I am so very sorry that you two have received another bad dose of news.
I may be of some help to you and your husband, if they totally remove his bladder, he could have some form of Urostomy. My bladder was entirely by-passed due to severe radiation damage. I had the Ileal Conduit Surgery last September. The surgeon formed a "pipe" so to speak, and the ureters from the kidneys drain to the pipe, then out my body through a stoma. So I have an Urostomy. I urinate through the stoma, into an "appliance" or "device" with a bag with a drain on the bottom. If he ends up with this, or something similar after his bladder is removed, I can give you a lot of good first hand advice for living with and dealing with one.
There is also an Ostomy group here on HW, but there are very few people there familiar with Urostomies, most of them have have Colostomies instead. If there is anything I can do to help, let me know, or if you ever want to talk, e-mail me and I will give you my private number.
My thoughts and prayers with you both. Never give up hope, no matter how rough the path my be.
David in SC
Post Edited (Purgatory) : 8/12/2011 4:43:16 PM (GMT-6)