Thanks so much everyone! We really appreciate the well wishes and prayers and we feel the same towards all of you!
Gavin will be having a CT & Bone scan in a week or so and I will let you know how that goes. He has not been on any treatment other than the zoladex and zometa for the last 2 to 3 months as they were waiting for him to start the trial and he was having radiation to his pelvis and sternum for pain. So we are expecting not too good results. We think that it was far too long without treatment as it is already in his liver (8 spots). What are your opinions on this?
I would also like to ask if there is anyone with any knowledge at all about anyone with it also in their liver. Would like to know what happens now, symptoms etc.
I have found an article on New Hope Against Inoperable Liver & Lung Cancers. It was about chemembolization and radiofrequency ablation and that it has had good results like 2-6yrs extended life. The procedures are not well known and are only done in Italy and the US. Anyone have any knowledge of this at all?
formyhusbandg9- Thanks for being so straight up with me and my thoughts are with you and your husband as well. It is so hard going through treatment after treatment and nothing works. Hoping & praying for all of us that something new and wonderful comes along. Gavin is also G9.
msworrywart- Thanks for the offer to vent, scream etc. I offer you the same. Anytime!!
Billymac- Thanks for the website.
njbmwgs- Thanks! Always nice to hear a good outcome.
Riviere- We have heard about the small cell carcinoma but haven't really checked up on it. We will do this next visit! Thanks.