Listing of Hormone Therapy Side Effects

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Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 6/11/2011 9:19 PM (GMT -6)   

Here is a list of side effects contributed to hormone therapy.  Of course, some men get few of these, others more.  Some are less serious, some more so.  Would be curious among our HT men, how many on this list have been experienced first hand:

(Source:  http://www.hypertext.org/ENGLISH/HB.html)

 

SIDE EFFECTS

The side effects of hormone blockade are the same for local and advanced cancers. Some of these may appear early on while others may only appear after a year or more of treatment.

LIST OF SIDE EFFECTS

alcohol intolerance (with Casodex and Eulexin)
anemia
anxiety or depression
arthritic symptoms
appetite loss
blood in urine
breasts, swelling of
(gynecomastia—see below)
cholesterol and triglycerides increase
constipation
diarrhea
(with Eulexin)
disturbed sleep
drowsiness
dry mouth
emotional instability
(especially crying)
feet or lower legs, swelling of
(peripheral edema)
flatulence
flu syndrome
hair change
(decrease in pubic and axillary hair; facial hair grows more slowly)
headache
high blood pressure
(hypertension)
hot flashes
hyperglycemia
(high blood sugar)
impotence
(during the period of treatment and for some months after)
indigestion
itching
insomnia
liver problems
memory loss
methemoglobinemia
(a crystalization in the blood)
nausea
nocturia
(need to urinate frequently at night)
nervous and twitchy legs
osteoporosis
pain: abdominal, back, chest, in right side
pressure: feeling of extreme pressure in head
prickling sensation on the skin
shortness of breath
testicular soreness; atrophy
(shrinking)
sweating
weight gain
(may continue for a while after treatment)
weight loss

The following symptoms may reflect serious problems.
Contact your doctor immediately.

abdominal pain*
anorexia* (persistent appetite loss)
bluish lips, fingernails, or palms of hands
dark urine (may reflect hyper bilirubinuria)*
dizziness (extreme) or fainting
fatigue, weakness
flu-like symptoms*
infections
itching, severe (pruritus)*
nausea*
numbness, coldness, or tingling of hands or feet
pain: bone, joints, pelvic
rash
tenderness on the right side of the upper abdomen*
urinary incontinence
urinary tract infection
vomiting*
weak and fast heartbeat
yellow eyes or skin*

* These may indicate liver-function problems. See liver problems, below

Post Edited (Purgatory) : 6/11/2011 8:22:48 PM (GMT-6)


BB_Fan
Veteran Member


Date Joined Jan 2010
Total Posts : 1011
   Posted 6/11/2011 9:48 PM (GMT -6)   
Dave I have already provided you with the details of my HT experience in at least one and possibly several previous threads. I will summarize again. SE's annoying but acceptable for me. Results of HT very good. PSA went to < .01 right away and stayed undetectable for the term of the HT. Going on vacation now. Looking forward to a long remission. Hope this is helpful. BB
Dx Dec 2008 at 56, PSA 3.4
Biopsy: T1c, Geason 7 (3+4)
Robotic RP March 2009
Path Report: T2c, G8, organ confined, neg margins, lymph nodes - tumor vol 9%
PSA's < .01, .01, .07, .28, .50. ADT 3 5/10. IMRT 7/10.
PSA's post HT/SRT .01, < .01
End ADT3 5/11 PSA < .01

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 6/11/2011 10:01 PM (GMT -6)   
BB,

Still an impressive least of potential side effects. Will be discussing this with my Onologist. Some on this list surprised me, others, guys here talk about all the time. Definitely a lot of potential QOL issues to consider. All part of my gathering of information process as I contemplate my future.

You said "going on vacation", do you mean a literal vacation, i.e. trip, or a HT vacation?

David
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06, 2/11 1.24, 4/11 3.81
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/10

compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7270
   Posted 6/11/2011 10:12 PM (GMT -6)   
David:
 
Over the years I've researched various medications and many of them have numerous bad SE listings.
 
BUT, it seems with most medications, the typical patient will have no SE or the SE will dissipate over time or they could switch to a similar medication and avoid the SE.
 
