OK 59, lessons learned from the top of my head:
- Don't panic, it's not the end of the world so take your time as you consider alternatives.
- Always, always write out a list of questions to ask the Doc and don't feel rushed during your consultations.
- Take the time to read other journeys similar to yours on HW. It may take some time but you will learn as much if not more than what you learn from your Docs.
- Don't hesitate to engage with others on HW by phone or email if they are willing. It's great to have a support group.
- Don't be embarrassed to confide the intimate details with family members and friends especially your spouse who can help.
- Understand that with any decisions you make you are playing the odds/percentages and that there are no guarantees. Just make informed decisions.
- If you are a low risk PC like I would think twice about jumping into treatment and get all the second opinions you can find. Not saying I am sorry with the decisions I made but I can now see that I moved too fast. I recall that while meeting with the urologist who explained the surgery option and then with the radioligist who explained radiation treatment I also was talking to a young resident that accompanied the radioligist. I asked if I were your father what would you advise me to do? He replied....."watchful waiting". Looking back he may have been the most honest in his comment. i must say neither of the Docs were "selling me on treatment" but they also did not encourage me the other direction.
66 year old male
PSA jumped 3 to 8 Jan 2008
pt2b NO Mx with a Gleason score 3+3=6.
DaVinci RP, 7/23/08. Tumor type: Acinar
size 5.5 cm x 5.7 cm weight: 77 gm.
Incontinence & ED. Dry nights , no control during day.
FUDS and cystourethroscopy testing 10/09.
24 hr pad wt. 219gm. AUA sympton index 13/35=moderate
Virtue sling surgery 2/3/10 NYU med center
Appeared to help but gradually returned to pre surgery condition.
Back to 3-4 pads/day.
Latest PSA 4/1/10 negative.
AMS 800 artificial urinary sphincter implanted 7/8/10 at U of MI.
AMS 800 activated 8/25/10 Dry for first time in 2 years.
Links to my journey posts: