Thanks for taking the time to respond so professionally. You asked a lot of good questions. I'm not sure where to begin. This topic makes my blood boil. So here it goes.
My cousin's husband died from prostate cancer last year. We watched the effect chemo had on his body. My cousin was recently dx with Stage 3 breast cancer. The more we read about
Tamoxifen, the more our family is convinced that this may not be the best route to take.
The 50% vs. 1% benefit given for Tamoxifen is the difference between a relative statistic (e.g. 1% is 50% of 2%) and an absolute (the actual difference, or 1 vs. 2) statistic. And what's sad is that drug companies always express a drug's benefit in relative terms, which is merely the relationship between outcomes -- not the bottom line difference.
Last week's "exciting" headlines about
Aromasin showing a 65% benefit in preventing first time breast cancer is a classic example of this very misleading numbers game. The absolute difference was something like 1.5 recurrences per 100 women in the non-Aromasin group to .5 in group taking Aromasin -- a difference of less than one per 100.
To be honest, I don't think doctors understand this.
The Burynski video really
opened my eyes. I am deeply disturbed and angry that a few powerful people can prevent us from having the medicine we need. I am so glad the film put together the facts for the world to see. Watching the video also confirmed to me that my cousin is on the right track in the choice she is making.
What makes me angry is that my cousin discovered the lump herself. When she went to have it checked out, her GP totally ignored her concerns. Thank God she was determined to get a proper examination. Many women would have just listened to their doctors. Two doctors and 3 months later, finally someone had the heart to take her seriously and it was discovered that she indeed had breast cancer.
At the age of 41yrs, I asked my GP if I could have my first mammogram. She did everything in her power to convince me that having this test was a waste of time. That's not true! I fired her on the spot.
When I speak to other women my age and read the posts on breast cancer forums, I realize that all that "examine your breast every month" talk is just talk. It's difficult to get doctors to be proactive and take an interest in our health. They are typically arrogant and rude. Obviously, the medical system is designed to keep the general public dumb and sick.
Also, I'm not a fan of drug companies. I'm just tired of reading about
pharmaceutical researchers faking research. Just recently, Dr. Scott Reuben, a former member of Pfizer's speakers' bureau, has agreed to plead guilty to faking dozens of research studies that were published in medical journals. It's being called the largest research fraud in medical history.
Reuben was considered a prolific and influential researcher in pain management, and his purported findings altered the way millions of patients are treated for pain during and after orthopedic surgeries but it was all a fraud some of the drugs were that of Celebrex and Lyrica that were frauds and can be actually dangerous.
Personally, I have had MS for the past 15 years. I was put on two interferon medications, Avonex and Rebif. They nearly crippled me. I did my own research and found that my neuro was not that up to date on ALL the "research" that's out there. To make a long story short, I got help from a naturopath who specializes in MS and I did my own research, looking for science based 'natural' treaments that agree with the human body.
Four months later, my health was restored. I have never felt or looked better. If I simply listened to my neuro, like a nice passive patient, I probably would be stuck in a wheelchair.
Other countries around the world use both alternative and complementry medicines to help heal the sick. That's including cancer patients. But, western medicine insists on living in the dark ages. Sales from drugs is more important than human life, it seems.
The FDA depends heavily on funding from the pharmaceutical industry. Also, 80% of research is done by drug companies. That's why drug companies get away with selling drugs that have a shopping list of side efftects.
So, why am I posting this? What's my motive? Reading this thread, I can see that these guys don't really understand how the cancer buisinss operates. Also, I think a certain demographic of people honestly believe that the doctors, the FDA and Big Pharma are the good guys. Anything that questions the drug lord's shady ways or a perspective that is not aligned with "modern" medicine is automatically labelled spam or quackery. Where did this brain washing come from? My guess is that's what their doctors' told them.
Doctors say misleading things to ensure that patients don't think for themselves. I'll never for what my doctor said about
vitamin D. "It doesn't matter what your levels. I don't why you want to know. Vitamin D is just a fad. In a few months the hype will be over."
Since cancer, heart disease, autoimmune disorders and diabetes are ridiculously profitable, the FDA specifically hunts down companies and doctors that offer natural ways to stop disease. No supplements is allowed to make these claims. Meanwhile, several studies have proven that vitamin D prevents, among others, osteoporosis, depression, multiple sclerosis, prostate cancer, breast cancer, and even effects diabetes.
Vitamin D is perhaps the single most underrated nutrient in the world of nutrition. That's probably because it's free: your body makes it when sunlight touches your skin. Drug companies can't sell you sunlight, so there's no promotion of its health benefits. So the average Joe and Jane doesn't know how important it is to maintain high levels of vitamin D in their system. My doctor certainly never told me. Where are those 'awareness campaigns'. The Foundations are only interested in fundraising. With all that money raised, let's be real, the cure for cancer should have been found by now.
Furthermore, modern doctors, medical researchers, drug company executives, and FDA bureaucrats think they've conquered nature. When doctors train for four years, they basically study some anatomy and physiology and then, for sure, drugs, surgery, radiation, and chemotherapy. They learn how to diagnose diseases and think of them all as being chemical disorders that can be treated through pharmacology and prescript
ion drugs. The drug companies practically run many of these medical schools. So, what passes as organized or scientific medicine is actually whatever they say it is. Who do you think runs these watch dog sites? Anyone who uses those sites to make decisions is missing out on tons of information that could possibly extend and /or improve their life.
Certainly, those of living with life theatening diseases, have to be cautious. Do your research. Everyone is trying to make money off of us. Therefore, I believe we should have the right to ask questions and question authority, while respecting other's choices and opinions.
Post Edited (KathyWithMS) : 6/14/2011 3:48:34 PM (GMT-6)