Update on Urotoday

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Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 6/23/2011 2:00 PM (GMT -6)   
Many of us enjoyed the ability to see the latest prostate cancer news and information from Urotoday. That is until they changed the service to a fee based program costing a whopping 300 bucks a year for a subscription. I contacted the site owner Gina Carithers with a concern for patients and she stated that she would in fact get a lower price for advocates and support group leaders.

Well she did do that but it is still out of our price range at 90 bucks a year. The thing is that we still have access to up to date information without Urotoday so it does not make sense to pay for it. But I told Gina I would get the word out if anyone wants to subscribe to their website. You need to qualify yourself as an patient, advocate, or support group leader to get the discount.

You can go to the website at www.urotoday.com to get more details.

I passed on it...

Tony
Advanced Prostate Cancer at age 44 (I am 48 now)
pT3b,N0,Mx (original PSA was 19.8) EPE, PM, SVI. Gleason 4+3=7

Treatments:
Da Vinci Surgery ~ 2/16/2007
Adjuvant Radiation Therapy ~ IMRT Completed 8/07
Adjuvant Hormone Therapy ~ 28 months on Casodex and Lupron.
Undetectable PSA.

Blog: www.caringbridge.org/visit/tonycrispino

compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7270
   Posted 6/23/2011 5:11 PM (GMT -6)   
Too much
 
Mel

Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 6/24/2011 12:24 PM (GMT -6)   
Just an update.

Gina contacted me and stated that the cost for the patient/advocate is $70.00 per year. As a patient I passed on it, but I have submitted it to our group to see if we want to get this subscription for our group's general use.

Also, I suggested that the cost for a patient be around 25 bucks a subscription. I certainly understand their need to funds to keep things running, but patients dod not have the same resources as doctors typically. If I see a drop for patients to 25.00 then I will likely subscribe personally...

Tony
Advanced Prostate Cancer at age 44 (I am 48 now)
pT3b,N0,Mx (original PSA was 19.8) EPE, PM, SVI. Gleason 4+3=7

Treatments:
Da Vinci Surgery ~ 2/16/2007
Adjuvant Radiation Therapy ~ IMRT Completed 8/07
Adjuvant Hormone Therapy ~ 28 months on Casodex and Lupron.
Undetectable PSA.

Blog: www.caringbridge.org/visit/tonycrispino

kbota
Regular Member


Date Joined Aug 2010
Total Posts : 487
   Posted 6/24/2011 12:51 PM (GMT -6)   
Tony, I had a similar email conversation with her. I finally unsubscribed to their newsletter.

I wonder if they would consider a discount just for Healing Well members.

Might be worth tossing her way, and see if she nibbles.

k
Age 57 at Dx
5/09 PSA 2.26
6/10 PSA 3.07 FPSA 18% DRE +
Biopsy, 7 of 18+, >60%, 4+5=9
7/21/2010 - RRP
Nodes & Ves neg
tumor contained, still 4+5=9
pni ext.
9/3/10 - 0.04 99% continent
10/14/10, 0.04, and lupron #1, 99.9% continent
Total ED, implant on 12/15/10
2/11 - 0.04, HT #2
6/11 - 0. , HT #3

compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7270
   Posted 6/24/2011 2:16 PM (GMT -6)   
It's still too much.
 
How would the group thing work? Could we perhaps all chip in and we all get a common user code/password?
 
Mel

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 6/24/2011 3:30 PM (GMT -6)   
25 might be do-able for some of us, but too high for others, the 70 is just too much money.
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06, 2/11 1.24, 4/11 3.81, 6/11 5.8
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/10

JNF
Veteran Member


Date Joined Dec 2010
Total Posts : 3887
   Posted 6/24/2011 11:08 PM (GMT -6)   
So if no one subscribes then the site is worthless. If many subscribe for free and put up with advertisements then it is priceless, ala google. Why are these people so stupid whom profess to bring us valuable information regarding our plight?

I sense that we will all end up with the information we need from the website without paying for it. Charging for this is very shortsided as the NYT has found out at least twice now.
PSA 59 on 8-26-2010 age 60. Biopsy 9-8-2010 12/12 positive, 20-80% involved, PNI in 3 cores, G 3+3,3+4,and 4+3=G7, T2b.
Eligard shot and daily Jalyn started on 10-7-2010.
IMRT to prostate and lymph nodes 25 fractions started on 11-8-2010
HDR Brachytherapy December 6 and 13-2010.
PSA <.1 and T 23 on 2-3-2011.
PSA <.1 on 4-7-2011
Second Eligard shot on 4-7-2011
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