The d&&& problem with HT is that the alternatives have the same SE profiles (eg: Lupron vs. Eligard) and the patient is just about guaranteed to get many of these very serious and disabling SE. Of course, the degree varies. I have read a few times in another group that a few patients had serious depression issues with Lupron but when they switched to Eligard the depression was greatly improved. So I guess there are some subtle differences between them.
 
I know this is your thread, but it might be useful to have folks rate the severity of their SE, say from 1(very mild) to 5 (very severe/disabling). For example, I know hot flashes is an extremely common SE (80%?). But some might get it at night for 30 seconds whereas others have it much worse.
 
Just a suggestion.
 
Mel

kbota
Regular Member


Date Joined Aug 2010
Total Posts : 487
   Posted 6/11/2011 10:27 PM (GMT -6)   
I'm not for sure how many of my current SE are to be blamed on the HT, and how many of them are just because I'm weird, but from David's list, the worst is the hot flashes.

Occasional depression, but a certain amount of this goes along with simply having cancer don't you think?

Increase in arthritis symptoms. Especially in hands and feet...go figure.
Dry mouth
Flatulence. Could be caused by a much higher % of vege's in diet.
Occasional indigestion. Doesn't everyone have this?
Headaches. This one worries me
Shortness of breath okay....I'm not 19 any more.
Weight gain. I'm hungry right after eating.

These are the ones i've noticed over the last few months. Hopefully they don't get any worse.

K
Age 57 at Dx
5/09 PSA 2.26
6/10 PSA 3.07 FPSA 18% DRE +
Biopsy, 7 of 18+, >60%, 4+5=9
7/21/2010 - RRP
Nodes & Ves neg
tumor contained, still 4+5=9
pni ext.
9/3/10 - 0.04 99% continent
10/14/10, 0.04, and lupron #1, 99.9% continent
Total ED, implant on 12/15/10
2/11 - 0.04, HT #2
6/11 - 0. , HT #3

Casey59
Veteran Member


Date Joined Sep 2009
Total Posts : 3172
   Posted 6/11/2011 10:37 PM (GMT -6)   
Side effects of Ibuprofen:
 
Anxiety
constipation
diarrhea
dizziness
drowsiness
headache
indigestion
infection
nausea
nervousness
sleeplessness
stomach pain
swelling
tiredness
upset stomach
vomiting
weakness
Severe allergic reactions (rash; hives; itching
difficulty breathing
tightness in the chest
swelling of the mouth, face, lips, or tongue)
black, tarry, or bloody stools
blurred vision or other eye problems
chest pain
dark urine
fainting
fast or irregular heartbeat
fever
flu-like symptoms
increased or decreased urination
irregular or difficult breathing
mental or mood changes
red, swollen, blistered, or peeling skin
severe or persistent dizziness
severe or persistent nausea or stomach pain
shortness of breath
slurred speech
stiff neck
swelling of the arms or legs
unusual tiredness or weakness
unusual weight gain
vomit that looks like coffee grounds       gross!
yellowing of the skin or eyes

Casey59
Veteran Member


Date Joined Sep 2009
Total Posts : 3172
   Posted 6/11/2011 10:38 PM (GMT -6)   
Did I accidently leave off that these are only the "possible" side effects of Ibuprofen...?

compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7270
   Posted 6/11/2011 10:43 PM (GMT -6)   
Casey:
 
You have underscored my point regarding the SE for many drugs.
 
BUT, when you read the drug analyses discussing these SE, you may find 1% or 2% of folks have certain SE and the percentages go down from there to the less frequent SE.
 
Too bad that's not true for HT!
 
Mel

Casey59
Veteran Member


Date Joined Sep 2009
Total Posts : 3172
   Posted 6/11/2011 10:53 PM (GMT -6)   

I think you get the point....

 

Here's the site the oncologist gave us to look up my wife's chemo: chemocare.com

Since there is no one drug called "HT", one needs to look up specific drugs. Here's what the site lists for Lupron:

Lupron Depot Side Effects:

Important things to remember about Lupron Depot side effects:

Most people do not experience all of the Lupron Depot side effects listed.
Lupron Depot side effects are often predictable in terms of their onset and duration.
Lupron Depot side effects are almost always reversible and will go away after treatment is complete.
There are many options to help minimize or prevent Lupron Depot side effects.
There is no relationship between the presence or severity of Lupron Depot side effects and the effectiveness of Lupron Depot.
 

