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Dad Moody After Prostatectomy

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nmckinley
Regular Member
Joined : Aug 2012
Posts : 264
Posted 11/1/2012 7:27 AM (GMT -8)
Hello All.....I was wondering if any of you have gone thru this or have experienced it with people.  Seems like my Dad has been exceptionally grouchy, actually kind of rude to some of us after his surgery.  He did go to his doctor and he believes that he got everything.  Dad goes back for a checkup in January and then will go qaurterly next year.  None of us are sure how to approach him.  We know this is stressful for him and he's not able to do all of his normal activities just yet, but I wish he could just be thankful that his surgery went well and he is doing so well. 
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Cajun Jeff
Veteran Member
Joined : Mar 2009
Posts : 4175
Posted 11/1/2012 7:38 AM (GMT -8)
nmckinley, A little more info would help us put this puzzle together. What is the age of your Dad? Did he have Robotic surgery or open? When was the surgery? Gleason score if you know it?

Many people go into a bit of depression after any surgery. Just the diagnosis of Cancer puts some of us in a spin.

For many of us it is the first time we face that face that life is finite.

Give Dad a break, show him love, support him (even when he is a jerk) He will come around.

Cajun Jeff
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PeterDisAbelard.
Forum Moderator
Joined : Jul 2012
Posts : 6408
Posted 11/1/2012 8:01 AM (GMT -8)
Cajun Jeff,

He has a previous thread that has some of that info. Surgery was Sept 27th, catheter came out mid-October, G7(3+4) pT2c PN0 pM-not applicable, didn't see the age.

nmckinley,

The two most common side effects of his surgery are the loss of the ability to father children and at least several months of being depressed and grouchy.

Do you know if he is continent? Problems in that department can really weigh a man down.
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nmckinley
Regular Member
Joined : Aug 2012
Posts : 264
Posted 11/1/2012 8:18 AM (GMT -8)
Hello....sorry....I should have included more info. My dad is 66. This is his first tangle with cancer. He had an open surgery. Lymph nodes were neg. He is wearing pads now but says he doesn't have much leakage. Only when he stands there seems to be just a little. He is not soaking a pad or anything. It's like his anger is coming out just at random times. I know it's easy to take things out on the people closest to you, and that's what he seems to be doing. It's just kind of hard for us too, when he is acting that way. I know it is definitely a life changing thing, and it was for us too but we are a very supportive, caring, close family. It seems if we just let him rant and not say anything then it goes away. Like for example, last night he got really mad b/c we were grilling out and we were out of ketchup?? Small things like that set him off.
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overthepond
Veteran Member
Joined : Apr 2011
Posts : 648
Posted 11/1/2012 8:20 AM (GMT -8)
He is probably very low, frustrated and angry about it all.
As hard as it is for you all at the moment, I agree with Jeff, just be there for him. Is he a talker or does he tend to keep everything in? (as men often do!). If you can get him to open up and talk about how he is feeling it might help but make sure he knows how much you all love and are there for him.
Wishing him and you all well and hope things improve for you all soon.
Sending you a hug from over the pond.
Susan
x
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James C.
Veteran Member
Joined : Aug 2007
Posts : 4464
Posted 11/1/2012 8:48 AM (GMT -8)
It isn't unexpected that he can/will have bad days. I went thru the same thing, mood swings and unreasonable fits of anger over small things. Things will level out some as he progress and adjusts to his new body and it's functions. I still say there's some chemical or hormone removed from the equation when we have surgery that leads to so many having these mood issues. Maybe trace elements in the seminial fluid? Who knows....
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PeterDisAbelard.
Forum Moderator
Joined : Jul 2012
Posts : 6408
Posted 11/1/2012 9:45 AM (GMT -8)
Personally, I think prostate surgery sucks enough all by itself so that there is no need looking for spooky trace elements to make us cranky.

The most likely reason that he gets angry about random things is that there are other things that are bugging the heck out of him that he can't complain about to anybody. Not to his son. Not to his family. Not to his doctor. Not to anybody.

