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The Profit Motive for Over-Treatment

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Prostate Cancer
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davidg
Veteran Member
Joined : Feb 2011
Posts : 4093
Posted 6/17/2013 12:15 PM (GMT -7)
My urologist charged the insurance company 7K for my biopsy. I'm sure he didn't get that much.

I've read first hand accounts of folks of AS for 5+ years who add up the costs of their management strategy and it rivals surgery costs. Imagine a successful management strategy over the course of 10+ years which would be very common according to you in young guys with low grade indolent bad cell syndrome.

Also, some 40% of AS participants drop out after a few years (forget exact cut off) Those guys end up paying for 2-3 years of AS and treatment. They're an even bigger burden on the system for those who worry about that angle.
40 years old - Diagnosed at 40
Robotic Surgery Mount Sinai with Dr. Samadi Jan, 2011
complete urinary control and good erections with and without meds
Prostate was small, 34 grams.
Final Gleason score 7 (3+4)
Less than 5% of slides involved tumor
Tumor measured 5 mm in greatest dimension and was located in the right lobe near the apex.
Tumor was confined to prostate.
The apical, basal, pseudocapsular and soft tissue resection margins were free of tumor.
Seminal vesicles were free of tumor.
Right pelvic node - benign fibroadiopse tissue. no lymph node is identified.
Left pelvic node - one small lymph node, negative for tumor (0/1)

AJCC stage: pT2 NO MX
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PeterDisAbelard.
Forum Moderator
Joined : Jul 2012
Posts : 6286
Posted 6/17/2013 12:16 PM (GMT -7)
Tall,

I understand your point and I agree with your statistics but my individual history makes it impossible for me to argue that such anxiety is wrong headed. Unless the standard of care includes a second opinion on the diagnostic biopsy slides, had I followed that program I would have entered AS diagnosed as a very-low volume Gleason 6(3+3) with a negative confirmation biopsy. (My last biopsy missed the little bit of cancer that the previous one had found.)

I might have been kicked out of AS by a rising PSA at some point, but Gleason 9 tumors don't make that much PSA and I might still be actively surveilling my high-volume GS9 cancer now, a year and three quarters after diagnosis.

I understand that for every guy like me there are ten who have needless surgery that makes them pointlessly miserable. I get it. I try to steer new guys who sound like AS candidates towards at least understanding the concept so they can make their own decision. I put on my Mr Science hat and help them understand the odds which, as you say, often make AS sound pretty attractive.

But in doing so I am soooo conflicted. I can't help being really glad that I didn't get any advice from a guy like me before I made my decision.
60
Slow PSA rise 2007-2012: 1.4=>8
4 bxs 2010-2012:
1)neg (some inflammation),
2)neg,
3)positive 1 of 14 GS6(3+3) 3-4%, 2nd opinion GS7(3+4)
4)neg.
Mild Pre-op ED
DaVinci RRP 6/14/12. left nerve spared
Path: pT3a pN0 R1 GS9(4+5) Pos margins on rt
Start 24 mo ADT3 7/26/12
Adjuvant IMRT 66.6 Gy 10/17/12 - 12/13/12
Leaky but better, Trimix, VED
Forum Moderator - Not a Medical Professional
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Tall Allen
Elite Member
Joined : Jul 2012
Posts : 10645
Posted 6/17/2013 1:03 PM (GMT -7)
Peter,

I think you are making a good argument for an improved, and perhaps less costly AS protocol. Let's say that biopsies were only done after eliminating confounding sources of PSA, such as I proposed in an earlier post:

Over-biopsying
This would eliminate many insignificant cancers that are now being treated or put on AS.

• Then add $600? for a Bostwick/Epstein re-read.
• Then a CDUS/mpMRI/saturation biopsy at one year (which might have picked up your Gleason 9). This would add maybe $700-$1,500? to the cost. (I'm guessing at the costs)
• Then, repeat every other year if there is sign of progression, or every 5 years if there is no sign of progression.

