Back sliding on continence

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BB_Fan
Veteran Member


Date Joined Jan 2010
Total Posts : 1011
   Posted Today 3:14 PM (GMT -6)   
Could SRT be the culprit. I got back to almost 100% continence within 4 weeks after surgery. I few dribbles now and again. I had SRT about 15 months after surgery with no adverse impact on urenary continence. Now almost 9 months after SRT, continence is getting worse. More dribbling and the occasional unexpected squirt. Does it really take this long for some SRT SE's to arise? Do kegels help at this point?
Dx Dec 2008 at 56, PSA 3.4
Biopsy: T1c, Geason 7 (3+4)
Robotic RP March 2009
Path Report: T2c, G8, organ confined, neg margins, lymph nodes - tumor vol 9%
PSA's < .01, .01, .07, .28, .50. ADT 3 5/10. IMRT 7/10.
PSA's post HT/SRT .01, < .01
End ADT3 5/11 PSA < .01

SubicSquid
Regular Member


Date Joined Oct 2009
Total Posts : 252
   Posted Today 4:13 PM (GMT -6)   
Interesting question.  I finished SRT one year ago and was 99.9% continent.  The last few months I have had one "accident" while sleeping on the couch and last night for no reason, I had a major spill while undressing.  Hopefully these are rare happenings.  Be interesting to see if others have developed the problem way after completion of SRT. Squid.

60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2222
   Posted Today 4:19 PM (GMT -6)   
Mine has gotten worse in the last few months and I am 15 months post SRT. Even worse is the urinary frequency which makes sleep hard to come by. But I have read that this happens this far out and is then considered chronic.
Michael

142
Forum Moderator


Date Joined Jan 2010
Total Posts : 6949
   Posted Today 4:29 PM (GMT -6)   
I think that the answer is "yes". My RO told me that all of the RT side effects would be over and done with in two months, but at just a few days short of a year out, I still have most of them.
 
I think the ROs gloss everything over. I have seen many discussions that RT can cause delayed problems even multiple years out. I can't give you a link, but it was a very serious concern for me.
 
My incontinence varies. At the start of adjuvant RT, I was at a solid one pad per day, no more than that. At the end of RT, I used generally two, often three, and rarely four. After about nine months, I was back down to generally one, sometimes two, and rarely three. over the last three months, it has been all over the place, completely unpredictable. If I'm travelling, I have to plan for three a day just in case.
 
Is it related? No clue.
DaVinci 10/2009
My adjuvant IGRT journey (2010) -
www.healingwell.com/community/default.aspx?f=35&m=1756808

BB_Fan
Veteran Member


Date Joined Jan 2010
Total Posts : 1011
   Posted Today 4:32 PM (GMT -6)   
Wow! That's not good. This will be a real problem for me if it gets worse and I have to deal with it long term.
Dx Dec 2008 at 56, PSA 3.4
Biopsy: T1c, Geason 7 (3+4)
Robotic RP March 2009
Path Report: T2c, G8, organ confined, neg margins, lymph nodes - tumor vol 9%
PSA's < .01, .01, .07, .28, .50. ADT 3 5/10. IMRT 7/10.
PSA's post HT/SRT .01, < .01
End ADT3 5/11 PSA < .01

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted Today 4:37 PM (GMT -6)   
BB,

There's some good information in this report linked below, might help. Will definitely help anyone contemplating SRT, and including when and if to start.

http://www.prostate-cancer.org/pcricms/sites/default/files/PDFs/Is13-2_p8-17.pdf

david in sc
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06, 2/11 1.24, 4/11 3.81, 6/11 5.8
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/10

SubicSquid
Regular Member


Date Joined Oct 2009
Total Posts : 252
   Posted Today 4:44 PM (GMT -6)   
I hope the night time urinary frequency doesn't become chronic - I haven't had a full nights sleep since SRT.  I go about every 90 minutes. Thought about taking something to let me sleep all night once in a while, but then I would worry about not getting up and peeing in the bed.  RO prescribed Detrol LA which didn't even phase it. Guess I'll just have to hang in there and hope it somehow gets better.  PCa sucks!!!  Squid.

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted Today 4:51 PM (GMT -6)   
Squid,

Sorry that is still such an issue with you this far out. Guess that is one advantage (hard to believe I am saying this) of having the urostomy, as I pee straight from the hole in my side to a bag, and a night, that bag is attached to the big Catheter bags that we loved so much. I have no sensation of ever urinating.

Would a Condom Catheter help at night? That way you could pee into a bag, and not have to worry about waking up. Just a suggestion. That lack of sleep would get to me real fast. Good luck to you, BB, and others dealing with this post SRT.

David
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06, 2/11 1.24, 4/11 3.81, 6/11 5.8
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/10

Carlos
Regular Member


Date Joined Nov 2009
Total Posts : 486
   Posted Today 6:04 PM (GMT -6)   
BB,  I am three months out from SRT and haven't had any problems yet.  My RO encouraged me to exercise daily because the increased blood flow would help heal tissue damaged by the radiation.   My primary care doc said I would need to do Kegels the rest of my life.  She pointed out that all men and women lose muscle mass as they get older and the only way to prevent it is with exercise.  So, I try to get a brisk 5k in daily and do Kegels and other pelvic floor exercises on a regular basis.   You younger guys can probably get away with doing nothing, but at 74, I don't have any room for error.
 
Carlos

Dx 2/2008, at age 71, PSA 9.1, G8, T1c
daVinci surgery 5/2008, G8(5+3), pT2c
BCR 2 1/2 yrs after surgery
IMRT, 68.4 Gy, 12/2010 - 2/2011
PSA 0.07 three months after IMRT

142
Forum Moderator


Date Joined Jan 2010
Total Posts : 6949
   Posted Today 6:57 PM (GMT -6)   
Carlos,
I'm just turning 58 here in a few days, and I have to do the kegels daily. No "old guy / young guy" card on this one smilewinkgrin

BB_Fan
Veteran Member


Date Joined Jan 2010
Total Posts : 1011
   Posted Today 7:07 PM (GMT -6)   
Carlos/142: Exercise may be the ticket to bring back a return to continence. Makes sense to me. I lost a good deal of muscle mas with HT. I guess it's kegels for me with the squats and lunges. BB

Dave, thanks for posting the article. Bb
Dx Dec 2008 at 56, PSA 3.4
Biopsy: T1c, Geason 7 (3+4)
Robotic RP March 2009
Path Report: T2c, G8, organ confined, neg margins, lymph nodes - tumor vol 9%
PSA's < .01, .01, .07, .28, .50. ADT 3 5/10. IMRT 7/10.
PSA's post HT/SRT .01, < .01
End ADT3 5/11 PSA < .01

compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7205
   Posted Today 8:24 PM (GMT -6)   
I hate to read what you guys are going through.
I am about 6 weeks post SRT and no problems with incontinence,,,sofar!
 
Mel
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