I had blood drawn yesterday for my yearlly physical with my GP. I was in the middle of major surgery at this time last year, and skipped the exam. I see him next Monday afternoon. Not expecting any startling revelations there, but am curious to get a new Vit-D reading. I have been following my doctor's reccomendation closely since my last visit, and will be interested to see how much, if any, my Vit D level has risen.
I saw my Oncologist 3 1/2 weeks ago, and he had made some serious changes to my pain meds. I have not been happy with this. The Fetnanyl patch that he put me on, for all extensive purposes, doesn't do a thing for me. It was suppose to help with the pain during the in-between periods of taking the other pain meds. In fairness, he started the patch on the lowest possible dosage, knowing that I was real cautious about meds in general. He replaced the Loratabs with Oxycoton. I have been taking (2) 5 mg tablets 4 times a day, four hours apart when I am awake, for a total of (8) pills 40 mg.
Even with the patch in place, and taking the pills, at no time is my pain cut to zero. At least with the Loratabs, I could count on a 2-3 period of time being virtually pain free.
I talked to him by phone yesterday. He is dropping the Oxy entirely (not increasing it), and putting me back on the Loratab, and doubling the amount of Fentanyl. The new meds will be started on Saturday. He is going to call me in 2 weeks to see if it has improved.
The pain covers my entire lower back, right above the hip, all of my right hip, and left leg from the hip to the knee. Some of the pain is that aggervating gnawing burning pain, and some of it comes in acute sharp attacks. Sometimes at night, it's sharp enough to wake me out of a deep sleep.
I am weary of this entire PC battle, and to be honest, sick of being plagued with so much pain, all the time. I don't care how tough you think you are, if you deal with pain long enough on a daily basis, it starts to break you down. My journey is 3 years old now, and there's been precious little periods of time that I wasn't dealing with pain for one reason or the other. From my 4th SRT treatment back in October of 2009 to now, there hasn't been any time at all where there wasn't constant pain taking place.
I know what I have gone through is not the normal or the expected, but unfortunately, it doesn't make me feel any more light hearted about it. Not a lot of fun these days, dealing with the pain, dealing with the fact that I can never work again, etc, and tired of being a house puppy. Even going to a store or two locally, wears me out so much, that I am usually done for the day after. I find myself being awake on the average, 20 hours a day. Wouldn't be so bad if I could sleep away much of that time, but for me, sleep is pretty elusive. And when I do sleep, it's usually nightmares, lol. Can't win this one.
Not really venting, as much as just writing what I am thinking and feeling. Meanwhile, it doesn't help my head to know, that for all the hell I have been through in my journey from the start, my cancer hasn't even remotely been slowed down, and meanwhile, it's just growing and growing, unchecked.
Right now, would just be happy not to have to hurt all the time. We all know the old saying, I am sick and tired of being sick and tired.
David in SC