The following Lupron Depot side effects are common (occurring in greater than 30%) for patients taking Lupron Depot:

Hot flashes
Decreased libido (loss of interest in sex)
Impotence (inability to obtain or sustain an erection)
 

These Lupron Depot side effects are less common side effects (occurring in about 10-29%) of patients receiving Lupron Depot:

Increased bone pain or urinary retention due to disease "flare" during first couple weeks of treatment.
Breast pain (see sexuality)
Discomfort at injection site
Blood test abnormalities - increased cholesterol levels
Swelling of feet or ankles (edema)
Weakness -general loss of strength
Swelling of the breasts (gynecomastia) (see sexuality)
Depression
Sweating

Lupron Depot may cause short-term (within first 2 weeks of treatment) increases in testosterone serum levels. When this is used for prostate cancer the resulting "tumor flare" can cause temporary increase of bone pain, swelling of the prostate that blocks urine flow or swelling around tumor in the spine causing compression of the spinal cord. If you are noticing increased weakness, numbness or tingling in arms or legs, or difficulty with urination, report these symptoms to your health care provider immediately.

Rare but significant side effects may include heart problems such as congestive heart failure (1%) or problems with blood clots (1%). Blood clots can lead to pulmonary embolus or stroke - potentially life-threatening conditions.

Not all Lupron Depot side effects are listed above. Some that are rare (occurring in less than 10% of patients) are not listed here. However, you should always inform your health care provider if you experience any unusual symptoms.

dkob131
Regular Member


Date Joined Apr 2008
Total Posts : 364
   Posted 6/11/2011 11:00 PM (GMT -6)   
David:
  My SE's have been in order of irritation:
1. Hot flashes and I mean really really hot flashes.
2. Weight gain of 5 lbs. over 22 months
 
Those have been my biggest issues to date, as I've said before I believe attitude matters.  I knew that at some point I'd probably have to do HT wheter it be shooting for a cure or later just trying to survive.  I gladly chose the opportunity to have a shot at a cure. 
 
David
 
 
 

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 6/11/2011 11:45 PM (GMT -6)   
Casey, once again, you target my thread with a cheap shot, no one cares about the side effects of Advil. I hear both doctors and patients downplaying the potential side effects of Hormone Therapy, just like RO's downplay radiation problems, and even surgeons about prostate surgery.

It's a shame you just have to keep stabbing away at things, its not very useful or productive. Several men here are considering HT at some point, and I thought it was a very thorough and useful list. You instead, just mock it.

David in SC
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06, 2/11 1.24, 4/11 3.81
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/10

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 6/11/2011 11:49 PM (GMT -6)   
For you HT guys that have responded, I appreciate your responses. Once again, a thread of mine is getting hijacked by a know it all. My new doctor is concerned about piling on more fatigue onto someone that is already battling severe chronic fatigue. The therapists at my Oncology Rehab Center said that mine is some of the worse they have encountered, but they are working closely with me.

david
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06, 2/11 1.24, 4/11 3.81
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/10

kbota
Regular Member


Date Joined Aug 2010
Total Posts : 487
   Posted 6/12/2011 12:25 AM (GMT -6)   
David, you are welcome to ask me any question you want. Via this forum, via email, or you can call me if you would like. I have free nationwide phone service, so if it helps, email your phone number, and I will call you.

HT is a serious decision that I wrestled with for over a month with a ton of conflicting data and emotions.

Let me know if I can help. You can get my phone nr from Jeff or Sonny, or Goodlife.

K

Steve n Dallas
Veteran Member


Date Joined Mar 2008
Total Posts : 4849
   Posted 6/12/2011 5:03 AM (GMT -6)   
Purgatory - this is an open to the Public forum. You know how it works. When someone starts a thread others will post what they think is or might be relevant.
 
In my opinion, Casey's point is extremely valid. It addresses the standard world wide concept of letting your doctor know about all the medication you're taking.

