I just finished looking at and reading the first 15 to 20 replies of a very recent thread by"tednsal". There were over 180 replies and the first 15+ were nearly all negative - with so many regarding side effects ... and a few regarding costs.
Yesterday, I took my first dose of Xtandi - and I tried it at about 4pm - only because of the label warnings for drowsyness - and most of my activity lately seems to be in the 9am to 3pm range. I can, perhaps, shed some light on the costs of Xtandi - or reducing the costs of it.
Last year, 2012, while in the hospital for kidney problems created by the spreading PCa, my Onco started me on Zytiga. After being on Zytiga for a couple of months - and following the costs - the "donut-hole" of Medicare Part D was at about $2800.+ .... but by April of last year, I hit the "catastrophic" plateau which was somewhere around $4500. - at which time all covered meds were billed at either 5% or 10% of the cost.
In summary, for those at or over 65, there is some relief from the extremely high cost meds. Last year, I paid just over $6200. out of pocket for all meds combined - and that includes medication for COPD and for Prostate Cancer. The Part D insurance paid close to $30,000. of those meds.
I thought Xtandi, my oral chemo this year, would operate the same ... but I did get a lot of help from the office of my Onco ... and that's available to all patients of all ages! My Onco's office (and it is a fairly large one) has an on-staff finance/insurance expert who worked for my benefit with the makers of Xtandi. After some applications filled out and tel meetings with various people, I had an offer to purchase discounted meds from the manufacturer thru an assigned pharmacy - for much less than I had paid last year for the Zytiga.
Bottom line now ......... I hope (key words aren't they) that the success of the Xtandi treatment is close to the success of the purchase pricing of it thru the above process.
NEXT - side effects ...???
Hope the above helps a few people who have been blown away by the costs of the Xtandi. My co-pay thru insurance was given to me at $2854. per month. My cost, without insurance coverage - but negotiated, should be much less than that over the next 6-months.