Posted 5/1/2012 5:15 PM (GMT -6)
mag, thank you. btw, your stamps were on the way to you as of yesterday, had some extras that i threw in. in days past, i use to only deal with pain on those rare moments when you hurt yourself, etc. it's way way different, when severe pain dwells in your body 24/7. there is never a time that there is total 100% relief, but through my doctor, that is not a realistic goal with what is going on. controlling it, making it bearable, so that i can be as functional as possible is the real goal. i feel we (as a team) have a good handle on it for now. just today, dr's nurse called me, to see how things were, and the timing was great, as i needed a new script for the fentanyl to be mailed to me before i ran out. on that med, they can only prescribe one month at a time, even though its a regular for me, and in this state, it can't be called in by the doctor by phone - like many meds are done. the phramacy is required to have a written script, with a legible signature from the doctor (that part is a challenge, lol, the way most doctors write). in the pain department, i don't think i could have a better and more caring and compassionate team then i have in place right now. no complaints from this guy.
kev, the MRI's I just had done 2 weeks ago, were on the latest, greatest, bestest MRI hardware. since most of the pain is still being diagnosed as severe nerve damage from the SRT, it just doesn't show up on scans. this spot they were looking at, however, was big enough to detect. now as my thread indicates, going for a 3rd opinion from the orthopedic specialist that saw me last summer, to get his take on it.
juliet, thanks too. we are not expecting to find mets at this point, but any strange spot that suddenly appears on MRI's has to be investigated, especially since it didn't show up some 7-9 months ago. i took it as good news. not sure there will be an conclusive answers at this point, but we (as a team) work hard on the pain management part.
i was meeting with an attorney and a forensic accountant the other day for lunch, and we talked about all things medical, and it lead to PC. btw, neither professional had ever had a PSA test before, both way over 50, so i encouraged them both. but when they heard how much pain meds i was on, they both remarked that they were totally surprised, and didn't understand how i was able to be so sharp (their words) and on top of things with such strong meds in me. they said if they took even half of what i was on, they would be in bed passed out, lol. but the body gets use to things, including meds, and the human mind is a strong thing. i fight hard to maintain my mental sanity and balance, as when i became disabled because of the PC and its treatments, it knocked me right out of my business world, which was vitaily important to me. i liked what i was doing, the type of positions i held and the responsibility level and decisions i use to make on a daily basis. no part of me planned for what happened, never had a plan "b" for being put out of work. this is why i do limited consulting work, i have to feel like i am still part of that world, and that i still have relevence in the business sector. so yes, i fight hard to keep my mind sharp, and still stay in touch with all the former things that i was once part of.
Age: 59, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, original catheters 63 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06, 2/11 1.24, 4/11 3.81, 6/11 5.8, 12/11 14.0
Other: Spent total of 1 ½ years on 21 catheters, had Ileal Conduit Surgery 9/10
Member of Prostate Cancer & Chronic Pain HW Communities