AUS update, AMS 800

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knotreel
Veteran Member


Date Joined Jan 2006
Total Posts : 654
   Posted 6/20/2011 7:11 PM (GMT -6)   
I got my AMS 800 1/11/11 and was activated about 2/15/11 but I quickly developed some urethral pain in the first days. I tried various "break in" proceedures and finally went to using the AUS every day, just a few hours then increased the "on" time till finally it was getting comfortable by my last doctor follow-up visit. My doc was concerned also and did a cysto which came up negative for urethra damage.  Now the thing is on 24/7 and no pain.  Needless to say I am really pleased that my body has finally accepted it's new part. I really liked the way it worked but not the pain, now it is being used as intended (all the time) and I am completely dry (except for the occasional dripple and accidental deflation). Now life is good. It is still a little wierd to  have a scotum full of tubes and pumps but that is my new normal now and not too bad. One good thing about the AUS pump having a big brother ,IPP pump, is that it forces me to sit a little more carefully and that helps, I think, to keep from sitting wrong on my AUS pump. The pain I had was unusual according my to my doctor and it is a giant relief to see that stop. To sum up, yippee!
Ron
06-08 1st biopsy neg psa 4
10-09 psa 5.5 2nd biopsy 1/12 pos. 10%, G(4+3) age 65
12-15-09 RRP Tulane NOLA Dr Lee
Path, 1%, clr marg, no EPE, no SVI, nodes cl, G(4+3)
100% incontinent @ 12 months
ED, pre-op severe, post op total
10/10 Dr Boone, Methodist recomended AUS
AUS/ IPP performed 1/11/11 Methodist Houston
post op psa's 0.04,<0.1,<0.1,<0.01@12 mo.

Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4119
   Posted 6/20/2011 8:06 PM (GMT -6)   
Ron: What a great report. So many will use this report for their benefit. So pleased to hear your doing so well. Stay in touch.

Cajun Jeff
9/08 PSA 5.4 referred to Urologist
9/08 Biopsy: GS 3+4=7 1 positive core in 12 1% cancer core
10/08 Nerve-Sparing open radicalSurgery Path Report Downgrade 3+3=6 GS Stage pT2c margins clea
r3 month: PSA <0.1
19th month: PSA <0.1
2 year PSA <0.1
Only issue at this time is ED but getting better

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 6/20/2011 8:20 PM (GMT -6)   
Ron, glad the pain phase has subsided, and that your device is working good, sure its good to be on the "dry" side now
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06, 2/11 1.24, 4/11 3.81, 6/11 5.8
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/10

Wigs
Regular Member


Date Joined Mar 2009
Total Posts : 89
   Posted 6/21/2011 8:29 AM (GMT -6)   
knotreel,

Welcome to the "Satisfied AUS & IPP Users Club". Sometimes it gets a little "crowded" down there and yes we have to sit more carefully, but I am not complaining at all!!!

Wigs
Diagnosed @ age 46 - September 1997 - PSA 5.0 / Gleason 3+3
Seed Implant - January 1998 @ Trident Hospital, SC
PSA 2.4 - July 2007 / PSA 2.7 - July 2007 / PSA 3.0 - November 2007
Diagnosed @ age 57 - December 2007 - Gleason 4+3
Salvage Prostatectomy & Colostomy - March 2008 @ MSKCC, NY
Rectal/Urethra Reconstructive Surgery – August 2008 @ Cleveland Clinic
PSA < .01 – August 2008 / PSA <.01 – October 2008 / PSA < .01 – December 2008
Colostomy Reversal @ Cleveland Clinic – January 2009
AUS implant @ Cleveland Clinic – May 2009
PSA <.01 May 2009 / PSA <.01 August 2009 / PSA <.01 December 2009
IPP implant @ Cleveland Clinic – December 2009
PSA < .03 April 2010 / PSA <.03 November 2010

tallguy
Regular Member


Date Joined Oct 2009
Total Posts : 419
   Posted 6/21/2011 6:23 PM (GMT -6)   
Good on ya Ron! Welcome to the satisfied club. Some day I might join the IPP club but setting that aside for now.
Carl
66 year old male
PSA jumped 3 to 8 Jan 2008
pt2b NO Mx with a Gleason score 3+3=6.
DaVinci RP, 7/23/08. Tumor type: Acinar
size 5.5 cm x 5.7 cm weight: 77 gm.
Incontinence & ED. Dry nights , no control during day.
FUDS and cystourethroscopy testing 10/09.
24 hr pad wt. 219gm. AUA sympton index 13/35=moderate
Virtue sling surgery 2/3/10 NYU med center
Appeared to help but gradually returned to pre surgery condition.
Back to 3-4 pads/day.
Latest PSA 4/1/10 negative.
AMS 800 artificial urinary sphincter implanted 7/8/10 at U of MI.
AMS 800 activated 8/25/10 Dry for first time in 2 years.
Links to my journey posts:
http://www.healingwell.com/community/default.aspx?f=35&m=1847812
http://www.healingwell.com/community/default.aspx?f=35&m=1710681
http://www.healingwell.com/community/default.aspx?f=35&m=1948599

knotreel
Veteran Member


Date Joined Jan 2006
Total Posts : 654
   Posted 6/22/2011 11:20 AM (GMT -6)   
Thanks guys, especially to Wigs and Tallguy ,amoung others, who helped me with info and encouragement to get the AUS done. So, far, I have never heard anybody say they regreted getting the artificial sphinter implant and I certainly don't. It's not what I dreamed about a few years ago but it is a great fix if you need it.
Ron

Neoman
Regular Member


Date Joined Nov 2010
Total Posts : 192
   Posted 6/22/2011 12:12 PM (GMT -6)   
Ron, I also am glad you are in the "Satisfied Club" membership. I also remember getting a little sick feeling at the outset. Almost like a flu, after activation. I knew then my body was not used to the device squeezing on the uretha. I few weeks later I did not feel that way at all. Neo (Chris)
Bladder Cancer fall 2008, age 53
MVAC Chemo fall 2008 to Jan 2009.
RC of Bladder Feb 2009
Stage 2 high grade bladder cancer
also detected after bladder surgery high grade Prostate cancer
Had AMS 800 implanted July 2009 but surgeon nicked uretha and the cuff had to come out. Then developed infection soon after and they took it all out. Reimplanted Oct. 12 2010 after fistula/infections healed
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