JNF
Veteran Member


Date Joined Dec 2010
Total Posts : 3887
   Posted 6/12/2011 6:23 AM (GMT -6)   
My oncologist says if a medication or procedure doesn't induce side effects then it is not working. The question is, are the potential and, most importantly, the actual realized side effects worth experiencing to gain the benefits of the treatment?

As I remember drug manufacturers must list all side effects reported by 1% of the participants in the study. As has been noted above the actual experiences are then reported by the percentage of participants that experienced a given side effect. No one should imply or claim or fear that all the side effects will be experienced in the most debilitating way. If that had been the observed experience the drug never would be approved for use. That around the world in more than one hundred countries many tens and perhaps hundreds of thousands of men are currently using ADT medications is indicative that the advantages outweigh the side effects and that these countries have recognized and approved for usage.

I have been on Eligard and Jalyn (Avodart and Flomax) for 9 months. The negative side effects I have experienced have been limited to hot flashes and weight gain.
The hot flashes at first came on 10 to 20 times a day and would get my attention. I would open a window in the car or use a magazine to fan myself in the office. It would last 30-60 seconds and be done. Never any sweat. After about 4 months I got fewer during the day and more frequently at night. In one period of anout 6 weeks I was waking 3-5 times each night to either remove the bedcovers or to put them back on. But now that has subsided. Throughout I have found that the flashes have greatly subsided as they are not as sudden and sharp as they had been. I believe my avoidance of caffene and more exercise has diminished the effect. They are no big deal and now hardly noticed.

I have experienced the weight gain as my appetite has increased. I am counteracting it with diet and exercise per Snuffy Meyers advice. I initially lost 15 pounds anticipating the gain, then experienced a 20 pound gain, and in the last 4 weeks have lost 5 pounds. Thus I am at my pretretment weight. I will lose 20 ponds in the next six mnths with diet and exercise to put me at a preferred weight.

I have experienced some body hair loss which was fine as I didn't like the hairy back. Many people have commented that my hair looks fuller. The Jalyn has reduced my blood pressure and I pee wonderfully.

The longer term side effects I am concerned about are the potential cornary, diabetes, and osteoporosis risk. Thus the weight control, cardio, and strangthening exercise I am doing. I have not experienced nor fear depression from ADT. I have enough other problems that I am sure they will be more likely to bring it on. Again positive activity and diet can do wonders for depression from ADT or other causes.

David I have great respect and empathy for you and your experiences. You have been through so much and I can understand your reluctance to take on more assaults. My wife has been in a similar situation. 15 years ago she had breast cancer and had to do the whole nine yards of treatment. Fear of never seeing grandchildren drove her to a cure and endured the assault. Last July a different cancer in the same breast was found. This time more surgery, more chemo, more radiation, and now more HT, and just two weeks ago more surgery. The fact she now has 4 grandchildren and three more due this year is driving her to overcome the often dibilitating and always nagging side effects. When I see what my beautiful wife has endured I don't have a gripe about what I have been through

I have been discussing your situation with her over breakfast and she she says "Tell David that the cancer will kill me and probably pretty quickly if I don't do anything to slow it down. The side effects are lousy, but I am enduring them and finding ways to diminish them. My family, and friends, and the good parts of life are worth enduring the bad parts, thus I will treat and endure for as long as possible. But I know at some point enough will be enough and I will find peace and rest. But not just yet." That is what keeps my wife Lee going, that is what keeps me going.

Facts are facts, but often emotions are stronger. The fact is the HT will help you live longer. You know that, I know that, your old doctors and your new doctor knows that. No argument. But you and Peggy and those around you, with some help from the lord, are the only ones that will find ways to help you live as well as posssible regardless of treatment choices.