Lots of people talk about the wonderful things they learn about prostate cancer on this forum. I know I have learned a lot here. And the most valuable thing I have learned is the fine art of manly complaint. This forum is marvelously therapeutic. The wonderful guys here complain endlessly, in considerable detail, about things I am not sure I could ever have mentioned to another living soul until I learned how here. Now I vent with the best of them -- and they are very patient with me and I do appreciate it.

What I'd do if he was my dad is to get him hooked up with a support group, or if he is computer literate, see if you can get him to browse this forum. Find some thread that touches on some topic that might be bothering him and get him to read it. Lead him somewhere where he can learn the art of complaint.
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Raddad
Veteran Member
Joined : Jul 2011
Posts : 1857
Posted 11/1/2012 10:00 AM (GMT -8)
Peter

Very well said! I really like:
Lots of people talk about the wonderful things they learn about prostate cancer on this forum. I know I have learned a lot here. And the most valuable thing I have learned is the fine art of manly complaint. This forum is marvelously therapeutic. The wonderful guys here complain endlessly, in considerable detail, about things I am not sure I could ever have mentioned to another living soul until I learned how here. Now I vent with the best of them -- and they are very patient with me and I do appreciate it.

I KNOW for a fact there a lot of things I never would have spoken to another soul about, actually there are things I say here that I still do not say to others.

nmckinley

I'm a Dad with two beautiful caring daughters, I know (now) I was not myself with them when I was first dx'ed and when they first learned about it. Our daughters put up with me and remained at my side.
Your Dad needs you more now than he ever did before, even if he does not realize it yet. He will - give him time. He will 'level' out and return to himself. If as Peter said above you can get him to look here - I firmly believe that would help your Dad.

Hugs to you and yours.

Bud

We will beat this crap
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142
Veteran Member
Joined : Jan 2010
Posts : 7298
Posted 11/1/2012 10:33 AM (GMT -8)
Peter's comment was right at the heart of it. I can say without question that there are things I "talk" about here that have never passed my lips. Even the GFMPH guys haven't heard it all, and perhaps would not want to.

The biggest issue I had was accepting in reality what I already knew was coming - a "new normal", as someone described it to me before surgery. The real problem with that is that we don't know what the "new normal" will be composed of until months or possibly years after surgery (incontinence, ED, bowel issues, piling on the SEs of RT, HT).

Some simple examples -

I live alone, with no family nearby. I stocked up on things I might need, knowing I would not be allowed to drive for weeks after surgery. I bought a large bottle of apple cider. I did plan to some degree, making sure that the container was plastic. I did not plan for the fact that I was unable to pick up the container. That attempt left me in the floor, in screaming pain, and without anyone to help me back up. Fortunately I was not injured, but it did take crawling to a chair so that I could find something to use to get up again. After that I called a friend who came over and helped me clean up the aftermath and reorganize a bit.

I could not step over the tub side to take a shower (it is difficult for an able person). I had to get a friend to go to the store to buy a stool to help me get into the tub.

I spent five months in Depends pants & pads.

And so on ....

All extremely demoralizing. I screamed at the TV, the only other option being my friends, who I knew I could not alienate, having had my driver's license held by the surgeon's office, if I wanted anything from the store nono

Can't imagine if I had family at home to take the abuse. They would probably have left for the coast.

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Big Mac
Veteran Member
Joined : Jul 2012
Posts : 2036
Posted 11/1/2012 11:00 AM (GMT -8)
nmckinley,

I can relate to your dad. I might get pissed if we ran out of ketchup grilling out also. I might fly off saying something and be alright 10 minutes later.

What these other guys said is true. Peter hit it that there are other things that may be affecting him. I am still going through 5 pads a day and it pisses me off sometimes. Call it the new normal but I still don't like it.

Me patient with him. give him some love, he needs it.

Bill
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BillinChicago
Regular Member
Joined : May 2012
Posts : 80
Posted 11/1/2012 11:01 AM (GMT -8)
I think you need to talk with your Doc and have Dad screened for depression. Also, is he on other Medications? If so, bring that list in and see how everything interacts.
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IronReb
Regular Member
Joined : Oct 2012
Posts : 172
Posted 11/1/2012 12:08 PM (GMT -8)
Something else, he may be having the post surgery regrets. Even though I was absolutely confident in my decision before and during my hospital stay, I had periods of "you idiot" thinking. The fortunate or unfortunate thing about surgery is that most of the bad SE is pretty immediate. You get a real good indication where you stand as soon as you see the hose and start trying to walk. So you get all the bad stuff at one time. It's a pretty hefty load to tote.

