I've had prostate cancer for more than 10 years but only came to this forum a few months ago. This is my second experience with cancer, having also had melanoma, which is also scary, but which seems to be gone, even though they keep slicing pieces off of me to be sure.
My reason for being a newcomer here is that, until recently, most of what I wanted to know was pretty widely available through medical journal articles, medical center web sites (nomograms, etc.), books, and so forth.
I may now be approaching a threshold where there is not a lot of widely available information on which to base decisions.
By brief background, I wrote about
veterinary medicine for about
8 years and have also edited several hundred human medicine papers, written by non-native English speakers, for submission American and British medical journals. I'm a believer in the scientific method -- statistical analysis, confidence intervals etc. -- which from my point of view is the best way to handicap my, or anyone else's, odds when making treatment decisions. I'm also a believer in me being in charge of my own medical decisions, based on the input I receive from my doctors and what I can find published in journals or reputable medical web sites.
Now that I'm looking over the edge of the trench at a realm in which there is little in the way of double-blind studies or published nomograms, I see this site and a few others as the best place to read and evaluate opinions based on peoples' personal experience.
I don't agree with everything I read here. I read everything in the context of what I know--or think I know--from my lifetime of experience; but I read it all with an
open mind and I am very, very grateful for the honesty, and good intentions of all who post here. I've learned a lot of things here that have prompted me to make further inquiries as I make plans for possible fallback positions, B, C, D, etc. in the future.
-DX March 2002 - PSA 9.0, needle biopsy PCa in both hemispheres
-RP April 2002. Pathology PT3B N0 MX Gleason=7 (3+4), seminal vesicle involvement. No lymph node involvement.
-Post-surgery PSA low of 0.01; slow rise to 0.4 (August 2009).
-SRT Jan/Feb 2010. Enlarged lymph node near prostate bed found and targeted. Casodex 3 months during SRT
-PSA 0.00 for 2 years
-PSA 0.01 April 2012
Post Edited (Bohemond) : 7/25/2012 7:31:29 PM (GMT-6)