I am talking as a support group leader here and with a heavy heart.
One of the things mentioned by the USPSTF when they said to end all prostate cancer screening for men is there is over diagnosis and over treatment of prostate cancer it rings out with your post to me with resonance.
I took a lot of heat from a prominent prostate cancer lobby when I said I agree as a support group leader that over diagnosis exists and we're not just talking that 95 year old man. I'd probably take a lot more of that heat still today. Your not the first to make this claim that I've heard but it's not limited to surgery though it is more prominently surgical results that I've heard it.
Still, the facts are that you've had terrible results. I'm sorry if an earlier position I took about
this ever mislead you. But I rest my case with an irresponsible outlook that says ALL men should be screened. I won't be doing business with that group again unless they change their tone. You are far from the first I have heard say this. And like I said I have heard it from just about
every form of therapy we have. We've gotten better and you guys are not the norm, but we have a long way to go to eliminate the loss of QoL or the empty feeling it won't get better in men treated for PCa.
It's hallow to say I did well with my choices.
All the best and I hope you get to a better place!
Forum Moderator and Patient Advocate
Dx Age 44, PSA 19.8 in 2006 ~ RALP Surgery 2007 , radiation and hormonal therapies.
Patient Profile: /www.facebook.com/notes/tony-crispino/working-for-hope/10150776531122571
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