There are things you just have to adapt to. In most cases, things get better. It just takes a while to realize it. Biggest thing to concentrate on and take heart in, was that we got rid of the offending organ and my survival chances improved significantly from that point forward. Ya, I know I am one of the lucky guys whose SE has been minimal (so far) and I really can't address the depression those deals cause. I lack that experience for the most part. But what sinking moments I had were quickly over when I considered what I had gained.
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Swimom
Veteran Member
Joined : Apr 2006
Posts : 1732
Posted 11/1/2012 12:42 PM (GMT -8)
NMK,

My money is on low T. Sounds all too familiar. Sounds to be a tad more than post operative depression IMHO.

Good luck and hoping for all good things.

Swim

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English Alf
Veteran Member
Joined : Oct 2009
Posts : 2237
Posted 11/1/2012 1:06 PM (GMT -8)
Sounds familiar, been there too.
I think my PCa and treatment stopped me having inhibitions about many things, so I also found I stopped hiding my feelings a lot more. I think I always used to feel fed up about some everyday things once in a while, but kept it to myself, now I sort of feel "why bother, why not call it like it is."
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RandomPseudoNym
Regular Member
Joined : Dec 2011
Posts : 135
Posted 11/1/2012 1:09 PM (GMT -8)
After several decades of being toilet-trained, it's extremely demoralizing to be piddling in your pants. I'd personally planned to put it off until "never" or at least another 40 years or so...

Having the old flagpole not respond to commands to rise also sucks. That happens for at least a while to nearly everyone who has surgery, even when it goes well. Going well in that department is eventually recovering voluntary use of the thing.

Talking about it - not comfortable. Talking with your offspring about it - WAY not comfortable. Depressed and angry is pretty normal - there's also the "why me cancer" anger thrown on top of that.

I about bit the head off the receptionist in the urologist's office when they wanted a completely pointless urine sample on the day I was getting biopsied. Gosh, you're going to shove a probe up my behind and poke needles in to me, and you want me to pee in a cup for WHAT POSSIBLE PURPOSE!
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NewspaperLover
Regular Member
Joined : Sep 2009
Posts : 453
Posted 11/1/2012 4:48 PM (GMT -8)
Sounds like your Dad has a well developed case of getting his own way.  There is a world full of suffering out there.  Go to any major cancer center, have him walk around, and see so many patients much younger, some children! Your Dad, at age 66, should come to grips with the fact that he has reached the stage where life starts taking things away.  If he is taking it out on his family, it is not the cancer, it is him.  No patience for a man who is unkind to his family.

Newspaper Lover

Age 68

DaVinci surgery 11/09. Clean margins, clean seminal vessels.

Rising PSA noted 06/11

Gleason 8

Time to recurrrence 18 months

Three month doubling time (summer 2011).

PSA rose from .07 on 06/11 to .17 on 11/11.

MRIs and bone scans negative so far.

Started hormone therapy (Lupron/Casodex) 12/11

Began radiation (SRT) 02/20/12.

Finished SRT 04/16/12

Last Lupron shot 03/12

PSA and testostorone "undetectable"  07/12

Next PSA and testostorone test early January

 

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Purgatory
Elite Member
Joined : Oct 2008
Posts : 25448
Posted 11/1/2012 4:54 PM (GMT -8)
Sounds like some post surgery depression taking place to me, or even depression related to knowing he has/had cancer in general. It can manifest itself in many forms, included anger that isn't normally present. Make sure that he's not in pain, some men will deny pain to appear touch and macho. Untreated pain can cause unwarranted anger at times. Mostly give him space to vent there and there, hopefully, he will come around to being "normal" again with his family. If not, encourage him to see his doctor sooner, rather than later.

David in SC
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Friarfinnegan
New Member
Joined : Mar 2018
Posts : 3
Posted 3/21/2018 9:13 AM (GMT -8)
Very old thread, but why not admit he's angry because his penis is unresponsive for the first time in his life.
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