Thanks Jerry and Boogee. When I was in the hospital, a few doctors came round to see me because they thought it was unusually for someone in their mid-40s to be so advanced. When I went to Fox Chase for a second opinion about treatment, they seemed anxious to get me into a clinical trial largely because of my age.
I can't for the life of me remember what the clinical trial was all about, but at the time I was overwhelmed by my diagnosis, I didn't know anything about cancer or my therapy yet, and I felt that getting experimental was a decision I didn't know how to make. I'll get details about what kind of trial it was, but my wife tells me she looked it up recently and part of the requirements for the trial was that you have been on Lupron but HAVE NOT had more than 120 days of Casodex. By this time, I've been taking casodex for nine months so I couldn't get into that trial if I wanted to. The time to act on it was October of 2011 but I was too scared at the time.
The doctor at Fox Chase also made the mistake (?) of telling me that the average time to hormone resistence was 18 months. That really put me into a bad state. My local onc was telling me that I can last up to ten years on HT so of course I tended to trust him more because he was saying what I wanted to hear.
Jerry I may take up your offer to talk in a week or two. I'll be in touch.
Diagnosed 9/14/2011; Age 47; PSA 5,000+
Metastatic Stage 4, spread to entire skeleton w/femur fracture
Current therapy: Lupron/Casodex/Aredia
June 4, 2012: PSA 2.2, doing well with little discomfort
June 27, 2012: PSA 1.42
July 24, 2012: PSA 0.69 !!!!!