First and foremost, please understand that if I didn't care about
you, I wouldn't bother signing on to reply.
Now... Yes, I am going to go there...
You said "My oncolgist is the one that does not want me to be on HT at this time. He was that way from the start. True, I am not thrilled about
the thought of HT, but my doctor never knew my feelings on the subject ahead of time. He has very strong views on the subject, that in a case like mine, that an attack of chemo may, key word: may, do a better job of shocking an aggressive acting cancer."
One thing I do know from MDA is that while they will not go too far outside of protocol insofar as treatment, they absolutely will agree with us to do nothing.
I am dissapointed to discover that MDA clinics around the USA don't all follow the same protocol. It makes me second guess our decisions more and more. And, yes... we respect our doctor and that he is the professional. He actually respects that we are "thinking beings." However, MDA admitted that after further consideration, surgery was the "get it out" choice, but radiation seemed to allow for QOL issues that surgery wouldn't. I truly respect and admire a doctor who admits he stands corrected. He admits that he is a doctor and not God... He actually said, "If I were God, your husband would be healed."
Houston's MDA said without a question, that HT was first line of treatment in extremely advanced cases. As you may recall, chemo was pulled off of the table last September, because their research indicated that it was not as effective as "continuing" hormone therapy... in fact, they sent us home with papers indicating that Chemo did not prove to be nearly as effective as hormone therapy as a first line of treatment.
My husband has now been on HT and had Chemo as well... MDA re-imaged my husband every three months, yet after chemo, they didn't do any re-imaging. When I asked why... the Med Onc simply said "We don't expect that much changed, we were hoping to get some of the androgen independent reserviour."
Also, my husband initially stated that chemo was a cake walk compared to hormone therapy. Well, two months out... he's got his hair back, but his balance is way off at times and he is having trouble on focusing on simple task. I think some refer to this as chemo-brain or chemo fog...
Working in the engineering department of a very large company, he has now had to go on short term disability. Just letting you know, since the work you do requires intense focus, as well. Something else to consider.
When does the fog clear up, we don't know. I do know that every doctor visit he had, I was with him. When it came to chemo, as soon as they start pumping the poison in his veins, I had to walk out. I know it has its place, but regardless of what anyone says, I will call it poison. I saw this otherwise healthy looking person go straight to looking like a cancer patient. That was hard on me. It was another moment of reality.
JNF did hit the nail on the head, that everyone replying, seems to be doing so with your best interest at heart.
As I said, if I didn't care about
you... I wouldn't have bothered to log in to comment.
Be blessed my friend.... :)
Post Edited (MsWorryWart) : 4/14/2012 1:40:14 AM (GMT-6)