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4carl
Regular Member


Date Joined Apr 2007
Total Posts : 24
   Posted 6/19/2011 8:15 PM (GMT -6)   
Four years ago I was diagnosed with prostate (gleason 6 t1c) cancer. Healthcare information forums became a invaluable resource for me to make a treatment decision. When I saw a surgeon they recommend surgery and when I saw a radiologist they recommend radiation. What I couldn't find was one resource that only focused on treatment options. After hundreds of hours of research I found I had 5 choices all with statistically the same out come. I then researched each one of them, a process that took another hundred plus hours to make my decision on treatment and where to go for it. I picked HDR for me so-far-so-good my PSA is 0.21 it was 6.5 .
What I realized was there was no one source that I could go to and get multiple opinions on treatment options.
My background is healthcare information initiatives I have developed campaigns for 96 TV stations in 43 cities .
Because of my personal experience I have developed a new I healthcare initiative called
"Your Health-Your Decision" my vision is to have one place you can go that focuses on treatment options for a wide veraity of health problems provided by mutable top tier healthcare providers.
At this point we need feedback from all of you on how best shape this campaign.
Please you to our Facebook page Your Health-Your Decision http://www.facebook.com/pages/Your-Health-Your-Decision-Understanding-Treatment-Options/166159656778820 and post a comment, it's very important to the success of the campaign.
Thanks carl

geezer99
Veteran Member


Date Joined Apr 2009
Total Posts : 990
   Posted 6/19/2011 9:19 PM (GMT -6)   
When I see something like I found on this site: "advocates discussing medical options and treatments for serious medical conditions?"

It triggers both my gag and vomit reflex and my run screaming from the room response. There are "advocates" for every crack-pot therapy known to man.

Anybody who goes in for such things is at least a fool. Medicine should be based on evidence (published) and experience (independently documented) If you find a doctor who is "sure" what the right treatment is, you have found a charlatan.

clocknut
Veteran Member


Date Joined Sep 2010
Total Posts : 2667
   Posted 6/19/2011 9:37 PM (GMT -6)   
Carl, I think you need to talk to the site administrator before posting something like this on this forum. Also, did you proofread what you wrote? "Please you to our Facebook page"?

What you're describing sounds like a project from which you plan to derive a profit, yet you want people here to advise you on how to shape your campaign?

I'm not clear on what "mutable top tier healthcare providers" are, either. In any case, you need to discuss this with our moderators or with the site owner.
Age 65
Dx June 2010.
PSA rose for 3 years to 6.2
Bx shows cancer in 6 of 12 cores, all left side
Gleason 7 (3 + 4)
Bone scan, CT scan, rib x-rays negative.
DaVinci 8/20/10
Negative margins; negative seminal vesicles
5 brothers, ages 52-67 ; I'm only one with PCa
Continence after 7 weeks. ED continues.
PSA 1/3/10: <0.01; 6/12/11: <0.01

zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted Yesterday 6:23 AM (GMT -6)   
I witnessed some of that concept, whereby you go to a hospital medical center (considered a good one of course), you get the mulitple opinion party right on the spot.
First, who says the institution is not biased or focused only on treatments, how many would tell anyone that A.S./W.W. may be a possible real option????? I did one of those appointments and saw a radiologist and an oncologist(we skipped the uro-surgeon I was already refused as cureable by Dr. Menon as the same facility)...both were found less than what I would rate as expert status, even though I got blood work done at that facility I decided both of them were over anxious to treat me and could not answer some of my questions in direct fashion. So, in my little trial of that option wasn't overly impressed, saw it as a nice marketing concept...keep the customer in house and effect a sale at all costs. I did like Dr. Menon's honesty and applaud that, in another opinion elsewhere a lesser surgeon was guaranteeing me cure and 1% chance of incontinence (he was scratched off the my list, great sales pitch).

Scratched from my list, I noticed a year later the radiologist was no longer working there (in their mailed survey form I mentioned she was untruthful and in effect lied to me directly, perhaps that had something to do with her abscence). I asked if IMRT were anywhere around Detroit and asked do you have IMRT at your hospital (not asking would I get it there, just do you have it- 2002). Both were found and proven as lying to the patient(me), I canceled radiation with her one day before starting...probably that caught adminstrations eye and my survey form reply later. I (found) got IMRT and Neutron therapy only a few miles away from that location and my newly hired radiation onco-doc knew this other gal and said she had been to their facility. So, I was lied to in order to effect a sale...I am still vocal about such to this day. My grade of PCa was very high risk, not a time to play any games, glad I was proactive. So, your assumption is that totally honesty and non-agendas or even drug choice biases...do not exist in the medical world....found this false and false in other patients scenarios and testimonials....

Patient has to consider everything or consider being the door mat choice, even non-treatment is a personal choice not to be over trumped by an anxious practicioneer. Read the Paact Newsletter article named URORAD....some uro-docs circumventing the Stark Laws and seeing that they do not lose a sale, by owning directly or indirectly the referral to their own radiation clinics. Apparently this is happening often enough, do not lose the sale....treatment and patient outcomes is secondary (enjoy the real world out there). skull

Post Edited (zufus) : 6/20/2011 6:40:26 AM (GMT-6)

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