Best wishes,

Jack
PSA 59 on 8-26-2010 age 60. Biopsy 9-8-2010 12/12 positive, 20-80% involved, PNI in 3 cores, G 3+3,3+4,and 4+3=G7, T2b.
Eligard shot and daily Jalyn started on 10-7-2010.
IMRT to prostate and lymph nodes 25 fractions started on 11-8-2010
HDR Brachytherapy December 6 and 13-2010.
PSA <.1 and T 23 on 2-3-2011.
PSA <.1 on 4-7-2011
Second Eligard shot on 4-7-2011

leeanglo
Regular Member


Date Joined Dec 2010
Total Posts : 191
   Posted 6/12/2011 6:25 AM (GMT -6)   
ive been receiving zoladex and cosadex 50mg for, i think ,8 months so theres another side effect......my memory is not as sharp as it was before starting treatment ! Ive lost all libido but can get and maintain an errection.Ive had Hot flushes that are not pleasent but do not last too long (approx 2 mins)I have had as many as 25 in a 24 hour period and as little as 2 in the same period.Ive lost muscle mass and gained some belly fat,but ive maintained my weight by addressing my diet.I am much less tolerent to alcohol.Worst side effect and the scariest for me was the day my chest became sore when i was running on a treadmill and my right nipple began to bleed !!!! soreness was gone within 2 days and my breasts did not grow.If i might note just one possitive se it is that i am so much more relaxed and never get stressed any more.I would also add that since i initially took cosadex i started to feel discomfort in my spine and that as never completely gone away.I also have tingling and minor numbness in my legs sometimes which was never apparent before having adt.As i have bone mets i suppose im experiencing some sort of compression and i think maybe its time to speak to the urologist about radiating.Does anyone know if it is beneficial to radiate sooner rather than later ??

psa on dx 144, gleason 4+3 7 12 biopsie cores cancerous
T3a N2 M1.
psa after 3 months zoladex 20
T levels 0.5 after 3 months zoladex.
now taking 50mg cosadex daily also.

Casey59
Veteran Member


Date Joined Sep 2009
Total Posts : 3172
   Posted 6/12/2011 8:08 AM (GMT -6)   
Steve n Dallas said...
In my opinion, Casey's point is extremely valid. It addresses the standard world wide concept of letting your doctor know about all the medication you're taking.
Actually, the point is that if you look at the list of possible (sorry, I "cropped out" this word in the original posting...possibly intentionally) side effects, you would never even take Ibuprofen...   I don't want to live my life vomiting stuff that looks like coffee grounds  gross!
 
The big picture, however, is that for treating pain and for treating advanced prostate cancer, ibuprofen and hormone therapies (respectively) do more good than harm.
 
 
 
Purgatory said...
 I hear both doctors and patients downplaying the potential side effects of Hormone Therapy...
With everyone saying the same thing, I'd be v-e-r-y concerned about a conspiracy...
 
 


BB_Fan
Veteran Member


Date Joined Jan 2010
Total Posts : 1011
   Posted 6/12/2011 8:11 AM (GMT -6)   
Dave, I am starting both an HT vacation and a regular vacation, a week on the Maine coast. Mount Desert Island is fabulous. Great hiking, biking, wonderful seafood, and views. I am also easing into retirement, going to a 2 day work week after I return from vacation. I am very excited to have more free time this summer.
 
I had one year of ADT3 and the normal side effects; hot flashes, weight gain, loss of libido. My most significant side effect was loss of muscle mass in my legs. I also had some very minor breast tenderness and swelling. A good medical oncologist can significantly reduce SE's. I had breast radiation in advance of HT, a drug is also available. I used a estrogen patch for bone loss and hot flashes. Took vit D also for bone health. Diet and excercise for cardo risk and diabetes. And weight training to maintain muscle mass. Needless to say I let my weight training go.
 
I think that the most important thing that you can do is having a positive attitude going into HT. I think that this is easier to do if you know the term will be shorter. It would be tough if you knew you were going in for 3 years of the remainder of your life (as would be the case if you waited until you had mets to bone).
 
The analysis you seem to be doing here is QOL with and without HT, which of course is important. But you must also add into the the equation how long you will be able to maintain that QOL verses the risk of earlier onset of bone mets and a potentially shorter life span.
 
I have not the significant treatment issues that you have had to deal with. No one should have to through what you did. I am however very much at high risk like you. I failed RP within 12 months. PSA went from .07 to .5 in less than six months. I found that the early agressive use of HTwith SRT was found to be most effective with high risk men. That's why I jumped into it.
 
