladder during the procedure. I was extremely pleased with the operation. I also went home with a JP (jackson-pratt) fluid collection bag as well as my urinary catheter for several weeks. At the time I was supposed to be down to very few centimeters with the JP, I was easily doing 800-1000 cc's a day! I had the catheter removed in about two weeks only to have it block up again in two days and spent another three weeks with it. A few weeks later the doctor removed the JP and said "ya can't wear it forever" and assured me my body would take care of making it stop and it finally did a few days later.

At that time I was happy the JP was gone, but the urine output was massive! I was wearing Depend underwear WITH the largest pad I could find and throughout the workday I was going through at least 6-7 of them, one about every hour and the same when I got home. I explained this to the doctor time and time again but he seemed to just blow it off. After a few months I finally told him this can't be a regular issue. I told him that I was using near a dozen pads a day and he told me that nobody can pee that much. He asked me when the last time was I changed and I told him about 15 minutes. He wanted to examine my underwear so I pulled them down and he could also see that I was using a paper towel (to make the pads last longer between changes) along with the pad AND the Depends. He said he had never seen that before. Well, duh....I have told him about the flow for at least the last five visits to his office. He FINALLY gave me a name for a Therapist.

I went to the Therapist and she was wonderful. She explained how she felt this could be fixed by doing very simple three minute exercises with a ball and elastic band twice a day and that I would see a big improvement within the sixth day. It actually worked too. This improved greatly within about a six week period, but I kept doing the exercises for a year! That is what changed the worse part of my life for the better. Here is the link for more info : http://www.phoenixcoresolutions.com/store5/merchant.mvc?Screen=PROD&Store_Code=phoenixpub&Product_Code=4011-01&Category_Code=PersonalProducts .

I have told older people about this home procedure for their incontinence problems and a few of my friends have ordered the ball and strap and have had great results too.

Well, a year and nine months later I am down to a pad a day, I do have to still be careful of many diuretic foods which seem to be 90% of food! Some spices still nail me also. When I eat some fruit such as watermelon I will be heading to the john every 15 minutes for anywhere from 3 - 4 hours until it stops. I still wear Depends to bed to play it safe.

I just went to another doctor and yesterday had a CT Scan of the abdominal to see if my kidneys or adrenal gland may have a tumor. If not there is supposedly medication available to help. The main reason is that I am losing a lot of Potassium and it's not in the urine. In fact the Potassium is running just below "normal" rage at 3.3 instead of 4-5 points and that has caused me to go into Afib. I am taking THREE potassium horse pills in the morning AND three more at night. Hopefully the CT Scan will show something, if not I guess it will have to be the meds. The doctor(s) are possibly recommending Aldactone or Inspra. Will find out soon I'm sure.

The ED? Well, I have personally put that on the back burner for now. I think the heart is a tad more important at this time anyway. I am happy that my wife who does a LOT of research on these matters has supported me through all of this. Kind of interesting....one day at one of my appointments a few months back while in the waiting room another patient who appeared very frustrated told me "I'm not sure wihat is most important.....the quality or the quantity of life" regarding his upcoming prostatectomy. Realistically, that's a thing to think about I guess.

Good luck to all and to all a good night
turn Bruce

Post Edited (houtex) : 6/9/2011 4:50:12 PM (GMT-6)


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 6/9/2011 4:49 PM (GMT -6)   
welcome aboard, bruce, glad you found your way here.

sounds like you have had a pretty hairy pc journey yourself, in particular, your incontinence issues. glad its being resolved.

please stick with us and keep us posted.

david in sc
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06, 2/11 1.24, 4/11 3.81
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/10

keysailfisher
Regular Member


Date Joined Dec 2009
Total Posts : 346
   Posted 6/9/2011 6:17 PM (GMT -6)   
I thought first time posters could not post links?

James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 6/9/2011 6:32 PM (GMT -6)   
Welcome to the forum, sounds like you have had a run of it.

Keysailfisher, that rules isnfornpeople who pop on her , not sharing their history and pushing some commercial or otherwise suspect site. This poster kindly gave us a good detailed, long history of his journey and I don,t think this applies to him. Good to see ya posting again, by the way..lol
James C, 64, East TN
Gonna Make Myself A Better Man tinyurl.com/28e8qcg
4/07: PSA 7.6, 7/07 Biopsy: 3 of 16 PCa, 5% inv, lf. lobe, GS6
9/07: Nerve Spar. open RP, Path: pT2c, 110 gms., clear except:
Prob. microscopic inv.-left apical margin -GS6
3 Years: PSA's .04 each test until 4/10-.06, 9/10-.09, 12/10-.09, 2/11-.08, 5/11-.08
Bimix .30

keysailfisher
Regular Member


Date Joined Dec 2009
Total Posts : 346
   Posted 6/9/2011 6:40 PM (GMT -6)   
That's fine just checking. I've returned to being a lurker. I'm here reading the posts every night checking on you guys. :)

houtex
New Member


Date Joined Jun 2011
Total Posts : 3
   Posted 6/11/2011 5:27 AM (GMT -6)   
Hi James and keyailfisher....the link I submitted was not a "plug" for any business. I was so impressed with the "tools" that were so simple to use and the results of the simple 3 minute exercises were a blessing. A 95 year old could do the exercises sitting in a recliner. I sent the link to two of my coworkers when I was working and they used it for "old age" incontinence and they too found it a blessing. I'm sure you know of friends/relatives who would enjoy a normal urinary control again :-)
Bruce

keysailfisher
Regular Member


Date Joined Dec 2009
Total Posts : 346
   Posted 6/11/2011 8:39 AM (GMT -6)   
That's ok it's that we get alot of trash on here sometimes. I apologize for jumping the gun. Welcome aboard and goes well for you.
 
 
Neal
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