Good news! My dad just went back to his urologist today. He did NOT get his first shot. The Dr. has now decided he wants to do a bone biopsy of the hot spots on his clavicle and upper arm, and mentioned that the HT injection might mess up the biopsy - which will hopefully be done next friday (thanks to the xmas holiday, and my parents trip out to AZ to visit me!)
I'm not sure why the Dr has decided he now wants a biopsy - he has a bone scan, xray, and MRI - though i'm thinking it has to do with the fact that my mother asked why he hadn't done one, and has also scheduled appointments with medical oncologists at both the cleveland clinic and ohio state for the first week in January.
Either way, i'm happy because I was worried about
the potential for flare since he had only been on casodex for 4 days. Also, now they can get 2nd opinions regarding the general diagnosis as well as the best course of HT. I'm particularly interested in discussing ADT3 and the possibility of Degraluix(sp) - which recent research appears to show some promise regarding additional positive effects compared to Lupron.
The two medical oncologists that my mother tried to schedule appts with (at CC and OSU respectively) both had very full schedules - OSU told her they would have to wait 2.5 months to get in to see the person she asked for. So at this point they do have appts, but not necessarily with our "first" choices.
So two questions - 1. any advice regarding how to get in more quickly with the "top dogs"? and 2. In addition to the two appts that my parents have set up with CC and OSU, do you all see additional value from a phone consult with one of the "well known" doctors of advanced prostate cancer - like Dr Strum, Dr Myers, Dr Lam, or Dr Sholtz? Has anyone participated in the p2p mailing list?
Thanks again for everyone's insight and advice. It is all so helpful! My parents arrive tomorrow for xmas and I'm excited to give and get lots of hugs. I hope everyone has a fantastic holiday season!
For my Father
Initial diagnosis from rising PSA levels
DRE - Negative
PSA - 4.6 at time of biopsies
Biopsies - 4/8 positive, one 6, two 7's (3+4s), one eight (4+4)
CT scan / Bone scan - all clear except two spots in arm/shoulder area
X-ray confirmed spots
MRI AGAIN confirmed spots - told they are bone metastases
Awaiting bone biopsy . . .
Currently taking 50mg bicalutamide daily
Post Edited (hotpink2) : 12/22/2011 10:08:22 AM (GMT-7)