For the last five years I have been a member of this community. I have shared my triumphs and my setbacks. I have laughed and I have cried. I have cheered at the victories of my friends and have tried to be there when things didn't turn out as we had hoped they would. This post may be construed by some to be out of line, callous, and coldhearted. I can assure everyone that it is meant to be nothing of the kind. Please do not judge me too harshly for the following. It is meant to be constructive and not degrading.
Men come here to this place seeking help and information during the most difficult and dire of situations. They have been diagnosed with cancer and the world as they know it is falling down around them. I have seen a great deal of compassion from the men and women at this site. I have also witnessed men giving excellent advise to the newbees who find us and chime in. For that I say Kudos to each of you.
Each of us needs to realize that we also lead by our example. We each make our treatment choices we each live with the consequences but we are all leaders and looked to as such by those who are new to PCA. Prostate cancer is different for each of us. We all have our fears and our treatment preferences. We all must ultimately choose our own path. Prostate cancer does have a few guidelines. The most important is that it is a hormonal cancer and feeds on testosterone. No matter who the expert is he will tell you the same thing. Prostate Cancer always responds for a while on hormone therapy. Sometimes it responds for a long time. In cases of advanced disease h.t. is the go to treatment. Because it works. It has the least amount of side effects and provides the best quality of life. If I told the men here that my doctor had me on an egg yoke diet and daily peanut butter enemas to fight this disease all of you would call it for what it is. Horse poop. What about
some new guy. He sees veteran status and 6 year survivor and he is out buying an enema bag and a case of Skippy.
We have a personal responsibility when we post. We need to look behind us once in a while and see who is following us. It is okay to decide for ourselves what is best. Let us all be careful lest we lead others away from proven therapeutic options due to our own fear, or personal convictions. Thank you Todd
Dx6/06 age 42 psa3216 bone mets lung mets lymph mets mass growing into bladder
Lupron/Cassodex psa dropped to <0.05 all scans clear on jan. 09
2010/2011 lupron holiday and 6 months d.e.s.
Psa rising 6/11 5.3, 12/11 10.55, 2/12 21.42
Currently seeking provenge.
Bone scan 2/20/12 clearg
cat scan 2/17/12 1 nodule lower lobe right lung 1.5cm square
I start Provenge therapy on April 24
Post Edited (living1963) : 4/12/2012 5:16:30 PM (GMT-6)