Hello! I am not sure how to post this. Your post on ISC motivated me to join this forum. My hubby is possibly facing the same course of treatment. He is terrified because he tried to self catheterize once and it was so painful he couldn't do it. Are there any tricks to making it less painful? Does it get less painful with time? Any advice would be greatly appreciated! Thanks!
about five months after IMRT I developed a stricture with the weak stream, frequency, urgency and a bladder that wouldn't empty well. My uro did the following:
- Took a look up there (cystoscopy, alway a pleasure) to locate the stricture
- Stretched it out with progressively larger "tools" of some sort (not fun!) and put me on a foley catheter for three weeks to help stretch things out. Not great fun but tolerable. I worked, shot sporting clays, went fly fishing and made pheasant hunting trip to Kansas. A foley for a few weeks ain't the end of the world.
- After the foley was removed my uro had me do Intermittent Self Catheterization (ISC) three times a day for a few weeks even though I was pissing like a 15 yr old. Once again to keep thing stretched out up here.
- Then I went to ISC once a day for a few weeks, then twice a week for a few weeks, then once a week for about a couple of months.
This was all six years ago or so. For years, my uro has had me do ISC once a month (after peeing) just to make sure I'm emptying well and "make sure I can still get it up there". So far so good after many years.
Greg - Did your uro do take a look up there and try to do anything about it?