Since most GS6s do not progress, such a protocol might actually cost less while detecting more progression.
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BillyMac
Veteran Member
Joined : Feb 2008
Posts : 1858
Posted 6/17/2013 4:57 PM (GMT -7)

compiler said...
Gassman:
>>>>>>>>>>>>>
Most of Europe is a socialized, government controlled system driven by bureaucrats.
>>>>>>>>>>
You say that like it's a bad thing

(Only kidding a smidgeon). Since you have touched on politics:

You then talk about this wonderful choice we have here:
>>>>>>>>>>>>>
My takeaway is , you have personal choice and can choose your treatment in the US. When governments control health care this won't happen.
>>>>>>>>>>>>>>>>>>>>
Yeah, I agree. I have great choices and my insurance covers a goodly portion of my bills. Tell that to the guy that got laid off, lost his insurance, and then gets a PC dx. Or the guy looking for insurance but they won't cover pre-existing conditions.

YOU and I and MOST PEOPLE ON THIS FORUM have choices. But how we treat those without insurance is a national disgrace. Those who have MediCare do have the government involved. Most of them seem to be satisfied. As for the others I alluded to: LET THEM EAT CAKE???

Mel

Personally Mel I don't think you have touched on politics. I see you as having raised legitimate points pertaining to overservice generated by the desire to make higher profits. I cannot understand why, as this is an international forum, rational discussion on the delivery of health services is not considered a valid area of concern. Left or right political views should not enter into the discussion but rather what delivers the best overall result should be the yardstick. Personally I see medical care as a right with average life span and infant mortality as the measure of how well such medical care is delivered.
Bill
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142
Forum Moderator
Joined : Jan 2010
Posts : 7298
Posted 6/17/2013 5:21 PM (GMT -7)
Billy,

You are correct, but give the conversation 10 minutes (at best) before someone throws in politics, and kills the thread.

I would love to be able to discuss delivery mechanisms, but as they are so associated in the US to specific parties/presidents, it can't happen.


Moderator - Prostate Cancer
(Not a medical professional)

DaVinci 10/2009
My adjuvant IGRT journey (2010) -
www.healingwell.com/community/default.aspx?f=35&m=1756808
HT (Lupron) 6-mo injection 9/12;Prolia 6-mo inj 12/12
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Purgatory
Elite Member
Joined : Oct 2008
Posts : 25440
Posted 6/17/2013 6:26 PM (GMT -7)
I think both and 142 are correct at the same time, but from long term observation here, I truly believe 142 is very correct, we are so polarized at this point in U.S. politics, and one wrong remark would trigger a partisan war. Rather not see it either.

