Zero Club Farewell...

sorry to hear that. Best of luck.

when did you first discover that you had cancer?

Atleast you are very much informed about what your possible choices are and can likely challenge this in the way you see fit.  I had the non-cure card likely from day one with nasty overall stats, and definitively after treatments and known psa failure in 2004, the good news is still here and talking about it and not suffering with much in side effects for the last 8 yrs. 

Suggestion for consideration for anyone in light of current and world events and unknowns going forward, see if you can get a couple Rx (scripts) written for some drugs you could use little while later or stock up on anything that could be of use to you.   Line up to have an alternate PCa doc, a friend of mine has used like 5 different docs and has accesses to about any drug choice he wants (some docs limit those choices), and he has excellent psa results in so doing, he has manipulated drug changes in his PCa digest history and brung psa increases back down a number of times over many years (so not stupid, results trump everything as far as I am concerned).  Don't be surprized if you are pitched all the highest priced drugs on the planet, your psa level is low and you have many possible ways to control psa and PCa esculation.  Best to you and will look for your future psa reduction and what you have chosen for it. Lots to consider in trade offs as you know.

Thanks for the responces..Zufus, your method of survival makes the most sense to me..My Primary care doc, who did the last blood work sent me back to see my 'discovery" urologist whom I haven't seen in a year and a half..I asked about seeing a medical oncologist next..he said no, see your urologist first..So I call his office, the soonest he can see me is October 24! That's not going to work for me..So Monday I'll hoist a fresh set of sails and pursue a different course..For sure, I'll go back on some form of ADT which should give me another couple of years of "good time" before I go refractory..With my "T" up to 470, I was just starting to feel pretty good! 470 is much higher than it was 5 years ago when this adventure started....Gotta go, more later..

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Age 70
PSA age 55: 3.5, DRE normal.
age 58: 4.5
61: 5.2
64: 7.5,
65: 8.5, " normal", biopsy, 12 core, negative...
66 9.0 "normal", 2ed biopsy, negative, BPH, Proscar
67 4.5 DRE "normal"
68 7.0 3rd biopsy positive, 4 out of 12, G-6,7, 9
RALP Sept 3 2010, pos margin, one pos vesicle nodes neg. Post Op PSA 0.9 SRT, HT. 2-15-'11 PSA <0.1 10/'11, <0.1 2/12, <0.1, 4/12 <0.1, 9/12, 0.8

Fairwind,
Sorry to hear that. I've been following your journey for a while and you are prety informed about the next steps. Good luck.
JohnT

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66 years old, rising psa for 10 years from 4 to 40; 12 biopsies and MRIS all negative. Oct 2009 DXed with G6 <5%. Color Doppler biopsy found 2.5 cm G4+3. Combidex clear. Seeds and IMRT, 4 weeks of urinary frequency and urgency; no side affects since then. 3 years of psa's all at 0.1.

Fairwind,

Sorry about the PSA rise.

Best wishes and good luck.

I am so sorry to hear that. Will keep you in my thoughts!!!

Susan

Very sorry to learn of the rise in PSA.

I also stopped HT in June of last year (2011) and am more than a bit apprehensive about my next PSA test in October.

San Carlos

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PCa diagnosed 2009 at age 65
Stage: T2c, Gleason: 9 (4 + 5), 6 of 6 cores positive. Bone, CAT and MIR scans negative.
Treatment: brachytherapy (103 palladium), 100 gy (11/2009) + IMRT, 45 gy (3/2010) + HT

PSA at diagnosis -- 11.9
10/2009 -- 5.0, 12/2009 -- 0.56
5/2010 -- 0.15, 8/2010 -- 0.06 , 11/2010 -- 0.013
3/2011-- 0.005, 6/2011--0.003, 9/2011-- 0.003
1/2012--0.004, 6/2012--0.163

Fairwind,

Sorry to hear the news. I hope you do find a good medical oncologist. For a radiation oncologist to send you to your former urologist sounds like the "good old boys club" at work. Remember that you can phone consult with the likes of Dr. Scholz, even if you can't afford to go to L.A. for treatments. It never hurts to have an expert in your corner.

Best Wishes,
Nellie

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Age 60 Gleason 9
1/10 PSA 14.7
5/10 Bx: Gleason 3+4
8/4/2010 RRP: Gleason 4+5; Positive Margins, PNI
Incontinence: N/A; ED: 70%
Until 4/11, PSA <.01; 4/11: .01; 6/11: .03
10/11 <.01; 02/12 <.02
ADT3 started 7/11; WPRT 39 sessions ended 10/11:
Pelvic lymph nodes: 45 Gy; Fossa 66 Gy; Prostate bed: 71.5 Gy.
Minor lymphadema as result of lymphadenectomy at time of RRP and whole-pelvic RT

Fairwind,

Sorry to hear about the increase in PSA.
I have followed your posts since you joined two years ago and have admired your logical and informed approach to dealing with your disease.

I am sure that this approach will work very well for you in the future.

An

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Husband's age: 52. Sydney Australia.
Hereditary PC: Mat. grandfather died of PC at 72. Mat. uncle died of PC at 60.
PSA: Aug07 - 2.5|Feb08 - 1.7|Oct09 - 3.67 (free PSA 27%)|Feb10 - 4.03 (free PSA 31%) |Jun10 - 2.69.
Biopsy 28Apr10: negative for a diagnosis of PC however 3 focal ASAPs “atypical, suspicious but not diagnostic” for PC. Review of biopsy by experienced pathologist, 1/12 core: T1c, 10% 3+3 (left transitional), 1/12 core: ASAP (left apex)
Nerve sparing RP, 20Aug10 with Dr Stricker. Post-op path: 3+4 (ISUP 2005). Neg (margins, seminal vesicles, extraprostatic extension). Multifocal, with main involvement in the fibro-muscular zone. T2C.
Post RP PSA,
Lab 1: Sep10 – 0.02|Nov10 – 0.03|Dec10 – 0.03|Feb11 – 0.03|
Lab 2: Nov 10 - 0.01|Dec10 – 0.01|Feb11 – 0.01|Apr11 – 0.01|Jun11 – 0.01

Fariwind, sorry to be late responding, just just getting caught up after a late night arrival.

That isn't news any of wish to hear, and I am sure you are disappointed. However, there's a long road and lots of options still available up ahead, so regroup and charge back into battle.

Fairwinds,
Like the rest on here, we are deeply saddened to hear of your latest challenge you will be facing
Personally, I spoke very highly of you at the GFMPH meeting in NY last week because you gave me information that may have extended my journey by years. Only time will tell.
You do have extensive knowledge and that gives you an advantage I hope in this new challenge.
I think you are undeserving of this given all you have been through and I hope all on this forum recognize your valuable input throughout and we know that will continue.
Sincerely
Art
sickofbeingsic

Keep fighting. Keep living life. There is no alternative. My thoughts are with you.