Side Effects...do we always know as much as we need to?
We all talk about
, suffer from, or worry about
side effects, both before during and after assorted treatments: surgery, seeds, RT, HT and medications (even AS has side effects).
Some people may simply feel that everything causes side effects so there is not a lot to worry about
when making decisions, but the important thing is to know something about
the magnitude and duration of any side effects, and about
the number of patients that suffer from them.
To help understand the nature of the side effect fully, and thus if it is likely to be bearable, then what you need to hear from a doc is something about
-The severity of the side effect in terms of something like the Richter scale from 1 to 10; (For example: with ED there are a whole range of levels of dysfunction between a penis that works just like it used to and one that doesn’t work at all)
- The duration of the side effect: 1day, 30 days, 180 days, 360 days, permanent. (Feeling nauseous for 24 hours may be bearable, but feeling woozy for six months will not be)
As for what percentage of patients will actually suffer from it, them clearly there is a big difference between 0.1%, 1%, 10%, or 99% having a problem. (Occasionally I have had packets of meds where the side effects are listed in terms of how many people per 1000 may get them, but this does not yet seem to be the norm.)
So why not ask docs for this level of detail about
any side effect mentioned in relation to a specific treatment, operation, medication etc. rather than assume that the risk is either bigger or smaller than it may actually be.
Age dx 48
Apr 09 PSA 8.6
Biop 2/12 pos
Jul 09 DaVinci AVL-NKI Amsterdam
6 Aug 09 Cath out
PostOp Gleason 3+4 Bladder neck & Left SVI -T3b
No perin’l No vasc invasion Clear margins
Dry at night
21 Sep 09 No pads daytime
Nov 09 PSA 0.1
Mar 10 PSA 0.4 sent to RT
13 Apr CT
RT 66Gy ends 11 Jun 10
Tired + weird BMs
Sep 10 PSA <0.1
Jan 11 PSA <0.1
Apr 11 PSA <0.1
Post Edited (English Alf) : 6/15/2011 10:11:34 AM (GMT-6)