david
Age: 60, 56 at PC dx, PSA 16.3
3rd Biopsy: 9/8 7 of 7 Positive, 40-90%, 4+3
open RP: 11/8, Catheter in 63 days
Path Rpt: 3+4, pT2c, 42g, 20% tumor, 1 pos margin
Incontinence & ED: None
Surgery Failed, recurrence within 9 months
Salvage Radiation 10/9-11/9, SRT failed within 9 months, PSA 12/12 = 40.x
Spent total of 1 ½ years on 21 catheters, Ileal Conduit Surgery 9/10,
7 other PC-related surgeries 2009-2012
Severe Chronic Pain, Severe Fatigue, & Urostomy
Member of Prostate Cancer & Chronic Pain HW Communities since 10/2008
“I live in the weak and the wounded” – Session Nine (Movie)
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Casey59
Veteran Member
Joined : Sep 2009
Posts : 3172
Posted 6/18/2013 10:20 AM (GMT -7)
FrackMe said...  I'm curious why Dr. Samadi chose to move to Lenox Hill. It's usually not ranked up near the top... Larger PR staff to support him.   Maybe not; just sayin'.   What? Did you not know that hospitals have a PR staff?  How about a "Chief Marketing Officer."  Talk about motivated by profit; read on...     Samadi has taken flack previously for his "advertorial" (advertisement looking like an editorial) approach, and the whole (Mount Sinai) hospital got a black eye.   Even the marketing & advertising world has raised it’s eyebrows regarding the ethics of what have been going on there which was considered by others to be “misleading advertising.”   One article, titled “ Spun Silly:   Academic Medical Center Cancer Treatment Advertising in the Era of Hype and Flim-Flam ,” took direct aim at the Samadi advertisements claiming “the highest cancer cure rates with the lowest risk of side effects.”   When approached by the NYTimes, the hospital admitted that it could provide no studies that showed the doctor’s results were superior to those of other hospitals or surgeons.   Under pressure, they later tweaked the promotional wording to say Dr Samadi’s approach gives “high rates of success coupled with lowered risks of side effects.”   Later, they defended their approach saying cancer treatment ads tend to play more heavily on emotion than medical statistics (we’ve seen that) because the ads are “meant to make an impression on future patients.”   The president of the ad agency that produced the Mount Sinai ad said, “This isn’t retail advertising.   This is reputation advertising.”   The Mount Sinai Chief Marketing Officer recently stepped down (2012) from her role as after the firestorm triggered by the brand-building and integrated multi-media advertising, marketing and press strategy campaign. What may confuse “buyers” (like us) is that medical centers are exempt from advertising constraints which put limits on others through FDA and FTC regulations because of their non-profit claims.   If a drug maker ran an ad for a cancer medicine, the FDA would require the company to support superiority claims with substantial evidence from rigorous clinical trials.   But the federal agencies cannot limit the ad claims made by non-profit medical centers.   In medical science, the anecdotal claims of the Samadi ad would not be considered valid ; but, ads for non-profit medical centers are not held to any standard of evidence.   It’s worth considering that the reality that Mount Sinai is a very good hospital, and Dr Samadi is probably an outstanding surgeon.   Anyone “misled” by their ads is nonetheless, if they end up being a patient, going to likely end up getting excellent care.   So maybe not much harm is going to be done...perhaps a "victim-less crime."   It’s hard to imagine getting too cranky about being “tricked” into getting treated at Mount Sinai.   But consider the ethics in the big picture:   these hospitals are likely ‘industry leaders’ in more ways than one. They set the tone for advertising by other hospitals, probably including ones providing a much, much lower standard of care. Now how do you feel about the original topic of this thread ... profit motive for over-treatment as it overlaps with misleading advertising and the realization that your emotions have been the target of slick multi-media marketing campaigns?   (Clearly intentional "misspelling" of Samadi's name changed. Rule three applies, even if the person being flamed is not a member here. - 142)   Post Edited By Moderator (142) : 6/18/2013 2:32:25 PM (GMT-6)
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davidg
Veteran Member
Joined : Feb 2011
Posts : 4093
Posted 6/18/2013 10:48 AM (GMT -7)
Casey, that's better put and far less abusive, bravo!

All top surgeons (Menon, Tewari, Patel, Samadi etc) claim higher rates vis-a-vis avoiding potential SEs. Tehy all publish such numbers and such claims.

I, like all of Samadi's patients, filled out a form prior to surgery and my progress was monitored post surgery. They don't pull the numbers out of a hat. If you think and claim they do, you should email Samadi directly and someone from his staff will give you the information you seek. Your portrayal of the NY Times/Mt Sinai article is not correct and the woman you speak of did not resign because of anything having to do with Samadi. You should be careful spreading assumptions like that because they don't really help anyone and could further put some at risk.

I think you miss the biggest nuance when discussing cure rates and ED. What is cured and what is not having ED?

For instance, I have been told by more than one urologist that I am cured. I don't feel cured. I'm probably down as cured on Samadi's chart because it was verified to be organ confined, because my numbers were low to begin with, and because almost 3 years out i;m scoring zeros. That said, i wouldn't personally classify myself as cured.

