A few weeks ago someone posted a link to the blog of a HealingWell member who also has a blog and foundation of some sort (i think it has to do with bracelets)?
My point... I can't find that post and I'd like to share his blog w/my Dad. I believe he was also a Gleason 9 with bone mets. If memory serves me correct he was doing a clinical trial (and I think may have been in the XL 184 trial as well)?
If anyone knows the link to this blog could you please share?
My Dad is pretty down in the dumps, he thinks he only has 18-24 months to live (even though the doctor told him the median effectiveness for the Lupron shot is 18-24 months). Dad heard "18-24 months" and associated it with his life span. We can't seem to get him over that. Anyhow like I said - sharing stories of cases similiar to his who are still alive 5-7 years out is very encouraging. I haven't been successful getting him to check out the forum .... yet!