I recently read that 40% of people who go on AS drop it within 5 years and that 20% of these do so for psychological reasons.
The side effect issue also isn't anywhere near as cut and dry as some portray it to be Many people have very minimal side effects. I would guess that more and more and more of these as patients get treated younger and surgeons and technology improve.
Outside of worrying all the time that it will reappear I am essentially side effect free. Many others here have posted the same.
What I think is interesting in a case like yours is that the younger and healthier you are, the better chances you will have at minimizing the side effects. This is true for surgery and perhaps even for radiation.
This is a video I saw this AM that discusses, among other things, alternative remedies early on:www.youtube.com/watch?v=m6ZxG4srhCQ&feature=share
Someone above mentioned that we should get advice from oncologists and I agree. Every oncologist I spoke with said that at 40 I was way too young for AS and that given my age, overall health and sexual health the side effects would be minimal. They were right about
that. Samadi, the guy in the video, is a surgeon, but he too is an oncologist.
I understand that rationally one can start out on AS but given that statistics show that one ends up getting treated anyway, I figured why not act right away so that I could maximize possibility of avoiding side effects ( that worked out ) and to get the diseased organ out of me as soon as possible in an attempt to avoid any spread ( won't know the answer to that for years and years ).
Good luck whatever you do. You seem positioned perfectly to discuss with the right people because of your job.
40 years old - Diagnosed at 40
Robotic Surgery Mount Sinai with Dr. Samadi Jan, 2011
complete urinary control and good erections with and without meds
Prostate was small, 34 grams.
Final Gleason score 7 (3+4)
Less than 5% of slides involved tumor
Tumor measured 5 mm in greatest dimension and was located in the right lobe near the apex.
Tumor was confined to prostate.
The apical, basal, pseudocapsular and soft tissue resection margins were free of tumor.
Seminal vesicles were free of tumor.
Right pelvic node - benign fibroadiopse tissue. no lymph node is identified.
Left pelvic node - one small lymph node, negative for tumor (0/1)
AJCC stage: pT2 NO MX