When I met Samadi he told me he was confident i would be "cured" and not have issues with incontinence and ED long term. After he was done with me, it was confirmed as organ confined, i wasn't incontinent from minute 1, and was having sex with ed pills within a month and without pills within months. Anecdotal as it may be, I have encountered and talked to numerous Samadi patients with similar results. I don't only credit his skill, I credit our young(er) age and the level of fitness, including sexual fitness, we had going in. The younger we are, the better we do.

Now two honest questions for you...

1 - Why did you feel the need to bring Samadi into this if not for childish personal reasons?
2- Why do you post in green? it's really hard to read. Is it because you want your posts to stand out from rest and gain more attention?
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FrackMe
Regular Member
Joined : Jun 2011
Posts : 405
Posted 6/18/2013 11:17 AM (GMT -7)
I am not a big fan of Dr. Samadi, but I must say that calling him Dr. S*amadi is disrespectful. It adds nothing to the level of discourse.
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Tim G
Veteran Member
Joined : Jul 2006
Posts : 2457
Posted 6/18/2013 4:35 PM (GMT -7)
@ Moderator Peter:  Family docs still deliver babies, just not high-risk pregnancy deliveries.  My daughter is a doc (family medicine) and delivers babies.

@Clocknut:  Regarding AS, very well put as is your wont.

 


Prostatectomy 2006 Organ-confined
7 years PSAs < 0.1
Prostate Cancer Foundation Supporter
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clocknut
Veteran Member
Joined : Sep 2010
Posts : 2715
Posted 6/18/2013 4:48 PM (GMT -7)
Tim, thanks for the compliment.  I guess it's even true that in some places nurse midwives also do deliveries of pregnancies that are not high risk.  You must be very proud of your daughter.
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PeterDisAbelard.
Forum Moderator
Joined : Jul 2012
Posts : 6286
Posted 6/18/2013 7:22 PM (GMT -7)
Tim G,

You are right. I overstated the decline. When my son was born in 1980 approximately 45% of family practice doctors delivered babies. Now that figure stands at 10% and a large majority of those are in rural areas that are under-served by obstetric specialists.

