Posted 8/22/2012 4:30 PM (GMT -7)
There is an ostomy community here at HW if you want real specifics. But I think I can help, my bladder and bladder neck were severely damaged by radiation. So I have a stoma too, I had Urostomy surgery almost 2 years ago. It was the Ileal Conduit Surgery. I use a two piece Hollister pouch/device, and on the average, we change it out once a week, sometimes more. There is usually always a little bit of blood when the stoma is cleaned off, fresh blood, but not a lot. My wife is a nurse and she carefully dries the stoma off real good before changing devices. I have talked to my urologist, and he said not to worry about it, its pretty well normal for many with stomas.
It doesn't hurt or anything, so I have gotten use to the small presecence of blood. Hope this helps. If you have any doubts, check with your urologist or doctor. Least I know I am not the only one here with one.
BTW, my stoma ended up being convex instead of concave like most are, so it took us several months to find the right device that would last. If you have any other questions like this, be happy to answer you.
David in SC
Age: 60, 56 at PC dx, PSA 16.3
3rd Biopsy: 9/8 7 of 7 Positive, 40-90%, 4+3
open RP: 11/8, Catheter in 63 days
Path Rpt: 3+4, pT2c, 42g, 20% tumor, 1 pos margin
Incont & ED: None
Surgery Failed, recurrence within 9 months
Salvage Radiation 10/9-11/9, SRT failed within 9 months, PSA 4/12 = 37.x
Spent total of 1 ½ years on 21 catheters, Ileal Conduit Surgery 9/10,
7 other PC-related surgeries
Member of Prostate Cancer & Chronic Pain HW Communities since 10/2008
“I live in the weak and the wounded” – Session Nine (Movie)