Welcome SmileyIrish1 who has a question.

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BillyMac
Veteran Member


Date Joined Feb 2008
Total Posts : 1858
   Posted 6/11/2011 11:15 PM (GMT -6)   
A new member "SmileyIrish1" has just joined us looking for help and has a question which she posted in an existing thread (where it may be missed):

"I am new to chat boards. My husband was diagnosed 3/1/11 with advanced prostate cancer. Up till the day before diagnosis he was a very active volunteer firefighter. He retired in 2003 and has been very active. Now we feel consumed by the unknows and poor coordination of care . He had a PSA of 1.0 last June 2010 and started with pelvis and hip pain 2/2010, had a bone scan first and showed innumerable lesions to his skeletal system. The CT showed same in his lungs. He had a palpated prostate last year 6/10 which was benign, no follow till 2/11 when his blood tests showed a PSA of 5.5 and an elvated Alkaline phos of 191. Started on chemo, and after 2 rounds Chest Xray showed the spread had stopped but had not diminishd so chemo regime changed. His last CT was before the chemo change and he will have his first PET scan on 6/13/11. When talking to his oncolgist he wasn't sure how long my husband would be on chemo. His next treatment will be on 6/20/11 and he will get Taxotere (4th dose), Lupron (2nd dose), Zometa , and all th usual prep drugs. Then back the next day for Nulasta. There has been a lot of confuson so we have a 2nd opinion at MD Anderson 6/23/11. Looking to read about others journey, especially since we are "newbys". I am an RN and read a lot can't find much on the rare Advanced prostate cancer. His path showed small cell in his pelvis biopsy. They interventional radilologist was unsuccessful on biopsying the lung lesion. The good news is that after just one treatment of Taxotere, his lungs were almost clear. He is holding his weigh, has pelvis and hip pain but is managing on minimal pain medication. Would love to talk to veteran prostate survivors and and spouse of caregivers out there."

Welcome Smiley and I hope some have the answers you are looking for.
Bill

dkob131
Regular Member


Date Joined Apr 2008
Total Posts : 364
   Posted 6/11/2011 11:24 PM (GMT -6)   
Smiley:  I'm chasing you around, I posted a response under the other thread but I'll do it here also.  You mentioned small cell PCa, if that is truly the case MD Anderson is the place to go, its good to hear that you have an appointment there.  It also explains the low PSA with multiple metastisis.  Small cell is badly differentiated and does not throw off much PSA but it is a really tough strain of PCa.  The good news is you're in the best hands possible at MDA.
 
Try and keep us updated, best of luck to both you and your husband.
 
David

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 6/11/2011 11:38 PM (GMT -6)   
Smiley, welcome to HW, sorry you needed to find us, but glad you did. Please keep us posted of your husband's journey.

david in sc
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06, 2/11 1.24, 4/11 3.81
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/10

Radical
Veteran Member


Date Joined Mar 2009
Total Posts : 739
   Posted 6/12/2011 12:52 AM (GMT -6)   
Again Welcome Smiley, there are certainly many well educated guys and girls on this forum, who I'm sure will chyme in shortly and be able to help you with your concerns, sorry out of my depth, but many veteran survivors here.

az4peaks
Regular Member


Date Joined Feb 2011
Total Posts : 112
   Posted 6/12/2011 2:15 AM (GMT -6)   
Hi SmileyIrish, - Here are a couple of Studies on Small Cell PCa that you may find interesting and informative. Good luck to you both. - John@newPCa.org (aka) az4peaks

rcroller
Regular Member


Date Joined May 2011
Total Posts : 327
   Posted 6/12/2011 6:57 AM (GMT -6)   
SimleyIrish; Just want to welcome you to the forum and let you know you are among friends. Can't share knowledge because I am too early in the learning curve but wanted to let you know that you have found a great source of support among these guys and gals. Wishing all the best for you and your husband.
Age 53- PSA 2/11 3.5
4/21/11 BX Path Report: 3 of 12 Left PCa , 3+3, 3+4, 4+4
4/29/11 Received PCa DX, G-8
5/18/11 open RP Performed, Right nerve bundle spared
5/24/11 Post Op Path Report: G-7(4+3) 7%, pT3a N0MX, EPE, PNI+, SVI-, Left margin <0.1mm from inked margin
6/1/11 Cath removed, Incontinence-No, ED-Yes.
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