It's cool that you daughter has found an opportunity to do so. It's a very rewarding way to practice medicine.
60
Slow PSA rise 2007-2012: 1.4=>8
4 bxs 2010-2012:
1)neg (some inflammation),
2)neg,
3)positive 1 of 14 GS6(3+3) 3-4%, 2nd opinion GS7(3+4)
4)neg.
Mild Pre-op ED
DaVinci RRP 6/14/12. left nerve spared
Path: pT3a pN0 R1 GS9(4+5) Pos margins on rt
Start 24 mo ADT3 7/26/12
Adjuvant IMRT 66.6 Gy 10/17/12 - 12/13/12
Leaky but better, Trimix, VED
Forum Moderator - Not a Medical Professional
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Casey59
Veteran Member
Joined : Sep 2009
Posts : 3172
Posted 6/19/2013 1:20 PM (GMT -7)
FrackMe said... I am not a big fan of Dr. Samadi, but I must say that calling him Dr. S*amadi is disrespectful. FrackMe, and others interested in a historical perspective of HW, there is a track record that was cemented before you joined HW.   Since only a few of the regular participants in today’s HW/PC could recall this, I will recount it here, in brief, with just the facts and without adding any opinion of my own.   With some regularity (perhaps every 3- or 4-weeks or so, in my recollection), the HW/PC site would get a newcomer who would post just once then typically (not always) disappear.   The posts were from different pseudonym member names, but they were “surprisingly” similarly worded…as if they all came from the same script .   They would heap overly-generous praise on Dr Samadi, claiming that he “saved their lives,” sharing the details of the miraculous, near-instantaneous recovery that they made from surgery, and quoting the doctor’s stratospherical success rates.   Some of those posts even included the doctor’s contact information…just in case you might be looking/interested.   Several HW members who also participated on other PC-related social media forums reported here that identical messages were concurrently showing up on those other sites, and again noted that they were oddly similarly written. These fly-bys were nearly as frequent as we would get other one-time posters claiming that their cancers were miraculously cured by drinking toad piss, and that vials of toad piss could now be ordered online now by going to their website…or perhaps it was some other similarly informative, and perhaps tempting, experiences.   Thankfully, HW/PC has a very active & empowered “spam police” which quickly tags such threads as likely “spam” so that the young & naïve do not fall prey to the nefarious intent of these scum suckers.   For added contextual perspective, please note that these were occurring in the early days of the overtreatment “awakening.”   The “awakening” tipping point was (my opinion) the publication of the Scholz book “The Invasion of the Prostate Snatchers” in summer of 2010…a full year before to the USPSTF “wake-up call.”   Six m onths before the book’s publication, in a March 6, 2010 HW/PC thread , I wrote, “ By the way, brace yourselves for the tsunami of ‘overtreatment’ discussions heading this way later this year when the Dr Mark Scholz book titled ‘Invasion of the Prostate Snatchers’ gets published .”   Was I prophetic, or what?! It was in Schulz’s book and other publications that certain doctors were beginning to get “called-out” by the media, the public, and other doctors for preying on (in particular) fears and emotions of the naïve, uneducated patients, many of whom were young with tiny amounts of clinically detectable PC which never would have been treated in the past (see my comment above about “this is not your father’s PC”), for reasons with disturbing undertones of economic self-interest…which is, of course, the direct linkage to the subject of this thread. So, with fairly clear, but albeit circumstantial, confidence of the "spam police," the fly-by posts of Dr Samadi’s patients got labeled as “spam.” In the end, many HW members agreed that the doctor’s skills were unquestionably high, but his apparent multi-media advertisement/recruiting practices (targeting the confidences of the young & naïve?) appeared distasteful to most.   It did, however, spark some creativity amongst us.   Brother zufus created this ditty (and I will go ahead a change the name's spelling away from the now-viewed “offensive” version, which was in the original wording): zufus said... Dr. S amadi now he's the best He gets the cancer where it rests You'll be cured and feelin' fine Back in the sack and making time Little Willie feelin real woody No E.D., you wonder, how he couldy Remove the gland and make you 'the man' Does 5 a day and makes $100,000 gran' Now give a referral and that's his plan What a doc and what a man See his videos and on t.v. This is the doc for you and me!!!   Post Edited (Casey59) : 6/19/2013 3:10:23 PM (GMT-6)
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davidg
Veteran Member
Joined : Feb 2011
Posts : 4093
Posted 6/19/2013 2:26 PM (GMT -7)
Casey, that again is 100% incorrect.

You and a few others literally chased off two guys who had recently had surgery for PCa and treated them liek crap. It was one of the darkest days I have ever seen on HW and a disgrace.

The moderators stepped in (too late unfortunately) and fixed the situation.

I was also treated as if I was a phony PCa patient.

Casey, I think you're touched, and not by an angel.
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FrackMe
Regular Member
Joined : Jun 2011
Posts : 405
Posted 6/19/2013 2:34 PM (GMT -7)
The Zufus ditty is quite witty.
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142
Forum Moderator
Joined : Jan 2010
Posts : 7298
Posted 6/19/2013 2:35 PM (GMT -7)
Some of the last few posts here are dragging up things from the past that should just be left alone. There is no point in a transcript being pulled up. The offensive spelling has been edited already. That should have been adequate warning, but I guess it wasn't.
Moderator - Prostate Cancer
(Not a medical professional)

DaVinci 10/2009
My adjuvant IGRT journey (2010) -
www.healingwell.com/community/default.aspx?f=35&m=1756808
HT (Lupron) 6-mo injection 9/12;Prolia 6-mo inj 12/12
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