Just an update - when I requested to have my slides so I could send them to John's Hopkins, I assumed they were giving me all 13 cores/slides. Rereading the Hopkins report it shows that they only got one slide, the one that was originally found to be positive - the one that they originally said was 10% to 15% involved and only 3+5, which now turns out to be 40% involved and a 4+5.
So with such a change I'm really sort of upset that they didn't give me all 13 slides to send - what are the odds that it's really just in that one core? Since Northwestern missed the 9, do you think they may have missed cancer in the other cores? I keep staying positive thinking it's just one core, but now I have to wonder.
Listening to all your developments, I'm reminded of my own DX activities. I still question(to myself) my own results and all that I've been through. To this day I haven't really experienced any symptoms that would indicate my DX, other then the SEs from my treatments.....but then again, I'm grateful to be here today and still healthy(to some degree) and always aware of the possibilities and remain vigilant.
Age 52, Stage T2c, Gleason grade 8-10
PSA level of 10.6 no symptoms whatsoever.
Ct scan and Bone scan negative
my diagnosis is considered a high risk disease and my treatment EBR + Barchy Seed Implants + HT
50mg of Bicalutamide tablets per day first 30 days
22.5 mg Lupron for 12 months
PSA value: 5.5 May 2011, 0.03 Nov 2011, undectable Feb 2012
T levels 1.66 Nov 2011, 1.?? Feb 2012.