I hope this information helps you with your decision process. BB
Dx Dec 2008 at 56, PSA 3.4
Biopsy: T1c, Geason 7 (3+4)
Robotic RP March 2009
Path Report: T2c, G8, organ confined, neg margins, lymph nodes - tumor vol 9%
PSA's < .01, .01, .07, .28, .50. ADT 3 5/10. IMRT 7/10.
PSA's post HT/SRT .01, < .01
End ADT3 5/11 PSA < .01

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 6/12/2011 8:53 AM (GMT -6)   
thanks, bb, that was a good answer
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06, 2/11 1.24, 4/11 3.81
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/10

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 6/12/2011 8:56 AM (GMT -6)   
TO ANY MODERATOR:

I would like you to ready Casey59's posts to my thread. He is being rude and condenscending as usual, mocking the thread and its purpose, and his last post is a direct slur agasint me.

I thought this listing wouild be useful, not only to me, but to any guy on HT or contemplating HT.

His bringing up the side effects of Advil served no purpose other than to mock me. His last remark just ridicules me personally.

Thank you

David in SC
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06, 2/11 1.24, 4/11 3.81
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/10

Steve n Dallas
Veteran Member


Date Joined Mar 2008
Total Posts : 4849
   Posted 6/12/2011 9:41 AM (GMT -6)   
TO ALL MEMBERS NAMED PURGATORY
 
Don’t you have another thread where several members wrongly GUESSED what your intentions were regarding your choice of material to post? 
 
I backed you in that thread when I stated: “Guessing at people’s intentions for their choice of paragraphs is also frowned upon.”
 
Now its being aimed right back to YOU. Unless you can provide a link to a creditable source – you’re only guessing what his intentions are.
 
I also pointed out earlier in this thread that his point about “side effects” is valid. Didn’t you notice the similarities?
 
You’ve seen here many times to NOT take matters into your own hands. If you feel someone’s post violates the rules of the site – use the REPORT button.
 
If you would like – we can lock this thread and you can attempt to start over. But as I’ve mentioned, this site is open to the Public.

duke68
Regular Member


Date Joined Mar 2007
Total Posts : 243
   Posted 6/12/2011 9:59 AM (GMT -6)   
Hi David

This is my second 6th month cab.

no hot flashes ??

Fatigue

weight gain

memory and emotions

very mild edema lower legs

dry skin

these are the ones that come to mind :)

I adjusted to them up to a point so they didn't interfere with day to day life.

Thats it.

best wishes

Gerry
age at diag 68 Oct 2006 G8 T2b psa 11.7
4 of 8 cores 20% 30% 60% 100%
rrp Dec 2006 G9 4+5 m+ sv+ ece after 6 weeks psa 0.6 second opinion Dana-Farber pT3b 4+4 + T5 = G9
3/2007 ADT2 6 months lupron + casodex
4/2007 SRt 35 sessions to lymph nodes and prostrate. Psa <0.1 from June 2007 to March 2010
Psa 6/10 0.3 9/10 0.6 12/10 2.5 :(
Dana- Farber Phase 2 trial Avastin ADT2
6 months all psa <0.05

dkob131
Regular Member


Date Joined Apr 2008
Total Posts : 364
   Posted 6/12/2011 11:02 AM (GMT -6)   
Duke:  Great response on the Avastain trial.  If you have a chance keep us informed of your progress.  I'm sure the ADT2 doesn't hurt the PSA drop either.
 
Good luck
 
David

zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 6/12/2011 12:27 PM (GMT -6)   
Bro Purg- do you know the name behind the source you quoted, about these side effects?

Dave7
Regular Member


Date Joined Jul 2006
Total Posts : 202
   Posted 6/12/2011 12:35 PM (GMT -6)   
FWIW, Casey's posts were helpful to me. My initial reaction to the side effects of HT was, wow, that's a lot of SE's.

Casey's post with the published side effects of Ibuprofen provided perspective for me. Not saying there aren't serious potential side effects to HT, but the manufacturers publish everything remotely possible for liability purposes.
Age:54
PSA 5/22/06: 5.6
DaVinci surgery: 9/14/06
Gleason: 3+3
Organ confined, clean margins.
Both nerve bundles spared.
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