Posted 4/14/2012 12:15 PM (GMT -6)
sancarlos- wanted to answer you seperately. i think that there are too many here, that are trying to think for me (you are not on that list btw, want to make that clear). though i talked often about the potential of HT side effects often, the others that keep pushing that aren't dealing with the pre-existing severe side effects that i have to live with every single day. they aren't starting on the same playing field as me. i know, you know a lot about ht, you and ralf in particular, and i am not doubting your words, experience or knowledge on the subject. but if it that simple, then why isn't my doctor, a specialist in only advanced PC and BC, feeling the same way for me? It's logical that there is more to the story..
if after these new tests come and go, and he doesn't like the looks of things, and then said, "David, let's now look at starting some form of HT to slow down things", then of course I would be compliant with his advice. People here got it butt-backward, my own doctor is not adovating HT at this time. It's that simple. Don't know why others try to make something bad about that fact. Doesn't matter if I like HT or not, that's not the issue..
when i had to submit to SRT in 2009, was one of the hardest decisions i ever had to make. why? because in 2000, i underwent that horrific neck and throat RT, old school style. i dreaded the thought of SRT, i was so afraid something would go wrong, and it sure the hell did in a big way. look what that treatment did to me. burned me bad, destroyed my bladder and bladder neck, forced a total of 7 operations on me, and left me crippled, in contant pain and faitgue, and unable to work. yet, i submitted to it at the time, because i was advised to, and it was the only curative hope left on the table. and it failed miserably from that perspective.
so you can be sure, i am not jumping into any other treatment, ht or chemo, without some clear signal from the oncologist, that it would do more good than harm.
as i replied to tony above, and he never answered back of course, let someone live a day in my shoes, with what i have to deal with, and see then how eager they would be insinuate that i am doing nothing, t hat i am being foolish, that i dont know what i am talking about, that my doctor sucks....etc, etc. they would walk away with a whole new way of looking with where i am at.
i appreciate your thoughts on the subject though, and glad that it has been working well for you. was reading an article just last night, and it was talking about that with some variants of PC, that HT can fail withing 3-6 months, and then becoming even more difficult to control. it happens. would that happen to me? don't know, haven't been there yet, so can't say i know first hand.
for those that prescribe to the severe danger of extreme PSA velocity prior to dx, especially the 12 months before dx, there is very little that can be one, to prevent becoming a PC mortality. anywhere from 6-10x more likely to die of PC within a total of 7 to 10 years, regardless of treatments. people don't like to think about that part. i am about to hit year 4 since dx.
thanks for your input
david in sc
Age: 59, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, original catheters 63 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06, 2/11 1.24, 4/11 3.81, 6/11 5.8, 12/11 14.0
Other: Spent total of 1 ½ years on 21 catheters, had Ileal Conduit Surgery 9/10
Member of Prostate Cancer & Chronic Pain HW Communities