Say what? said...
So today my doc tells me my PSA is 4.51. Not a surprise as it has risen over two years from 3.90. Had a biopsy done that came back negative in October of 2011. My dad, one older brother (6 years older) and a 10 month old younger brother all have had PC. My Dad passed due to non PC breathing problems. He was in his 70's when diagnosed and had seeds put in. I am 52 y.o. The question I have is what treatments are out there outside of removal or freezing the prostate? My doc says they have some good studies going with freezing only the areas of the prostate that have cancer, but these are still in the study phase. Anyone know more about them?
I am an old hand with cancer as at 25 I was diagnosed with testicular cancer. It was removed and followed up with radiation. I went on to have five kids, currently 18 y.o down to a seven y.o. However, two years ago had a lump near my rectum, which I thought was a hemorrhoid, removed and it turned out to be Leiomyosarcoma, or LMS. Most docs think it was from the radiation 25 years ago, making it a Radiation Induced Sarcoma or RIS. I still have the same urologist I had back then and he was devastated at the news once he found out. I go every four months now of follow ups for the LMS with blood work and chest x-rays and Pelvic and abdominal MRI's every 6 months. First two years they were done every 3 months. I was told by a radiology oncologist that I am not a candidate for anymore radiation in that area of the body if sarcoma pops up again.
As for my mindset, I tell my wife to expect the very worst every time, then if the news anything less than that you will feel better. That's how I was going to the doc to find out about the lump that turned out to be LMS. My wife was thinking the opposite, that everything was going to be fine. As we left we did not say a word walking to the car. Once inside the car she turns to me and asked, in a sad voice, " Now what?" to which I answered, "Let's go to McDonalds I'm hungry!" and we did. Needless to say she didn't eat but I got a Big Mac and fries. Expectations are everything.
More than in the study phase for me as I approach my 5th anniversary of my TFT. The only place I know to get this less invasive treatment is still only in Denver. But one treatment I highly recommend that only myself and another received as we both remain the two most successfully treated men here.
Diagnosed 11/08/07 - Age: 58 - 3 of 12 @5%
Psa: 2.3 - 3+3=6 - Size: 34g -T-2-A
2/22/08 - 3D Mapping Saturation Biopsy - 1 of 45 @2% - Psa:2.1 - 3+3=6 - 28g after taking Avodart - Catheter for 1 day -Good Candidate for TFT(Targeted Focal Therapy) Cryosurgery(Ice Balls) - Clinical Research Study
4/22/08 - TFT performed at University of Colorado Medical Center - Catheter for 4 days - Slight soreness for 2 weeks but afterward life returns as normal
7/30/08 - Psa: .32
11/10/08 - Psa.62 -
April 2009 12 of 12 Negative Biopsy
2/16/10 12 of 12 Negative Biopsy